I'm still confused about my diagnosis

[Guest guest]

<<He did not mention diet... why????>>

I am not surprised.... this is very common. Doctors get very little training in

nutrition and those who specialize in GI disorders seem to be mostly oriented to

the " diet makes no difference " philosophy.... and are quite handy with their

prescription pads.

Don't worry about that.... just give the diet a go for a few months. Who cares

what the exact diagnosis is, as long as you begin to feel better and heal? I

mean, it would be *nice* to have an exact name/label to put on your disease....

but SCD is probably the best way to go regardless, so just go for it. You won't

regret it.

Eventually, hopefully the doctors will come around.... but who knows? SCD

might put them all out of business!

Patti

I'm still confused about my diagnosis

I'm reading through BTVC. It makes so very much sense to me. I have

had an IBD for years. I didn't go in to have it checked out until

about 3 1/2 years ago and I was bleeding very badly (I had just

lost a child to cancer). I was diagnosed with colitis (and not

ulcerative??), basically proctitis. That's all I was told. He gave

me some meds and never said a word about diet.

I don't like taking medication, so I did respond well to the meds, but

come to find out after the fact, it was overkill and they made me feel

ill (mesalamine via enema). So, I quit taking it. Last year or so, I

was back in for a complete colonoscopy, upper & lower (and I remember

x-rays, too). I was convinced before I went in that I was a celiac

although I am not thin. I felt so much better when I'd avoid starches

and flours. I had had a test done at my doctors office checking my

glaidin? levels... someone had told me this can be an indicator of

celiacs. My levels were raised but the digestive care doctor never

explained why they were.

He told me I wasn't a celiac and it looked more like ulcerative

colitis (proctitis) and he said it even looked a bit like crohn's (he

said this sort of in passing and gave the official diagnosis as

colitis). He supposedly did a biopsy to check for the celiac's but

I'm not sure how they officially check for it and I'm even more

confused about it after reading BTVC. I asked him about diet and he

dismissed it. He gave me another prescription for canasa (mesalamine

again only as a suppository because not much of my colon is affected

but it's enough). I asked him how long I would have to take it and he

said probably for the rest of my life . He did not mention diet...

why???? I also have a parent who was diagnosed with schizophrenia way

back in the '60's. I would never have ever thought that an IBD and

that could have been connected.

I am not on the scd diet 100% but I want to be after I gather supplies

so I am sure to be successful with it. I have so many big feelings

about my new found discoveries (scd diet) that I can't even begin to

explain how much of a cloud's been lifted... I don't have to live with

the yucky symptoms of an IBD for the rest of my life... why isn't diet

stressed more??

Christa

mystery IBD for 9 years... supposedly colitis could be crohn's... who

knows???

[Guest guest]

My son has colitis and his GI insists 'food has nothing to do with it' which I

guess is 'technically' true - but the right food will feed the pathogens that

then cause the inflammation and damage, so, well, there ya go. My son is now

symptom free when he was completely unresponsive to meds (even steroids) before

SCD.

Robbie

I'm still confused about my diagnosis

I'm reading through BTVC. It makes so very much sense to me. I have

had an IBD for years. I didn't go in to have it checked out until

about 3 1/2 years ago and I was bleeding very badly (I had just

lost a child to cancer). I was diagnosed with colitis (and not

ulcerative??), basically proctitis. That's all I was told. He gave

me some meds and never said a word about diet.

I don't like taking medication, so I did respond well to the meds, but

come to find out after the fact, it was overkill and they made me feel

ill (mesalamine via enema). So, I quit taking it. Last year or so, I

was back in for a complete colonoscopy, upper & lower (and I remember

x-rays, too). I was convinced before I went in that I was a celiac

although I am not thin. I felt so much better when I'd avoid starches

and flours. I had had a test done at my doctors office checking my

glaidin? levels... someone had told me this can be an indicator of

celiacs. My levels were raised but the digestive care doctor never

explained why they were.

He told me I wasn't a celiac and it looked more like ulcerative

colitis (proctitis) and he said it even looked a bit like crohn's (he

said this sort of in passing and gave the official diagnosis as

colitis). He supposedly did a biopsy to check for the celiac's but

I'm not sure how they officially check for it and I'm even more

confused about it after reading BTVC. I asked him about diet and he

dismissed it. He gave me another prescription for canasa (mesalamine

again only as a suppository because not much of my colon is affected

but it's enough). I asked him how long I would have to take it and he

said probably for the rest of my life . He did not mention diet...

why???? I also have a parent who was diagnosed with schizophrenia way

back in the '60's. I would never have ever thought that an IBD and

that could have been connected.

I am not on the scd diet 100% but I want to be after I gather supplies

so I am sure to be successful with it. I have so many big feelings

about my new found discoveries (scd diet) that I can't even begin to

explain how much of a cloud's been lifted... I don't have to live with

the yucky symptoms of an IBD for the rest of my life... why isn't diet

stressed more??

Christa

mystery IBD for 9 years... supposedly colitis could be crohn's... who

knows???

[Guest guest]

> Don't worry about that.... just give the diet a go for a few

months. Who cares what the exact diagnosis is, as long as you begin to

feel better and heal? I mean, it would be *nice* to have an exact

name/label to put on your disease.... but SCD is probably the best

way to go regardless, so just go for it. You won't regret it.

>

> Patti

I'm excited to start this diet... I've been trying to do this on my

own for a long time. I'd avoid carbs and feel good... then I'd get

ahold of something that would set off my symptoms (like cream and

coffee) again and get frustrated and quit. Now I understand and I

won't feel like I'm bumping around in the dark trying to figure it out

on my own. My mom and her sisters are all on so called " low carb "

diets and I think they are all figuring out the same thing only going

about it a different way (so I told them about SCD... they think it's

pretty interesting).

Christa

[Guest guest]

Christa,

Well, I know where you're coming from with BTVC making so much sense.

I developed IBS a little over 30 years ago, about two months after Harry

and I were married. We didn't want to start a family immediately, so I

followed my gyn/ob's suggestion and went on the Pill. Within six months, I

was obese and suffering from soft, mushy stools and frequent, profound

urgency. No blood, no mucous. Nothing that would stand up and say " Here's a

case of IBD! "

I was told two things by the doctors -- first, to take Lomotil is it

" really bothered me, " and second, to lose weight, and stop letting myself

go now that I'd snared a man.

I never went back to that doctor.

I " dealt with it " for 25 years. Dealt with the fact that the IBS made it

impossible for Harry and me to have a family, though we didn't understand

that until it was too late. Dealt with wearing only very dark trousers or

skirts so the stains if I had an accident while I was out wouldn't show,

stains that wouldn't wash out. Dealt with learning how to stuff toilet

paper in my underwear to keep the dribbles from staining my clothing. Dealt

with my own family (never Harry! bless him!) telling me that I was lying

when I said I wasn't eating much. That I was lying when I said I was trying

to lose weight. That I was lying when I said I couldn't control the

" episodes " . Oh, they never came out and SAID that I was lying, but their

attitude did.

Then, what with one thing and another, I ended up putting my beloved fur

children, standard longhair dachshunds Shadow and Sunlight (aka Shadowdachs

Imagination and Shadowdachs Amapola) on a raw, grain-free diet. The

improvement in their health was so astonishing that I commented that I

wished I could find a grain-free diet for humans. , of the

now sadly-deceased CompuServe Natural Medicine Forum, pointed me to BTVC.

The rest is history. I've been on SCD for more than 5 years. I lost 150

pounds. I can't imagine going back to my old way of eating. And never was

that more evident than last night: Harry and I walked past a movie theater

on our way out of a mall. Buttered popcorn! It smelled wonderful! The smell

made me very hungry... but when I thought about actually eating some, I

realized that in my head, buttered popcorn is no longer food. So we went,

and I had our usual Saturday night dinner, half-pound burgers with lots of

cheddar cheese, and a tossed salad with homemade ranch dressing. I do still

have to be careful with tomato skins and removing them, and for some

reason, I don't tolerate red lettuces, but I'm fine with raw greens, so

long as I don't try to eat salads every day.

When we got home, I had a cup of SCD yogurt with a touch of honey and some

legal vanilla. And then went to bed in a CLEAN bed, without having the

change clothes and take a shower to get rid of stains on my legs.

Without SCD, I honestly do not know if I would be alive.

But I am!

SCD is a lot of work, but it's worth every bit of it!

-- Marilyn (New Orleans, Louisiana, USA)

Undiagnosed IBS 25 Years, SCD Five Years

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

[Guest guest]

Marilyn,

Thanks for sharing that. I have known women who have wanted children, but

had trouble conceiving. Many of them are heavier, and I don't know the

details on the bowel movements. It has never crossed my mind that I might

talk to them about scd to help their child bearing difficulties though. I

really appreciate you sharing your story with us briefly.

Meleah

I'm still confused about my diagnosis

>

> Christa,

>

> Well, I know where you're coming from with BTVC making so much sense.

>

> I developed IBS a little over 30 years ago, about two months after Harry

> and I were married. We didn't want to start a family immediately, so I

> followed my gyn/ob's suggestion and went on the Pill. Within six months, I

> was obese and suffering from soft, mushy stools and frequent, profound

> urgency. No blood, no mucous. Nothing that would stand up and say " Here's

> a

> case of IBD! "

>

> I was told two things by the doctors -- first, to take Lomotil is it

> " really bothered me, " and second, to lose weight, and stop letting myself

> go now that I'd snared a man.

>

> I never went back to that doctor.

>

> I " dealt with it " for 25 years. Dealt with the fact that the IBS made it

> impossible for Harry and me to have a family, though we didn't understand

> that until it was too late. Dealt with wearing only very dark trousers or

> skirts so the stains if I had an accident while I was out wouldn't show,

> stains that wouldn't wash out. Dealt with learning how to stuff toilet

> paper in my underwear to keep the dribbles from staining my clothing.

> Dealt

> with my own family (never Harry! bless him!) telling me that I was lying

> when I said I wasn't eating much. That I was lying when I said I was

> trying

> to lose weight. That I was lying when I said I couldn't control the

> " episodes " . Oh, they never came out and SAID that I was lying, but their

> attitude did.

>

> Then, what with one thing and another, I ended up putting my beloved fur

> children, standard longhair dachshunds Shadow and Sunlight (aka

> Shadowdachs

> Imagination and Shadowdachs Amapola) on a raw, grain-free diet. The

> improvement in their health was so astonishing that I commented that I

> wished I could find a grain-free diet for humans. , of the

> now sadly-deceased CompuServe Natural Medicine Forum, pointed me to BTVC.

>

> The rest is history. I've been on SCD for more than 5 years. I lost 150

> pounds. I can't imagine going back to my old way of eating. And never was

> that more evident than last night: Harry and I walked past a movie theater

> on our way out of a mall. Buttered popcorn! It smelled wonderful! The

> smell

> made me very hungry... but when I thought about actually eating some, I

> realized that in my head, buttered popcorn is no longer food. So we went,

> and I had our usual Saturday night dinner, half-pound burgers with lots of

> cheddar cheese, and a tossed salad with homemade ranch dressing. I do

> still

> have to be careful with tomato skins and removing them, and for some

> reason, I don't tolerate red lettuces, but I'm fine with raw greens, so

> long as I don't try to eat salads every day.

>

> When we got home, I had a cup of SCD yogurt with a touch of honey and some

> legal vanilla. And then went to bed in a CLEAN bed, without having the

> change clothes and take a shower to get rid of stains on my legs.

>

> Without SCD, I honestly do not know if I would be alive.

>

> But I am!

>

> SCD is a lot of work, but it's worth every bit of it!

>

>

> -- Marilyn (New Orleans, Louisiana, USA)

> Undiagnosed IBS 25 Years, SCD Five Years

> Darn Good SCD Cook

> No Human Children

> Shadow & Sunny Longhair Dachshund

>

>

> For information on the Specific Carbohydrate Diet, please read the book

> _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

> websites:

> http://www.breakingtheviciouscycle.info

> and

> http://www.pecanbread.com

>

>