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My 4.5yr old daughter has been extremely food focused since starting

SCD almost 2wks ago. She is always talking about what she can no

longer have. Her behavior has been atrocious too. I'm not sure if

it's still die off or what seems to be a pretty bad craving for

starches.

I'm not sure what to do to help her. She won't take charcoal like my

oldest; I don't like epsom baths becz they put the water in their

mouths & get diahrea from that. She's been impossible though.

Also, how does one deal with social situations & kids on SCD? I

turned down a party invitation for the kids for Sunday becz of all

the behaviors & food focus. It's still really early on in the diet,

there's not a whole lot they can have especially with treats, &

their behavior is erratic, so a kid's birthday party would be too

tough on us right now.

I'm avoiding anything food related at the moment ( & unfortunately

food revolves around *everything* :-() & plan for us to spend the

holidays alone this year because people cannot deal with people with

food allergies & their special holiday goodies, particularly my

family.

Thanks, Michele

SCD-1-1/2 wks

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Michele,

I know it's common for kids to be obsessed with food at first. This should get

better over time, but you'll need to get creative with non-food rewards....

games, videos, activities. Not easy for you right now, I know. Just downplay

your responses to her obsessive behavior. I know others will have some good

ideas for you.

Here is a link to an epsom salts page at the enzymestuff website. There are

recipes there for homemade epsom salts lotions and sprays.... you can apply them

to the skin on the backs, belly, legs, upper arms, etc. Easy to make and

cheap....

www.enzymestuff.com/epsomsalts.htm

Patti

Food Focused Kiddo

<<My 4.5yr old daughter has been extremely food focused since starting

SCD almost 2wks ago. She is always talking about what she can no

longer have. >>

<<I'm not sure what to do to help her. She won't take charcoal like my

oldest; I don't like epsom baths becz they put the water in their

mouths & get diahrea from that. She's been impossible though.>>

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Well, my personal opinion is that you're right to sort of isolate yourself

initially. It is very difficult to keep four children on scd under your

constant watch, and you're right that people don't understand the

seriousness of illegals. Jody advised me to be pretty reclusive initially

back in May, and I didn't want to. We had a lot of infractions, and we saw

the fruits of it. iel would cry and scream in his sleep along with

other behavior issues. I only have a couple of close friends who really

understand how important this was, and they volunteered to be iel's

constant supervisors this summer while I taught a weekly children's choir.

It was a lifesaver. Our home school co-op is back in session, and I've been

kind of concerned. So far so good. I think that iel is pretty used

to having to stick to his own food now...but we do still have to be

cautious, just not neurotic. I am hoping that the adults will really be on

board now that they can see the incredible progress that he's made over the

past three months that they haven't seen him. He truely is a different

child due to scd, B12, other supps, and finally chelation. Thank God that

we are well on the road to recovery by His grace and mercy, and I pray that

He will continue to steer us that direction. So that's my personal story of

social situations. I'd encourage you to try to avoid social situation

involving food for a couple of months. Instead, invite people to your

home...where you have control of the food...to the park, ect. If your

family isn't going to be supportive of your dietary needs during the

hollidays, then I would advise you staying home this year. I do believe

that when they start to see the fruits of your labor, they'll be more

supportive even if they don't like having to make sacrifices on their part.

I know it's hard at first, but keep it up.

Meleah scd 05/06

iel 3.5yrs. asd, Ethan 5yrs., Mark 18mths., both nt

Food Focused Kiddo

> My 4.5yr old daughter has been extremely food focused since starting

> SCD almost 2wks ago. She is always talking about what she can no

> longer have. Her behavior has been atrocious too. I'm not sure if

> it's still die off or what seems to be a pretty bad craving for

> starches.

>

> I'm not sure what to do to help her. She won't take charcoal like my

> oldest; I don't like epsom baths becz they put the water in their

> mouths & get diahrea from that. She's been impossible though.

>

> Also, how does one deal with social situations & kids on SCD? I

> turned down a party invitation for the kids for Sunday becz of all

> the behaviors & food focus. It's still really early on in the diet,

> there's not a whole lot they can have especially with treats, &

> their behavior is erratic, so a kid's birthday party would be too

> tough on us right now.

>

> I'm avoiding anything food related at the moment ( & unfortunately

> food revolves around *everything* :-() & plan for us to spend the

> holidays alone this year because people cannot deal with people with

> food allergies & their special holiday goodies, particularly my

> family.

>

> Thanks, Michele

> SCD-1-1/2 wks

>

>

>

>

> For information on the Specific Carbohydrate Diet, please read the book

> _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

> websites:

> http://www.breakingtheviciouscycle.info

> and

> http://www.pecanbread.com

>

>

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>

> My 4.5yr old daughter has been extremely food focused since starting

> SCD almost 2wks ago. She is always talking about what she can no

> longer have. Her behavior has been atrocious too. I'm not sure if

> it's still die off or what seems to be a pretty bad craving for

> starches.

>

> I'm not sure what to do to help her. She won't take charcoal like my

> oldest; I don't like epsom baths becz they put the water in their

> mouths & get diahrea from that. She's been impossible though.

>

> Also, how does one deal with social situations & kids on SCD? I

> turned down a party invitation for the kids for Sunday becz of all

> the behaviors & food focus. It's still really early on in the diet,

> there's not a whole lot they can have especially with treats, &

> their behavior is erratic, so a kid's birthday party would be too

> tough on us right now.

>

> I'm avoiding anything food related at the moment ( & unfortunately

> food revolves around *everything* :-() & plan for us to spend the

> holidays alone this year because people cannot deal with people with

> food allergies & their special holiday goodies, particularly my

> family.

>

> Thanks, Michele

> SCD-1-1/2 wks

>

Hi Michele,

Sorry to here about the hard time you are having with social

situtaions and your daughter. Yes everything does revolve around

food. I have celiac children(6 & 9) who have brought their own food

everywhere they have gone, since babies as they are intolerant to many

foods.

My daughter 6 complains almost daily about the gf bread, or gf

pancakes or raw fruit she can not have, and it is hard. I just tell

her maybe soon, maybe in 1 year she can have it again.

I try to keep my kids busy doing things that have nothing to do with

food.

You will have to decide for your self how to handles the parties etc.

depending on how crazy things might get with the food issues.

My daughter went to a BD party, last month..and I'm glad she did.

I was going to skip it but I changed my mind at the last minute. She

had so much fun playing with her friends.

If you can trust the parent at the party not to feed her, just feel

her up with food before the party, send with her a snack she likes....

How many kids really eat the food at parties anyway...they just want

to play...maybe a couple $1 toys from the dollar store would be better

than candy.

We sometimes just show up to parties and family events late if they

are eating first..with full stomaches and snacks they like.....

depending on the situation.

When you get further along on the diet, you can make sure their is a

fruit and vege tray at these social events..

I have a hard time with my mom. She thinks my kids should have a

little rice or potato ..that I am starving them.

I try not to let my kids ever get hungry, because if they are

hungry...they are difficult and they complain about what they can't eat.

Hang in there, things will get better...

Cathy

Mom to 9, 6

SCD aug1

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Hi there,

The transition is not easy. It is no wonder that Elaine recommended that

parents of ASD kids may want to come to this list serve for support. Many ASD

kids with intestinal damage (some times not even diagnosed) come to SCD with

food addiction that they do not even realize that they have. It is known that

many people with ASD problems have an opiate reaction to gluten and casein. Not

to mention the addiction that can be caused by food allergies. All caused by

mal-digestion of these proteins and a vicious cycle going unchecked.

It took us two months before or obsessing over these types of foods stopped. It

was not just the " die off " that we suffered from but the break in this

addiction. Many a night we had screaming, many a meal we had tears. And yes,

we did have to isolate a bit. Not fun with the holidays coming up. But may be

worth it if SCD works for you too. We tried our best to be optimistic and

gentle. Many days where spent soaking in a tub full of Epsom salt. It seemed

to help the withdrawal as well as the " die off " .

We had to do this during Easter season...we made our own SCD treats and still

celebrated. Our neighbors all helped...but surprisingly, now that the vicious

cycle and addiction has mostly been broken...our kids do not need much

monitoring now. Our son truly is a different child...he came ADHD, throwing

rage attacks, diarrhea so bad he couldn't make it to the toilet..........he now

says that he is glad that " his brain doesn't make him do those things any

more " ....children are very wise.

WE taught him that he is not a " bad kid " but a " sick kid doing bad things " and

he believed us. Teach them that they will feel better and act better...you may

be surprised that they want to be well too!

We have learned that life does not revolve around food anymore. This was not

easy. As parents going SCD too, it was hard for us to learn this...I almost

thing that it might be easier for a child. Our son was four when we

started...now he is a very wise five year old. Who knows first hand what it is

like to once be addicted to food. He also now knows what it is like to feel

well for the first time in his short life....we all feel better.

Hang in there....it is worth it! We have never been healthier and more

emotionally stable as a family. Our autistic daughter....the biggest ELAINE

miracle of all of us.

Sincerely, Antoinette and (cd) parents to three (cd, colitis, adhd,

asd/pdd and more) all of us SCD 2/06 no meds

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