Re: Need some advice

[Guest guest]

After 5 months of being home, I was gnashing at the bit to do

something. I didn't realize how bad the fatigue is until I did

return to work. Here at home, I could rest when I wanted/needed to.

I am lucky enough to be able to work from home on Tuesdays. I have

Monday to deal with then a peaceful day and then a 3 day week.

You are still healing and will be for a while. Your brain will be

happier at work, just don't tax your body too much.

Carol

[Guest guest]

,

I think the premise of SCD to treat your celiac is certainly sound, but it's

just not advisable to have zero carbs, aside from grape jello. That is

absolutely not healthy. Of course, I can't imagine that going back to eating

pure sugar is a way of staying healthy either.

Have you tried digestive enzymes? I honestly have no clue whether they are

advisable with your condition.

What about bone marrow broths? That doesn't solve your carb crisis, but you

would be getting some very healing nutrients and minerals... and your stomach

*might* accept it. I have some concerns about the gelatin itself... as regular

gelatin contains MSG. I personally don't ever use it for that reason. The marrow

broths contain natural gelatin... and sooo much more. You could just drink the

grape juice, if you're tolerating it, and try the broth?? Here's a link:

http://www.westonprice.org/foodfeatures/broth.html

We just have no information or experience about your stomach disorder. It could

be that there has been so much damage, you simply will never completely recover.

No one here has any idea if SCD would eventually help or not, and I don't think

any of us has any idea whether your vagus nerve could have been damaged or not.

That would take a medical professional's assessment.

I feel rotten about having no real answers for you.

Patti

Need some advice

Ok. I've been on the diet for seven days now. All I've been able to eat are

meat, eggs, cheese, and grape jello. I'm not really tolerating the grape

jello, but I don't know what else to do for carbs. I have tried the more

so-called tolerable foods, such as, applesauce, green beans, and zucchini

(sp?). All were cooked very well and pureed. My stomach is absolutely not

accepting these foods (gastroparesis), but my intestines (and my mood!!!)

really really like them. In other words, once the food is out of my stomach,

I'm fine. It just takes forever for it to leave! So....I think I've come to

the conclusion that the gp and the celiac are two entirely different

diseases. I've known for a long time that what my intestines are crying out

for, my stomach is totally rejecting. They want entirely two different

things. I can either be sick because I'm eating sugar, or I can be sick in a

different way because I'm eating things my stomach cannot tolerate. You get

the point.

I'm doing sort of a last ditch cry for help here. Does anyone have ANY idea

what could be the problem? The area of my stomach that is so picky is just

at the top of the stomach, where the esophagus meets the stomach. I

literally feel like someone punched me there when I eat the above mentioned

foods. And my back muscles compensate, and therefore I feel like I " m

carrying 200 pounds, and my whole body is sore from doing it. I will tell

you that I had a huge ulcer in that area before they discovered I had

celiac. I don't know if the two are related, but I am thinking not. ??

I know the vagus nerve is there. Could the ulcer have damaged that, and

caused the gp?

Any thoughts? I'm about ready to need to stop the diet. I can't survive on

meat and jello....and this stomach ache. I love the foods and want to do

this so badly, but maybe now is just not the time.....

~

Celiac, 34, day seven on SCD, started Diflucan and Olive leaf extract, none

of which has made any difference...

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Visit Your Group

[Guest guest]

Well, I apologize. I didn't mean to make you feel rotten. :-) Don't feel

bad. I've literally been going through this for four years. Although it's

not fun for your only choices to be eating unhealthy and having no pain, or

eating healthy and having lots of pain, one does get used to it - in sort of

a demented way :-) I've been to so many doctors that I really can't afford

to go anymore.....especially since I just had to have a new pacemaker put in

(it was unexpected). They don't know what causes gp either. There is no

cure. Anyway....back to the point.....

I have tried enzymes. I only had a tiny amount, and had real adverse

affects. Like burning, extreme tiredness, and moodiness. I have to " sleep

them off. "

I didn't know that about the gelatin. Ugh....Well, yes. I could certainly

ditch the gelatin and just drink the juice. I've tried the bone broths, and

I don't do very well with them, although I'm not sure I'm doing it right. If

I put a chicken in the crock pot overnight, and drink the broth from that, I

definitely cannot tolerate it. I think it's the fat. So....I grilled some

chicken legs, and peeled off all the chicken and fat, and just boiled the

bones. I also did this with a beef bone from a roast. Is that considered a

bone broth? I will check out the link you sent.

Again, don't feel rotten. You've been a huge help already. :-) Maybe it is

time for me to consider non traditional ways to get food (feeding tube or IV

nutrition). I just don't have a clue how I'll afford it. If I could have a

tube going to my intestines that just bypassed my stomach, I could feed

myself SCD foods through it. However, I heard that the only way to do SCD

through a tube is to have a stomach feeding tube...which sort of defeats the

purpose. But yeah, I think four years of this is way too long. I need

nutrients.

Thanks, Patti. You've been very helpful, as have the other moderators. I

truly am grateful. (That does not mean that I've decided to stop the diet).

:-)

~,

Celiac, 34, day 7 on SCD

>

>Reply-To: pecanbread

>To: <pecanbread >

>Subject: Re: Need some advice

>Date: Fri, 25 Aug 2006 20:12:29 -0700

>

>,

>

>I think the premise of SCD to treat your celiac is certainly sound, but

>it's just not advisable to have zero carbs, aside from grape jello. That is

>absolutely not healthy. Of course, I can't imagine that going back to

>eating pure sugar is a way of staying healthy either.

>

>Have you tried digestive enzymes? I honestly have no clue whether they are

>advisable with your condition.

>

>What about bone marrow broths? That doesn't solve your carb crisis, but you

>would be getting some very healing nutrients and minerals... and your

>stomach *might* accept it. I have some concerns about the gelatin itself...

>as regular gelatin contains MSG. I personally don't ever use it for that

>reason. The marrow broths contain natural gelatin... and sooo much more.

>You could just drink the grape juice, if you're tolerating it, and try the

>broth?? Here's a link:

>http://www.westonprice.org/foodfeatures/broth.html

>

>We just have no information or experience about your stomach disorder. It

>could be that there has been so much damage, you simply will never

>completely recover. No one here has any idea if SCD would eventually help

>or not, and I don't think any of us has any idea whether your vagus nerve

>could have been damaged or not. That would take a medical professional's

>assessment.

>

>I feel rotten about having no real answers for you.

>

>

>Patti

>

>

> Need some advice

>

>

> Ok. I've been on the diet for seven days now. All I've been able to eat

>are

> meat, eggs, cheese, and grape jello. I'm not really tolerating the grape

> jello, but I don't know what else to do for carbs. I have tried the more

> so-called tolerable foods, such as, applesauce, green beans, and

>zucchini

> (sp?). All were cooked very well and pureed. My stomach is absolutely

>not

> accepting these foods (gastroparesis), but my intestines (and my

>mood!!!)

> really really like them. In other words, once the food is out of my

>stomach,

> I'm fine. It just takes forever for it to leave! So....I think I've come

>to

> the conclusion that the gp and the celiac are two entirely different

> diseases. I've known for a long time that what my intestines are crying

>out

> for, my stomach is totally rejecting. They want entirely two different

> things. I can either be sick because I'm eating sugar, or I can be sick

>in a

> different way because I'm eating things my stomach cannot tolerate. You

>get

> the point.

>

> I'm doing sort of a last ditch cry for help here. Does anyone have ANY

>idea

> what could be the problem? The area of my stomach that is so picky is

>just

> at the top of the stomach, where the esophagus meets the stomach. I

> literally feel like someone punched me there when I eat the above

>mentioned

> foods. And my back muscles compensate, and therefore I feel like I " m

> carrying 200 pounds, and my whole body is sore from doing it. I will

>tell

> you that I had a huge ulcer in that area before they discovered I had

> celiac. I don't know if the two are related, but I am thinking not. ??

>

> I know the vagus nerve is there. Could the ulcer have damaged that, and

> caused the gp?

>

> Any thoughts? I'm about ready to need to stop the diet. I can't survive

>on

> meat and jello....and this stomach ache. I love the foods and want to do

> this so badly, but maybe now is just not the time.....

>

> ~

> Celiac, 34, day seven on SCD, started Diflucan and Olive leaf extract,

>none

> of which has made any difference...

>

>

> Recent Activity

> a.. 20New Members

> Visit Your Group

>

[Guest guest]

That link was incorrect, but I found the page. Here is the address:

http://www.westonaprice.org/foodfeatures/broth.html

Hope this one goes through correctly.

Sheril

[Guest guest]

Thanks, Sheril.... Looks like I left out the " a " after Weston. I am guilty of

TWTT.....(typing while too tired).

Patti

Re: Need some advice

That link was incorrect, but I found the page. Here is the address:

http://www.westonaprice.org/foodfeatures/broth.html

Hope this one goes through correctly.

Sheril

[Guest guest]

Hital hernia?

-christine

[Guest guest]

I think you mean " hiatal hernia " ? It's not something that SCD specifically

addresses... except maybe indirectly, by making digestion more efficient, less

gas in the stomach, rebalancing the intestinal flora.

I know some people experience a reduction in acid reflux symptoms on SCD, so

maybe that would decrease the hiatal hernia symptoms?

Patti

Re: Need some advice

Hital hernia?

-christine

[Guest guest]

I'm confused. Is this in response to my original post?

~

>

>Reply-To: pecanbread

>To: <pecanbread >

>Subject: Re: Re: Need some advice

>Date: Sat, 26 Aug 2006 12:56:54 -0700

>

>I think you mean " hiatal hernia " ? It's not something that SCD specifically

>addresses... except maybe indirectly, by making digestion more efficient,

>less gas in the stomach, rebalancing the intestinal flora.

>

>I know some people experience a reduction in acid reflux symptoms on SCD,

>so maybe that would decrease the hiatal hernia symptoms?

>

>Patti

> Re: Need some advice

>

>

>

> Hital hernia?

> -christine

>

>

>

>

>

>

[Guest guest]

>

> I'm confused. Is this in response to my original post?

>

> ~

>

>

Yeah, sorta, lol.

Because of your med hx I asked if you had a hiatal hernia, but

somtimz wen i typ fast i dont spel rite, and Patti was trying to

clarify the hernia bit.

To life even more clear, this thread has the same name as another

started in 2004 - and that poster was also named . (I am so

not a fan of the new yahoo thread listings).

Not everyone is able to tolerate enzymes right off. At least not in

full amount (you do not say how much or what you took, only that you

reacted negatively). Some people don't use them at all. For my son -

absolutely vital.

However, because you describe lessesing of symptoms when you eat

sugar, etc, and worse otherwise - it makes me think yeast.

Have you ever had a stool culture done for bacterial and yeast

metabolites? Might be helpful.

Sorry for confusion ;-)

-christine