Jump to content
RemedySpot.com

CF Patient List

Rate this topic


Guest guest

Recommended Posts

When Abby was diagnosed we signed a form allowing her to be placed on

the CF Patient list. They obviously use it to track the disease

statistically. I was wondering if anyone knew how to access the

list. I would like the chance to look at the information and learn

more about how CF affects individuals differently. Specific real-

life cases would seem to help gain more insight. I have learned a

lot just from reading all your posts about how your children are

affected.

Abby is still fighting the congestion from her cold. Her cough has

improved but is still junky. Tomorrow will be two weeks since the

cough started. I haven't noticed any signs of infection. Sleeping

resp. rate consistent, no fever, eating and sleeping well etc. Last

dose of Augmentin tomorrow. She has been doing great with CPT and

rarely fights it now. I've been giving her 3 good ones (25-30 min. -

HARD) a day.

Anyone with info on the patient list please let me know.

Thanks,

Joe (Dad to Kelsi, 7; Chloe, 2 1/2; and Abby 1w/cf)

Link to comment
Share on other sites

Join the conversation

You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

Loading...
×
×
  • Create New...