Guest guest Posted April 28, 2002 Report Share Posted April 28, 2002 Patty, It is always so good to hear from you. Gosh you sound soooo busy. LOL I remember those days. LOL YOu must be so proud of all your children. I have 3 girls but my sister had 2 boys and STILL complains about their showers. LOL Can't get them out. You take care and rest every once in a while when you can. hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2004 Report Share Posted April 23, 2004 My pain is getting worse. I am so sick with the nausea. The doctor gave me Zofran because the Phenergan was not working. I don't feel that my pain is controlled adequately enough but the doctor has decreased my pain med so I am taking the oxycodone more and taking the OxyContin only 2 times a day. I can't eat with out getting sick. So here I am craving big time for my English Toffee Cappachino. I am going to try and put of the ERCP until June. My boss will be on vacation and so it would be better for me to take off then instead of now. He told me that I shouldn't put it off just because of work that my Health comes first. My boss is a Gyn Oncologist. He is very nice and understanding. You know it is so sad that money rules this world of ours that that is the only thing people look at. The patient I am talking about is terminal. She is so sweet and I do everything I can to help the patients get their disability. Thanks for Listening Patty Jensen Corydon, IN > Patty > > Have you been having an increase in pain lately? If you feel that > you are not in any distress why go through another ercp. You could > have a mrcp and its non-invasive. I dont see any reason to rock > the boat if your pain is the same and controlled. The panc is a > very sensative organ and doesn't like being tinkered with. That is > just my personal opinion is all. > > I cant beleive an insurance company will jjust drop someone because > they have capped. I wonder if i have a cap, do you have a cap, does > anybody need a cap; sounds like I am going to break into > song...lalala. I wonder if the head guyof those co.s, the ceo, mr > prez, ever even thinks aabout the poor people behind those numbers. > But the retireing CEO of SC Blue Cross bblabla bought a lot on > Sullivan's Island for well over 3.5 million. Wonder what is his > freaking cap. > > Guess that got me ranting and raving too. I hope your feeling well > and dont rush into another ercp unless your sure you need it. > Chrissy > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2004 Report Share Posted April 23, 2004 Chrissy wrote: > Have you been having an increase in pain lately? If you feel that you are not in any distress why go through another ercp. You could have a mrcp and its non-invasive. Great idea, Chrissy! The MRCP is just so much easier on the patient, and apparently very definitive. You get a " thumbs up " for that one!! With love, hope and prayers, Heidi Heidi H. Griffeth South Carolina SC & SE Regional Rep. PAI Note: All comments or advice are personal opinion only, and should not be substituted for professional medical consultation. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2004 Report Share Posted April 23, 2004 I know I have had an MRCP before but I can't remember how exactly it is done. Is it like a MRI? I know my doctor mentioned that the the pancreatic ducts are becoming occluded so I think she's going to plan on having stents put back in. I will know for sure after my labs. I'm with you as far as having an ERCP. I always get so sick afterwards and if I could avoid it believe me I will. Thanks Patty Jensen Corydon, IN > Re: Patty > > Chrissy wrote: > > Have you been having an increase in pain lately? If you feel that you are > not in any distress why go through another ercp. You could have a mrcp and > its non-invasive. > > > Great idea, Chrissy! The MRCP is just so much easier on the patient, and > apparently very definitive. You get a " thumbs up " for that one!! > > With love, hope and prayers, > Heidi > > Heidi H. Griffeth > South Carolina > SC & SE Regional Rep. > PAI > > Note: All comments or advice are personal opinion only, and should not be > substituted for professional medical consultation. > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2004 Report Share Posted April 23, 2004 Patty, The MRCP is just like an MRI, the only difference is is that you have to drink a contrast beforehand. The procedure is excellent for looking at the duct work....haha, a construction joke! You can tell that I've been hard at work on the drawing board the last few days! I should have said, that the MRCP's excellent at looking at the ducts and it will show if there are any obstuctions or occlusion. I remember my doc was so thrilled with seeing what the status of mine was after my MRCP. I've had all those CT-scans, but it was the first time they'd had a clear picture of the bilary system and pancreatic ducts...fortunately mine were clear. So the MRCP would be non-invasive, but if she's planning on putting in stents, she would need to do an ERCP anyhow. Is this just to see what's going on, or does she plan on doing the stenting at the same time? With love, hope and prayers, Heidi Heidi H. Griffeth South Carolina SC & SE Regional Rep. PAI Note: All comments or advice are personal opinion only, and should not be substituted for professional medical consultation. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2004 Report Share Posted April 23, 2004 She is planning on doing the stenting no ifs ands or butts about it. She told me that I HAVE TO HAVE THIS DONE!!! Since my pain is getting worse and severe nausea. She prescribed Zofran for the nausea and I was shocked at how much it cost. I only had to pay $25.00 copay but the insurance portion was $1665.00. This is for 60 pills. If I didn't have insurance I don't know what I would do. By the was I didn't catch the Construction joke until you mentioned it. Patty > Re: Patty > > Patty, > > The MRCP is just like an MRI, the only difference is is that you have to drink a > contrast beforehand. The procedure is excellent for looking at the duct > work....haha, a construction joke! You can tell that I've been hard at work on > the drawing board the last few days! I should have said, that the MRCP's > excellent at looking at the ducts and it will show if there are any obstuctions or > occlusion. I remember my doc was so thrilled with seeing what the status of > mine was after my MRCP. I've had all those CT-scans, but it was the first > time they'd had a clear picture of the bilary system and pancreatic > ducts...fortunately mine were clear. > > So the MRCP would be non-invasive, but if she's planning on putting in > stents, she would need to do an ERCP anyhow. Is this just to see what's > going on, or does she plan on doing the stenting at the same time? > > With love, hope and prayers, > Heidi > > Heidi H. Griffeth > South Carolina > SC & SE Regional Rep. > PAI > > Note: All comments or advice are personal opinion only, and should not be > substituted for professional medical consultation. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2004 Report Share Posted August 11, 2004 Thanks so much for replying. I know that I should be asking my doc for a stronger pain med. I just feel so bad about it. Since they are not even sure why i'm in pain, i feel wrong for taking narcotics. Which is ironic, cause i'm a nurse and i've never judged anyone for having to take drugs. The problem is as well, is that i'm trying to go back to work. I lost my job in Nov of last year due to being ill and i'm trying to go back now. Legally, as a nurse, I can't work and take narcotics. So i'm not sure of the right path to take. My husband doesn't even want me to think about returning to work, but i'm getting really bored and money is getting quite tight. My husband is still in Law school, so it's supposed to be my income supporting us. We never imagined I would be this ill for so long. That is a very interesting point about the caffeine. I must admit I am a diet coke adict. I drink about 2 Litres a day of the stuff and have since I was 18. I've been meaning to cut down, so maybe this will be my insentive. As for low fat, I am trying. But it's so hard to keep it that low. Some days I can't eat any food at all, cause it hurts so much and other days I can have a hamburger and feel fine. I just wish they could diagnose what is wrong, but I know this could take years and lots of different doctors. I'm trying to be patient. Take care, Jen. Quote Link to comment Share on other sites More sharing options...
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