Guest guest Posted October 17, 2003 Report Share Posted October 17, 2003 When Abby was diagnosed we signed a form allowing her to be placed on the CF Patient list. They obviously use it to track the disease statistically. I was wondering if anyone knew how to access the list. I would like the chance to look at the information and learn more about how CF affects individuals differently. Specific real- life cases would seem to help gain more insight. I have learned a lot just from reading all your posts about how your children are affected. Abby is still fighting the congestion from her cold. Her cough has improved but is still junky. Tomorrow will be two weeks since the cough started. I haven't noticed any signs of infection. Sleeping resp. rate consistent, no fever, eating and sleeping well etc. Last dose of Augmentin tomorrow. She has been doing great with CPT and rarely fights it now. I've been giving her 3 good ones (25-30 min. - HARD) a day. Anyone with info on the patient list please let me know. Thanks, Joe (Dad to Kelsi, 7; Chloe, 2 1/2; and Abby 1w/cf) Quote Link to comment Share on other sites More sharing options...
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