Re: Re: ASD Setback, Continued

[Guest guest]

Hi and Carol!

My twin boys also eat tons of eggs every day. (Well about four eggs or so)

and a lot of carrots, butternut squash, acorn squash, and goat yogurt. How can

you tell if eggs are an issue? Can they cause behavioral problems if eaten in

too high of quantity?

Dana

Mom to and Garrett SCD 3 months, Celiac Disease

jennifernormanly wrote:

Oooo, Carol, I hope you are wrong about the eggs. I'd say he eats a

total of 4 eggs per day, including those found in foods like the

pumpkin pie filling (known as squash pudding in my house - he's got

a puddin' thing).

> >

> > Wow Patti, thank you for taking the time to respond so

thoroughly.

> > I'll respond to each of your thoughts:

> >

> jennifer,

> I am far from being as expert as patti but what I am seeing are

two things:

>

> a ton of supplements

> a lot of eggs.

>

> Carol F.

> SCD 6 years

>

---------------------------------

All-new Yahoo! Mail - Fire up a more powerful email and get things done faster.

[Guest guest]

I have to stress again.... that I would pull the mag sulfate immediately. Yes,

magnesium is calming to the central nervous system... but I just don't

understand the use of this particular form, when you have a kid with loose BMs.

Maybe they know something I don't... but I would only use this form topically.

Now, I know many parents here are trying to do many things at once... following

their DAN doctor's advice, taking all the supplements and remedies. But, I

personally (this is just my opinion) feel that this can OFTEN get in the way of

working out the bumps in the diet at the beginning. I have recommended many,

many times to consider pulling ALL the supps until you get the diet well under

way and things settle down. Then, add them back one at a time.... slowly. (Your

Spectrum-Complete is the hypo-allergenic one....right? Without the xylitol,

etc.?...just checking.)

I feel the same way about homeopathics or anything else you're using. The kids

will have a better chance of settling into the diet .... and YOU will be able to

see what is causing what. In Jack's case, I think I would even stop the

acidophilus for a bit.... just so you can see if he improves behaviorally when

you take it back out.

I KNOW the DAN docs think the kids need ALL of this stuff dumped down their

throats all at the same time.... like a full-tilt assault on everything, with

all the guns in the arsenal firing away. I just ask you to use your common sense

and look at this diet as a critical FOUNDATION for everything else... and that

you REALLY want to get this right before adding the other good stuff in. That's

just me, maybe.... but I think there is potential danger in overkill. I don't

want to see you give up on SCD, thinking you just couldn't get past this

beginning part.

So..... now, a couple more things....

You gave him cow cheese and yogurt... and poops were better. More well-formed.

What about behavior? Did you see anything negative that you can attribute to the

cow dairy? Or did you just get scared and thought you *shouldn't* be giving it

to him? I can understand wanting to go with the safety of goat first... but was

just curious if you actually saw anything bad from the cow.

One way to test whether the goat DAIRY causes him any trouble would be to make a

batch of goat yogurt.... that you KNOW fermented properly, for the full 24

hrs.... and then use it in something that you cook. That way, you know that any

reaction you see will not be from the live culture (b/c it will all be killed by

cooking), but from the SCD goat dairy (with it's denatured casein) itself. If no

obvious bad reaction, then I would go ahead and start giving the live yogurt...

in small quantities, working up gradually. Then try goat cheeses.

One thing that jumps out at me from the list of foods... you wrote that you use:

<<crushed red pepper, crushed fennel seed, thyme, gound bay leaves, >>

in the Italian sausage that you make. I personally think it is TOO SOON to be

using these... this early in the diet, and with a kid who is having diarrhea or

loose BMs. You're going to need to scale back (I believe) to simpler

spices/flavorings.

Honestly, if my daughter has a " bad patch " and we see BMs going looser again, I

pull out even things like cinnamon and cloves.... even ground pepper. Go with

SIMPLE and BLAND at this point, to the extent you can get away with it and still

get him to eat. You can bundle those herbs up (in a cheesecloth... whole bay

leaves, garlic cloves, sprigs of fresh thyme, peppercorns, etc.) and cook the

meat WITH these things and still get the flavors... then pull them out and toss

them. I think you have to picture the possibly new, tender, raw tissue in the

lining of his gut.... and that you don't want to assault and irritate it!

Especially the crushed fennel seed.... it's just too soon!

One of our old moderators has read your posts, ... and responded to me

privately, and I'm waiting for some information from her.... which I'll then

post or send to you. Some new ideas for you that possibly relate to why the

acidophilus *may* be triggering some of the stuff you're seeing. Let me get back

to you with that.

Oh.... and I don't see a problem with the amount of eggs, if you're not going

over 3-4 a day.

Patti

ASD Setback, Continued

>

>

> My son began the SCD in late July, and we saw great results for

the

> first 5-6 weeks. His eye contact improved, he seemed happier,

and

> he was much more engaged. His poops were also more solid, and

less

> in terms of size and frequency. Now, we are settling back to pre-

> SCD patterns. He has had D for a while now (three weeks), and

the

> stimming is through the roof. We visited his DAN doctor and she

> felt like he has yeast issues as he was very laughy and SILLY

during

> our appointment. However, we haven't found yeast in OAT tests or

> comprehensive stool analyses. To be on the safe side, she

> prescribed 100mg Nizerol, which is supposed to be much like

> Dyflucan, two weeks ago. He is also taking 2 lactobacillus

> acidophillus capsules (Kirkman lab) per day. I was thinking that

> this behavior problem may be due to die off, but I'm beginning

to

> wonder. It seems that the SCD coupled with Nizerol and

probiotics

> would clear things up fast. Am I expecting too much too soon?

>

> To mix things up, my son's regular pediatrican advised that the

> magnesium sulfate he is taking could be causing the D as the

amount

> he takes (1/2 tsp/day) can have a laxative effect. UGH... I

called

> my DAN doctor and she recommended we try magnesium sulfate in a

> cream form, also by Kirkman. Anyone had experience with this?

>

> And, I decided to experiment with goat milk yogurt. We've been

> doing the dairy free form of the diet (with the exception of

ghee)

> until now, and in fact he as been GFCF since January 05.

> Unfortunately, I bought a Salton yogurt maker. I didn't bother

to

> check the temp as I assumed it would be fine, but recent posts

tell

> me otherwise. Do I need to throw that batch out? And,

considering

> all the D, was it unwise for me to introduce that in the first

place?

>

> Also, I gave him baked (30 minutes) pineapple yesterday for the

> first time and we saw it again in the potty. Does that mean we

need

> to hold off of that fruit?

>

> I want to pull my hair out. Thanks for reading this long post,

and

> for any replys.

>

> , Mom to Jack, 5 years, ASD, SCD 9 weeks

>

>

>

>

>

>

[Guest guest]

,

You wrote:

<<Also, I meant to say magnesium citrate, not sulfate. I apologize

for the confusion.>>

Oh, good! WHEW! I was kind of concerned there! Magnesium citrate *can* cause

loose poops, though (and I believe says it can feed yeast?) .... so

switching to another form... maybe the glycinate or aspartate... will help

there.

<<Your advise about too many supplements is well received. I'm going

to give this much thought.>>

Yeah... you know, just for a few weeks. It would remove some variables. Adding

them slowly back, one at a time.

<<And, yes, the Spectrum Complete is hypo-allergenic.>>

Good.

<<Also, I'm going to read the article you sent, and pass it along to

Jack's nutritionist ( Dorfman - just awesome) and doctor.>>

There will be more information about that posted on the list very soon. Keep

watching!

I know of ... I've heard so many good things about her from other parents.

Patti