Re: stubborness

[Guest guest]

Hi e,

I also have an almost ten year old with CF. I do get his stuff ready for him,

I just feel that since he has to do the therapy I should help out in that

small way. I guess I just think that he is straddled with this extra burden

that

my helping him is not such a big deal.

I understand what you mean about being independent, but I think as long as he

knows what to do and is able to do it if I can't, why not ease his load some.

You are lucky that she doesn't fight you, on occasion I get resistance.

Again, I don't fight with him or get angry I just say this is not negotiable.

You may hate it, despise it, loath it and I can't blame you but it is not an

option not to do it. I would hate having the responsibility too. Just think

how

many of us exercise for 1/2 to 1 hour per day everyday, like we should.

I promote that this family is a team in dealing with his CF and that he is

not alone and that it is not his fight only. We all work at keeping him

healthy. My four year old even brings him pills and a drink when he has a snack

sometimes.

Not trying to be righteous or anything, just maybe if you look at it from a

different perspective, the fact that she doesn't want to do this all by herself

won't seem so bad.

Good Luck

Mom to Josh 9 wcf & Crohn's and 4 nocf but wants to do

therapy for

his brother.

[Guest guest]

In a message dated 10/6/2003 2:46:01 PM Central Daylight Time,

kristine.patrick@... writes:

e

Self-sufficient WHAT IS THAT!!! I have a 11 year old and I have to tell her

and tell her to do her vest and her treatments. I really don't think any

teenager is going to listen to anyone the first time but if you do find a better

way

please let me know!! Deb A

[Guest guest]

I have to agree with , at one point I was just about ready to give up

and let his father be the heavy in the family. I found that even when Chris

took over I still couldn't let go. Why? Guess I " need " to be in charge so that

I can make sure things are done right and I don't have to wonder. We keep

Christian's medicines in a basket and every morning while he is doing his vest

and

pulmozyme I just place the basket on the table in front of him. He takes them

himself; I know because I watch without him " thinking " I'm watching. I am

sure that if I didn't put the basket in front of him he wouldn't do them on his

own. We DO NOT negotiate on treatments. Since his diagnoses almost three years

ago he has been fairly well and hasn't been in the hospital for his CF since

12/01. I do feel that if I was to die today Christian would know what to take

and how often ... I think we have an agreement within the family which helps.

Sorry to be so long winded.

Tina Mom to Christian 11 yowcf (soon to be 12 on the 29th)

[Guest guest]

Dear Tina,

I think the way your handling that is super. Just the little reminder

nudge that most teens need for many things. They need that for homework,

clothes pick up, teeth . & scads of other wee things. Meds just stay out

to us for their importance BUT.teens think they are indestructible, so

meds are in same class as homework :)hehe. Bless you Good Mommy.

I hope your coming down to Orlando Nov. 1st for the ED day. It is over

by 3:30 . Nice day too. Get a bunch of your clinic to all come too. It

is lining up really well for the program .

LOVE & HUGS, grandmoMBEv

Re: stubborness

I have to agree with , at one point I was just about ready to

give up

and let his father be the heavy in the family. I found that even when

Chris

took over I still couldn't let go. Why? Guess I " need " to be in charge

so that

I can make sure things are done right and I don't have to wonder. We

keep

Christian's medicines in a basket and every morning while he is doing

his vest and

pulmozyme I just place the basket on the table in front of him. He takes

them

himself; I know because I watch without him " thinking " I'm watching. I

am

sure that if I didn't put the basket in front of him he wouldn't do them

on his

own. We DO NOT negotiate on treatments. Since his diagnoses almost three

years

ago he has been fairly well and hasn't been in the hospital for his CF

since

12/01. I do feel that if I was to die today Christian would know what to

take

and how often ... I think we have an agreement within the family which

helps.

Sorry to be so long winded.

Tina Mom to Christian 11 yowcf (soon to be 12 on the 29th)

[Guest guest]

Dear Grandma Bev:

I wish so much that I could come but I work for the Post Office and since I

have no leave left I can't even dream. I will be there with you in prayers

though.

Tina Mom to Christian 11 yowcf (soon to be 12 on the 29th)

[Guest guest]

e - she is 10! Does she clean her room? My 13 yr. fights me. I will

shut off the computer - you need to take control. She starts the vest or

NO............ she starts breathing.

For independance - have a chart..........she can check off her pills, etc. -

but watch kids cheap on pills, vest time, etc.

Kids are kids. They HATE this stuff...........its our job to enforce

it...hence we become the MEDICINE NAGS...................

My fear is always that they will die before realizing that I did all this for

them...making them do meds, vest, dr., blood work, etc.

Rosemary in NY with 3 children (13, 10.6 and 6.6)

with CF. I have a dog named TOBI and have

coined the phrase " BREATHE DAMMIT "

[Guest guest]

> Ok everyone, I need some help with a stubborn ten year old who

likes

> to take mer meds at her leisure. She is suppossed to do her vest

2x

> a day, but we have yet to work that into our schedule. Asking us to

> get up earlier than necessary, what is our Dr. thinking? So he

said

> that afternoon and then after dinner is sufficient. Well ,after

> school is second lunch time. She comes home and eats, and eats, and

I

> say " , lets do your vest " and she puts no effort into getting

> ready.I have found that I can get her to do it while she is playing

> on the computer.However I am the one that has to put the inhalers

in

> front of her.. " do this please... " then I have to put her vest on,

> turn on the machine etc. If we don't do it at the computer, then I

> have to sit right beside her, not that I mind this, but I thought

the

> vest was suppossed to create a sense of independence for both

parent

> and child! Then we have to find time to do the nebulizer. Again, I

> stealthly approach her while she is at the computer, set everything

> up and ask her to do it. She never fights or argues with me, which

is

> good. I would just like it if I could say " , do your

treatments "

> and its done. Ok, one more thing (as if there is ever just one), I

> will catch her " forgetting " to take her enzymes, or finding a pill

> conveniently placed under her plate. I have threatened, " you could

> end up in the hospital if you don't take your meds " or " the Dr. is

> going to be very angry with you " and I have done the reward

> challenge.. " do your treatments for ten days in a row and get a

> treat " .

> So I am looking for some suggestions on how you handle these

> situations. What about you parents of older kids. How do they do

> with their meds? Are they self-sufficient? Did they ever struggle

> with this?

>

> Looking forward to your responses,

> e

[Guest guest]

> So I am looking for some suggestions on how you handle these

> situations. What about you parents of older kids. How do they do

> with their meds? Are they self-sufficient? Did they ever struggle

> with this?

Oops sorry for the prior response I clicked too fast;-). Nope I have

to remind my son everytime - he is eight. Drives me crazy. We don't

have to do the vest we have to do nasal lavage every evening. If I

didn't remind him to take his meds he would " forget " every time.

jan