Re: Update on Inhae-Moonsung

[Guest guest]

Moonsung,

Sorry to hear that Inhae is still having such a time of it. It has to be hard for you as a parent to watch your child suffer with this darn RP!

I am hoping and praying that the Rheumy will have a better idea of what meds to use for Inhae that will work better for her.

I take the azathioprine and am so fortunate that it has and still is working for me.

Please keep us posted on what you find out with the seminars that you are going to. I wouldn't want to drop the meds all together maybe taper off if the natural therapy works. Of course that will be up to you and Inhae!

Please let us know whatever you find out! It will be interesting to hear! Give Inhae a hug for me!

Lots of love

Glenda