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Ann has had rp for several years and now has a narrow floppy trachea . She

is going through a bad spell of almost continuous coughing ( much clear

mucous - no infection ). She is on 12.5 of pred ,a steroid inhaler,17.5

Methotrexate and some blood pressure tablets. She is not get major flares

but has hotness and tinnitus most nights. Her doctors tried a spell of more

pred and 6 weeks of antibiotics ; there was some improvement but now back

where she was. We don't think it is environment triggered ( it happens in

all conditions and weathers ). We are a bit stuck ( Ann has tried 5 or 6

immunosuppressants ) and we suspect her doctors are too.Anyone got any

bright ideas ?

My prostate cancer seems to under control and I start a spell of

radiotherapy next week

Chester, England

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, It is always so good to hear from you. Congratulation on your report

on your cancer. I wish I had some input for Ann. I don't have any problems

with coughing. I know you will get some input from those that do.

Just know that I'm thinking of you both. Tell Alice Hi for me. Hope she is

doing well.

Keep us posted as to how you and Ann are both doing.

hugs

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