Re: Just need to get this out

[Guest guest]

Hi, Barbara!I'm sorry to hear that christmas wasn't all it should

be.I feel so bad to hear when kids suffer ESPECIALLY on a holiday

that's perfectly cut out for our children!

I am also sorry to tell you that I won't be of any help regarding

Kristi's nausea,that must be about the ONLY road we haven't had to

cross as off yet.But I did catch your last phrase , " mollycoddling " ,

which sounds strange for me, probably becaause where I am

geographically, but just the same I think i get the jist of what your

saying.I wonder if by friend you mean your partner?My husband is the

step father to my cfer, Tyler,8.I, too, get VERY frustrated

explaining why he's different than our 2 children we have together

meaning he needs to eats at times where I normally tell my 2 'lil

ones wocf its too late at night.Sometimes he just feels under par,

not sick, but yet not himself, and I allow him to slack in some chore

areas(hubbie about dies when i do this!), and well, I could have

examples for you out of my ears,so to speak, but the eating and

babying seems to be the biggest frustration.It has gotten so bad,

that I wonder how to handle it.Do you have any suggestions?I am

headeed for divorcce if it doesnt stop, we fight EVERY singkle day!It

has put tremendous guilt on my son.I just want to find a way to

manage taking care of him, and keeping my hubbie's mouth zipped until

i finally have $ to support the kids on my own.

Now looking for answers from you(lol), sorry I've been no help for

your troubles.We have so many educated, wwonderful people on this

group, with great " life " experience, I'm certain you'll quickly find

the answers you need.I'm thinking about posting my trouble, but it

just dawned on me my vest (ya know, the $15,000 one!!!), died on

me.Guess i need more help than i thought!! :)

Patty, mom to Ty, 8wcf and 2 lil ones wocf in the Sunshine state!!!

> Kristy has had a very blah kind of christmas to date.

>

> The nausea she has suffered for almost 6 months had been attributed

> to post nasal drip from her sinus problems. Since her surgery just

> over 2 weeks ago now, the nausea has become much worse, she never

> actually vomits just feels horribly sick.

>

> She spent a large portion of xmas day asleep and very down. Boxing

> day was a little better, but she still hardly ate anything.

> Yesterday was her best day and we managed to have lunch out and

> catch up with relatives visiting from interstate, but by late

> afternoon she was feeling very sick again. This morning she got up

> at 10 a.m., did her pulmozyme, had a shower and came to me crying

> because she felt so sick again. I rang the hospital and then my

> husband and I took her in (it's 90 minutes from home) after a 2 &

> 1/2 hour wait we saw a doctor who was wonderful. Her blood tests

> show her liver function was good and Kristy has had no GI signs of

> CF since diagnosis last year. The doctor is concerned she may have

> gallstones (she also began to feel discomfort in her tummy today)

so

> now we're off to see a gastro specialist who has visiting rights at

> the hospital. He went to great lengths to re-assure her (and us)

> that there was nothing " drastic " going on and would not give her

> anti nausea meds as she wasn't actually vomiting.

>

> One of my biggest concerns atm is the high level of anxiety she now

> seems to be suffering, most nights she is afraid to go to sleep.

As

> someone who is on medication to manage anxiety/panic disorder it is

> heartbreaking to watch your child show signs of this too at 13.

The

> CF clinic were going to organize a psycologist to visit while she

> was in hospital two weeks ago, but it didn't happen and things were

> so chaotic anyway it slipped my mind too.

>

> My instinct tells me something is definitely not right (similar

> feelings to the journey we had to finally get the CF diagnosis) and

> I had intended to visit our GP tomorrow and get a referral to a

> paediatric gastro, at least now I have a referral so all I need to

> do is organize an appt.

>

> Sorry for this long story but my friend here just doesn't

understand

> and makes me feel I'm just mollycoddling Kristy who is over

> reacting. I am tired, frustrated and just needed to get it out.

>

> Barbara

> Mum to Kristy 13 wcf and Nicky 16 wocf

[Guest guest]

In a message dated 12/28/2003 10:04:09 AM Central Standard Time,

mntecrlo@... writes:

Vondie

Were are the father's to these babies??? And what about the Grandparents on

his side??? Deb A

[Guest guest]

That sounds awful. Has your daughter tried Reglan? My son is on it

for gut motility and I was on it when I was pregnant. It is

technically an anti-psychotic medicine but is used off label to treat

nausea. It worked great during my pregnancy and if it is safe enough

to take while pregnant, I am sure it is safe enough for a 13 yr old.

It is a very cheap medicine. You can ask your regular dr about it.

[Guest guest]

Barbara,

I honestly have no advice for you. I have never had to deal with anything

like this. I just wanted to say that I hope your Kristy starts feeling better.

And dont worry about what anyone thinks about how you deal with your child, she

is yours. Most moms understand.

Vondie

Just need to get this out

Kristy has had a very blah kind of christmas to date.

The nausea she has suffered for almost 6 months had been attributed

to post nasal drip from her sinus problems. Since her surgery just

over 2 weeks ago now, the nausea has become much worse, she never

actually vomits just feels horribly sick.

She spent a large portion of xmas day asleep and very down. Boxing

day was a little better, but she still hardly ate anything.

Yesterday was her best day and we managed to have lunch out and

catch up with relatives visiting from interstate, but by late

afternoon she was feeling very sick again. This morning she got up

at 10 a.m., did her pulmozyme, had a shower and came to me crying

because she felt so sick again. I rang the hospital and then my

husband and I took her in (it's 90 minutes from home) after a 2 &

1/2 hour wait we saw a doctor who was wonderful. Her blood tests

show her liver function was good and Kristy has had no GI signs of

CF since diagnosis last year. The doctor is concerned she may have

gallstones (she also began to feel discomfort in her tummy today) so

now we're off to see a gastro specialist who has visiting rights at

the hospital. He went to great lengths to re-assure her (and us)

that there was nothing " drastic " going on and would not give her

anti nausea meds as she wasn't actually vomiting.

One of my biggest concerns atm is the high level of anxiety she now

seems to be suffering, most nights she is afraid to go to sleep. As

someone who is on medication to manage anxiety/panic disorder it is

heartbreaking to watch your child show signs of this too at 13. The

CF clinic were going to organize a psycologist to visit while she

was in hospital two weeks ago, but it didn't happen and things were

so chaotic anyway it slipped my mind too.

My instinct tells me something is definitely not right (similar

feelings to the journey we had to finally get the CF diagnosis) and

I had intended to visit our GP tomorrow and get a referral to a

paediatric gastro, at least now I have a referral so all I need to

do is organize an appt.

Sorry for this long story but my friend here just doesn't understand

and makes me feel I'm just mollycoddling Kristy who is over

reacting. I am tired, frustrated and just needed to get it out.

Barbara

Mum to Kristy 13 wcf and Nicky 16 wocf

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

[Guest guest]

In a message dated 12/28/2003 3:12:17 PM Central Standard Time,

mntecrlo@... writes:

Vondie

OMG!!!!! I would stay clear of her but then you worry about the kids!!!

Couldn't the state take them away if you told them all that she has done!! I

guess

the only way they do that is if the kids life is in danger and how do you

prove that when they are neglected. SO SAD!! And very hard to stand aside and

just

watch!! I feel for you and her kids!! Deb A

[Guest guest]

You should give her birth control pills and tell her they are breath mints

LOL

Rosemary in NY with 3 children (13, 11 and 7)

with CF. I have a dog named TOBI and have

coined the phrase " BREATHE DAMMIT "

[Guest guest]

Dear Barbara,

I hope you get to the bottom of this and find out what's wrong. You certainly

are understood here by us. My cf daughter once ran a low grade fever for

several months before we saw an infectious disease doc who didn't really know

what was causing it but put her on strong IV antibiotics anyway and it cleared

it up. weird.

please always feel free to vent here.

love to you and Kristy,

M

[Guest guest]

Deb

Fathers (pl)? Lets see - One of the dads she lives with, one sees the oldest

boy some, dont know who the dad is to the middle one or this latest one yet.

To be truthful, she doesnt want to know the other two. According to her if she

knew it would make her look bad (4 different dads). I have tried to explain to

her that she is really messingup her life. Here is the kicker, she has been on

birth control with 3 of these babies (at least thats what she tells me). The

last one, boy, was supposed to be signed over to us, but that didnt happen. The

guy she is with likes to play a game, give me what I want and do what I want you

to or you cant see the kids. We tried taking them in (boyfriend & all) that

didnt work at all. We have taken her and the kids in multiple times. But, the

last time was the end of that. I had to pick kids up from police, she wouldnt

come. SO, for a month I had the kids, 3 of them. She finally decided she was

coming back home, she said she was done with him. SHe stayed about a month.

One day I got a call to come home, I was getting fitted for glasses. I

came home to my house demolished. Broken dishes, doors open, basically trashed

and she was gone with him - kids and all. Havent heard from her up until she

got pregnant again.

So, thats the shortened story. Lots more but would take up too much space.

Basically, unresponsible people having babies. Neither one works and they

live on state assistance. Other granparents? I really dont know. The only

one I really know about is her mom. She kicked her out and doesnt help her.

So, here we go again.

Vondie

Re: Just need to get this out

In a message dated 12/28/2003 10:04:09 AM Central Standard Time,

mntecrlo@... writes:

Vondie

Were are the father's to these babies??? And what about the Grandparents on

his side??? Deb A

[Guest guest]

You bet; we do vent our frustrations on this list and share support

possibilities

and similar experiences--which is why this is such a welcoming and helpful list!

Love and appreciation, to all on cfparents,

n Rojas

Re: Just need to get this out

Dear Barbara,

I hope you get to the bottom of this and find out what's wrong. You certainly

are understood here by us. My cf daughter once ran a low grade fever for

several months before we saw an infectious disease doc who didn't really know

what was causing it but put her on strong IV antibiotics anyway and it cleared

it up. weird.

please always feel free to vent here.

love to you and Kristy,

M