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Re: CF mommy 21

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Candace,

TELL them that it upsets you when they make a big deal of the odors! Remind

them that the kids can't help it. They may just be kidding (we always call

stinky-even when she is not, I also used to call my niece without CF

stinky when she was little) but let them know that it bothers you.

TELL the church nursery that what she has is not communicable and that if they

tell you to take her away that they are discriminating against a small child

with a disability not a kid with a cold. and that You could always take the

complaint to the pastor but that you would prefer not to make a big deal of

their insensitivity and unchristian behavior. Tell people who make comments

about going to the doctor that your child is being taken care of by a specialist

and to mind their own business! Sometimes people make these comments with the

best of intentions, but they have no idea of what you are going through every

day of your children's lives.

About Madison's cough, is it worse than the last time you spoke to CF clinic or

is it not getting any better with medication? If it is worse or if she has been

on meds for a few days and you are not seeing any results, you might want to

call into the clinic and ask for something else.

We tried the scandishakes and HATES them. She won't touch them. I know

a lot of people live on them so I suppose that it is a personal taste thing.

I hope this helps some.

Re: CF and Bits of Akward humor

I am having a very bad day yall Madison is coughing so much I think she is

going to hurt herself, she wont eat I mean not even her fav-Pizza and I am

having a hard time even getting her to drink her pediasure and boy does she

throw a

fit about enzymes..Ive managed to cram it down het throat she keeps yelling

at me Mommys mean I not love her!!! that is the worst thing i have ever heard

and I just read your funny jokes and for some reason it made me really sad for

you and for my daughter. I hope that doesnt upset you but I know I could not

handle having CF yall are drfiniely fighters and I hope my girl has your

outlook and strength...I find myself getting really hurt when the church

nursery

tells me i have to take he away from the other children or when people ask me

god

why dont you take the child to the doctor....people can be so mean and I even

get upset when family members call her stinky when she comes out of the

restroom or when they changed her diaper...I guess its just one of those

days...does anyone use scandipharm are theyre shakes good?

Candace

3 Kids 2 w/cf, 1, and 3 months without..

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