Deb A-Iowa Pediatric Pulmonary Clinic

[Guest guest]

Deb-

If I remember correctly your daughters are seen at the Pediatric

Specialty Clinic at U of I. Have you ever seen Dr ? Peyton is

usually seen by Dr Starner. We love him, but we really have no point

of reference because he is the only doctor we have ever seen. We have

an appointment for Nov 20, with Dr . Apparently due to

scheduling conflict Dr Starner couldn't see us. I am a little

apprehensive about seeing a different doctor. Peyton is 3 1/2.

I am wanting to talk about getting her started on Pulmozyme. Is

Natalyn on Pulmozyme, if so what age did she start? I am also

wanting to start doing PFT's. I mentioned it to Dr Starner last time

and he thought she was still too young. What age did Natalyn start?

Thanks!

Wendi mom to Peyton 3 w/cf

from the Fairfield/Ottumwa Iowa area

[Guest guest]

In a message dated 11/12/2003 10:32:47 AM Central Standard Time,

wendi_manley@... writes:

Wendi

Yes, we see DR Jeffery and LOVE HIM!!!!!! He will talk to you for hours

and never feel like he is in a hurry he wants until you get done with all of

your questions. Natalynn is 6 years old and No she is not on pulmozyme.

our oldest has but only for a short time. If I remember right I think

that

Dr. just didn't feel there was enough studies out there that proved that

pulmozyme really does much. I really didn't see much different when

was using it. But I am sure every one is different. Natalynn started doing the

vest about 3 months before she turned 2 so she has been doing pft for a long

time. What does Peyton do for PFT? Well, let me know what you think of Dr.

. I don't think we have ever seen Dr. Starner! Has he been there long? I

thought we had seen all of the CF doctors before we decided to stay with Dr.

. The one thing I really like about Dr. was that he was a

Pediatrician

before he got interested in CF so I feel really comfortable about asking him

anything when it comes to the girls health. Well, let me know how it goes. Deb A

[Guest guest]

Deb,

your daughters are beautiful in the tobi calender any idea how to get one or

a couple again this year?

thanks, Amy Finke mom to 2.5 with cf

>

>Reply-To: cfparents

>To: cfparents

>Subject: Re: Deb A-Iowa Pediatric Pulmonary Clinic

>Date: Thu, 13 Nov 2003 19:19:55 -0000

>

>Deb-

>Peyton has had the vest for about 8 months. We love it, it is so

>much easier that trying to hold down and " beat " on a screaming

>squirming toddler. I may have misworded one of my questions to you.

>Dr Starner thought Peyton was too young to start pulmonary function

>tests. When did Natalyn start doing those?

>

>

> > In a message dated 11/12/2003 10:32:47 AM Central Standard Time,

> > wendi_manley@b... writes:

> > Wendi

> > Yes, we see DR Jeffery and LOVE HIM!!!!!! He will talk to you

>for hours

> > and never feel like he is in a hurry he wants until you get done

>with all of

> > your questions. Natalynn is 6 years old and No she is not on

>pulmozyme.

> > our oldest has but only for a short time. If I remember

>right I think that

> > Dr. just didn't feel there was enough studies out there that

>proved that

> > pulmozyme really does much. I really didn't see much different when

>

> > was using it. But I am sure every one is different. Natalynn

>started doing the

> > vest about 3 months before she turned 2 so she has been doing pft

>for a long

> > time. What does Peyton do for PFT? Well, let me know what you think

>of Dr.

> > . I don't think we have ever seen Dr. Starner! Has he been

>there long? I

> > thought we had seen all of the CF doctors before we decided to stay

>with Dr.

> > . The one thing I really like about Dr. was that he was

>a Pediatrician

> > before he got interested in CF so I feel really comfortable about

>asking him

> > anything when it comes to the girls health. Well, let me know how

>it goes. Deb A

> >

> >

> >

[Guest guest]

In a message dated 11/13/2003 1:21:39 PM Central Standard Time,

wendi_manley@... writes:

When did Natalyn start doing those?

They started practicing on her about the time she turned 5 and having a big

sister she couldn't wait to do it. In fact they compete with each other and see

who can get the highest number. Deb A

[Guest guest]

In a message dated 11/13/2003 1:37:38 PM Central Standard Time,

amaroo40@... writes:

Amy

THANK YOU!! Asked Grandma Bev about the calendars she said she was going to

get some. I heard are not as big of a calendar this year. Or you might also go

to www.abouttobi.com And send them an e-mail. Deb A