Re: Re; Cololn removed

[Guest guest]

Paget,

I am sorry you are having such a hard time with it. I still have my

pancreas, and have had all but 8 inches of my colon removed, as have

my brother and sister. My youngest sister however had the same

surgery you had. She had her entire colon removed, a colostomy bag

for 2 months whilst everything healed up, and then had further

surgery to reconnect her j-pouch to her anus. I do know she got very

sick at one time, but I think that was when she had the colostomy

bag, and it was found that she had developed scepticemia (sp?).

I haven't heard of her having further problems since, but then she

refuses to acknowledge anything about our illnesses anymore. She has

gone into denial over it all which is sad because chances are her

children will inherit this.

I can give you this support website with many members who will be

able to give you a hug and tons of support and answers to your

questions. Just one thing...could it be that you have developed a

type of irritable bowel or small bowel syndrome do you think?

I do know that the colon and small intestines don't like being

handled and can go on strike so to speak. This happened to me, but

it was whilst I was still in hospital. Have you contacted your

surgeon regarding this further pain?

Here is the site, and I hope that someone sorts out what is wrong so

you can start to enjoy life again. Email me at anytime if you need

to.

http://www.j-pouch.org

Regards,

[Guest guest]

I know where you are coming from I had a large cyst removed. It

comsumed the entire common bile duct from the billary tree of my liver

into the head of my pancreas. It was so large they thought I had

cancer. They had to core(there words) out the head of my pancreas to

get it all(?). They had to remove the billary tract. I dont have a

colostomy. Yet with my new plumbing at the time of the surgery and to

about 1 1/2 later I only had recovery pain with the occational pain

stints that landed me in the hospital. Now I have Chronic pancreatits

from pancreas divisum, they think the cyst and divisum are related to

one another. Today I take enough pain meds and enzymes and now

insulin. It seems to be progressing getting worse every year. I hope

is for you to have some pain free days or hours. That is all I wish

for at time. With what they did to me a can't get the dream transpant

the complications are too great and the sucess is less than 30

percent. Alot of my friends and family wonder why. I wonder sometimes

myself I am not a religous person but a spirtutual person and have

been praying for a miracle. Yet, none, but the greatest thing that has

happened for me is the closeness of my family and a couple of friends.

I could not have ask for such a success, miracle. Family and Friends

that stick it out with you is what is importants.

Again I pray for you that you have a day or an hour of no pain. That

is all I as for myself.

Walt

hew.. I have not written so much I a while. I guess I needed to.....

> Hi everyone.

>

> For 3 years I have had a colostomy because of this disease, bad

> plumbing, and pain meds. Just recently I had my colon removed and had

> whatever was left go to my small intestine which is acting as my

poop shoot. Some days I think this is going to work and I will never

be plagued with the horrible disease of Constipation. I had the

operation about 2-3 weeks ago and today I am in so much pain. Not only

in my lower area of my anatomy, but up in the pancreas area too. Today

I am so scared. I am scared that I keep shaking hands with the wrong

person, and not with the person who is going to help my quality of

life. Before I had this surgery I was bed bound once again. I had a CP

flare up and it was awful, as they all are. I know I threw this

procedure out on this board awhile ago in hopes that someone had had

this done to them, and still had a pancreas. If anyone has any sites

for me to explore or had their own story to tell I would reall

apreciate it for I am truly scared and I need a hug or just a little

support.

>

> Thanks Paget