Re: MIA

[Guest guest]

,

So sorry to hear about your hubby and how frustrating

insurance companies can be. They will spend 50,000 to

save 10,000. They are crazy! Tell hubby we will say

a special prayer for him.

Take care,

=====

Kristi in AL

BMI49

current 288

surgery date 9/21

__________________________________________________

[Guest guest]

Hi lisa,

I hope your husband is up and around soon. It is funny these insurance

companies arent thinking real clear cause like u said if u have a heart

attack from all the weight it is gonna cost them way more. the should spend

lots more money on preventative medicine. Anyhow good luck and I hope u have

surgery soon. I am also fighting cigna and am in appeals process. so I will

keep my fingers and toes crossed for you. hugs marg

[Guest guest]

, I am sorry to hear about your husband but glad to hear he is on the

mend....both of you will be in my thoughts and prayers Kendra in Wv pre-op

9-21-00

[Guest guest]

,

So glad to hear your hubby is on the mend. I guess if push comes to shove

you could tell them you are going to have a heart attack if they approve

your surgery and offer to save them $38,000. You'll be in our prayers.

Tarri in Missouri

Dancing in Ten Days !

MIA

> Hi all, I don't post often, and am still in the process of insurance with

CIGNA. I just wanted to let you know I have been offline since Tuesday and

just deleted all my messages as there were too many to go thru being so far

behind. My husband Ray had a heart attack and we have been at WakeMed since

then, all is well and he is on the mend. Believe it or not he only weighs

about 185 and CIGNA is going to probably spend in the neighborhood of 50,000

for his care from the heart attack and all I want is for them to pay about

12,000 for my surgery. I will take his health over the surgery anyday, but

it would be nice if I could get it just to avoid what has happened to him.

If I have missed anything major, would someone please fill me in? Thanks,

>

>

>

[Guest guest]

I hope your feeling better soon Marla, you are such a kind, sweet and caring person. You deserve the best. I'm very glad you got your heated-seat van, you go girl. I'll be praying the med works well and you feel like yourself again soon.

To: NS <neurosarcoidosis >Sent: Fri, April 8, 2011 2:41:48 PMSubject: MIA

Sorry I've been MIA lately, it's been a rough period for me, as you've heard before, I kept thinking I can get through it. But found myself crying at the drop of a pin, and had a major melt down, a couple weeks ago. I've been asking my husband if we could trade my van in for a newer one, not brand new, just one with heated seats. Money is tight, as he just started his own business, but after my melt down, he took me for a drive and we did get a newer Honda Van, this one is really nice, and was kept up by the previous owners, it has all the bells and whistles, hey when you are excited about getting in your vehicle and driving, it gets a person out of the house (sad but true). So it has the heated seats, yah, side opening doors and open tail gait with the push of a button, which is really nice when your trying to get your trunk open while balancing your wheelchair on your thigh, and hope you don't fall over

while doing it:) So I felt better for about a week, and I still love the Van more then ever, but the sadness/depression went deeper then that, I find myself crying still. I saw my Doc yesterday and he asked how I was doing, and I just started crying on him, cried off and on the whole appt. even while telling him how wonderful my husband is for buying the van, etc.... so we are trying something different, stop the Lyercia and started Cymbalta, as Cymbalta is suppose to work on neuropathy pain, muscle pain, and it's an antidepressant, so will see, I'm only on day two, and only cried once yesterday, and well it's still too early to say for today. I was doing really good on the pain side, until last night, then just standing shot pain up and down my legs, it hurt to walk, so I parked it in a chair with a heating pad, after Advil and my daughter and I watched Salt the movie, entertaining, but so unlikely. haven't slept well all week,

but my husband has been out of town too, and so I have to get up at "0darkthirty" and take my daughter to school, come home go back to bed, but still difficult week. so will see how the Cymbalta works, I hope it does, because I don't want to be on more meds, so replacing is better then adding. However, have any of you ever tried or heard of minocyline/tetracycline for face Sarc. I've been on my doc for years to put up literature on Sarc in his office, and he finally did, said he is seeing a lot more of it these days, when we started down this road some almost 17 years ago, I was his one and only, but he sees more lung, I guess that's why he's a lung doctor, but no one else around knew about Sarc and he knew a little, we learned a lot together over the years. anyhow, on the handout, it mentioned minocyline for face Sarc, I think we were going to try it, but got off track, need to call them today and see??

I have tried to answer some emails, but I see that Rose, even though you don't think you are, keeping up with things you are doing a great job. And so great to have Darlene back, will try to join in tonight, my husband is coming home, not sure when, so I might get distracted. keep your chins up Spring is just around the corner, and even though I can't be out in the direct sunlight anymore, I love the warmth. Marla "Fear less, hope more; Eat less, chew more; Whine less, breathe more; Talk less, say more; Love more, and all good things will be yours." - Irish Proverb

[Guest guest]

Thanks Connie, I get my Remicade tomorrow and been on the Cymbalta a few days, right now I'm just really tired, but I'll get through it.  Your in my prayers too. Marla

" Fear less, hope more; Eat less, chew more; Whine less, breathe more; Talk less, say more; Love more, and all good things will be yours. " - Irish Proverb  

 

I hope your feeling better soon Marla, you are such a kind, sweet and caring person.  You deserve the best.  I'm very glad you got your heated-seat van, you go girl.  I'll be praying the med works well and you feel like yourself again soon.

To: NS <neurosarcoidosis >

Sent: Fri, April 8, 2011 2:41:48 PMSubject: MIA 

Sorry I've been MIA lately, it's been a rough period for me, as you've heard before, I kept thinking I can get through it.  But found myself crying at the drop of a pin, and had a major melt down, a couple weeks ago.  I've been asking my husband if we could trade my van in for a newer one, not brand new, just one with heated seats.  Money is tight, as he just started his own business, but after my melt down, he took me for a drive and we did get a newer Honda Van,  this one is really nice, and was kept up by the previous owners, it has all the bells and whistles, hey when you are excited about getting in your vehicle and driving, it gets a person out of the house (sad but true).  So it has the heated seats, yah, side opening doors and open tail gait with the push of a button, which is really nice when your trying to get your trunk open while balancing your wheelchair on your thigh, and hope you don't fall over

while doing it:) So I felt better for about a week, and I still love the Van more then ever, but the sadness/depression went deeper then that, I find myself crying still.  I saw my Doc yesterday and he asked how I was doing, and I just started crying on him, cried off and on the whole appt.

even while telling him how wonderful my husband is for buying the van, etc.... so we are trying something different, stop the Lyercia and started Cymbalta, as Cymbalta is suppose to work on neuropathy pain, muscle pain, and it's an antidepressant, so will see, I'm only on day two, and only cried once yesterday, and well it's still too early to say for today. I was doing really good on the pain side, until last night, then just standing shot pain up and down my legs, it hurt to walk, so I parked it in a chair with a heating pad, after Advil and my daughter and I watched Salt the movie, entertaining, but so unlikely.  haven't slept well all week,

but my husband has been out of town too, and so I have to get up at " 0darkthirty "   and take my daughter to school, come home go back to bed, but still difficult week.  so will see how the Cymbalta works, I hope it does, because I don't want to be on more meds, so replacing is better then adding.  

However, have any of you ever tried or heard of minocyline/tetracycline for face Sarc.  I've been on my doc for years to put up literature on Sarc in his office, and he finally did, said he is seeing a lot more of it these days, when we started down this road some almost 17 years ago, I was his one and only, but he sees more lung, I guess that's why he's a lung doctor, but no one else around knew about Sarc and he knew a little, we learned a lot together over the years. 

anyhow, on the handout, it mentioned minocyline for face Sarc, I think we were going to try it, but got off track, need to call them today and see??

  I have tried to answer some emails, but I see that Rose, even though you don't think you are, keeping up with things you are doing a great job. And so great to have Darlene back, will try to join in tonight, my husband is coming home, not sure when, so I might get distracted.

keep your chins up Spring is just around the corner, and even though I can't be out in the direct sunlight anymore, I love the warmth.  Marla

" Fear less, hope more; Eat less, chew more; Whine less, breathe more; Talk less, say more; Love more, and all good things will be yours. " - Irish Proverb