Re: Having problem with candy and gaining weight

[Guest guest]

>

> Hi guys,

>

> It has been a while since I posted. I hope everyone is doing well. We needed

your

humble opinion. We have been eating SCD now for 6 and a half months. As most

of you

know we are practicing SCD by the book and with " fanatical adherence " and having

wonderful success as a family. Needless to say, last week, we introduced candy

with nuts

to our 2 year old (Kiki) and I wish we had not.

This interesting b/c if I take plain nuts and add a little honey and eat that as

a quick treat,

I immediately feel peculiar. If I combine the nuts and honey in a dish of yogurt

I don't.

SCD provides recipes for baked goods and desserts and calorie dense foods. That

does

not mean we do not have the option of taking it easy with them just as someone

not on

the SCD diet can do.

Weight is always a concern for me since I lost 86 pounds just before going on

SCD.

SCD maintains me at the same weight... unless I start overdoing the goodies.

Focus on

meat, fish, poultry, fruits, vegetables good dairy, moderate honey and just have

small

amounts of nuts as a snack.

Kiki doesn't need candy very often if at all. She is just a toddler and can be

guided into

good lifetime eating habits. maybe limit a piece of an SCD confection to special

occasions,

company etc.

I have told you before, I am not cured of celiac entirely after six years, but I

am very well

controlled and can have occasional non SCD items and accept this with

satisfaction as a

diabetic would accept lifetime monitoring.

Carol F.

[Guest guest]

Dearest Carol,

You said: " This interesting b/c if I take plain nuts and add a

little honey and eat that as a quick treat, I immediately feel

peculiar. If I combine the nuts and honey in a dish of yogurt I

don't. "

We thank you for your prompt reply. It was helpful. We find our

selves in a bit of denial about this entire " celiac " healing thing.

We use to beleive that this could be " cured " ...but it is becoming

obvious that like you we are going to be eating SCD for life. It is

a good thing that there are so many wonderful foods to eat!

You are also very right about the candy issues. It is just

difficult living in a world that revolves aorund goodies. The kids

see that they are very different now. We thought we would try to be

more " typical " , but the life style of the SADiet, is obviously not

going to be our life style now. So candy is out for our little

Kiki, unless we want to play with fire!

I even became a bit gassy. So maybe it's the honey after all!

Because like you, I can eat nuts with no ill affect...but add them

to candy and I " ferment " ....and it LOOKS LIKE IT spells DISASTER for

our little Kiki.

Do any of you think it is feeding some of the layers of " bad gut

bugs " still??? I have been told that Eliane thought the junk may

grow in layers and die off in layers! If so, how do you kill them

for good? Or can we ever kill em for good???? Or do we have them

for life and just keep the little buggers numbers down by not

feeding them excess sweets that we are not able to absorbe

immediately?

God Bless you for helping us all. You are a God send. Antoinette

and (celiac) parents to three silly yaks! SCD 2/06

[Guest guest]

Hi Antoinette,

> It has been a while since I posted. I hope everyone is doing

well. We needed your humble opinion. We have been eating SCD now

for 6 and a half months. As most of you know we are practicing SCD

by the book and with " fanatical adherence " and having wonderful

success as a family. Needless to say, last week, we introduced

candy with nuts to our 2 year old (Kiki) and I wish we had not. I

assumed that since we all where doing so well that it was going to

be OK and she was ready. She truly enjoyed this treat. The book

says six months. But our experiment blew up in our face.

> This candy nut roll, caused her a set back and a flare of " celiac "

like diarrhea and much pain. I still do not know if it was the

boiled HONEY (to make the candy) or the NUTS in the stuff??

Does she normally eat that amount of honey? Does she have yeast

issues? Has she had whole/pices of nuts before? Did she eat a lot

of it? Any of these points could be the problem.

>Thankfully the rest of our celiac family did fine with this much

needed treat. I have heard that some have problems when the honey

is boiled into candy. Is this true?

It depends on the person and if they try it before they are ready

for it.

> After going back to intro foods and increasing her acidophilus and

yogurt we got her back into balance and avoided a hospitalization.

With every set back, it does not take her long to thin down, since

she is growing so fast. This always seems to worsen her ASD

problems too for the set back duration only. So, she never " looses "

weight but her body becomes much thinner...and her behavior becomes

more asd like. Does this make since?

Yes, flare ups can happen like this, for most of us it is part of

the learning curve of what foods and in what quantities we can

tolerate. It is good do hear that she is bouncing back and didn't

require hospitalization.

> We are becoming very frustrated with this roller coaster ride. I

know that Elaine said two years for cd...but I am often fearful that

we may be doing something wrong. I (cd myself) have gained a much

needed 16 pounds so I know that SCD is not to blame. But my SCD

food choices and preferences are much broader than hers now.

The two years is an average. What is most important is the rule of

thumb of staying on the diet at least one year after the last

symptom has disappeared.

> I am very concerned about her being so thin. She looks better and

is growing much better than six months ago, thanks to SCDiet. Her

ASD problems have almost all but vanished. But at the age of 2 she

is as tall as an average 2T but has the waist of a baby that wears 9-

12 month clothes!

> This leaves our SCD choices for her being the SCD yogurt (both

goat and bovine), cheeses, dry curd, meats, eggs, fruits and

vegetables. WE are truly having a difficult time putting weight

on her. Like many kids on this list serve, she is PICKY too! Yet,

if we could accomplish this feat and get her to gain weight, she

would look even better. It would be nice if we didn't have to pen

her pants up anymore.

Ripe bananas, avocados, homemade mayonnaise made with good oils like

sunflower safflower etc.; yogurt smoothies.

Sheila, SCD Feb. 2001, UC 22yrs

mom of and

[Guest guest]

>

> Dearest Carol,

>

> You said: " This interesting b/c if I take plain nuts and add a

> little honey and eat that as a quick treat, I immediately feel

> peculiar. If I combine the nuts and honey in a dish of yogurt I

> don't. "

>

This may help explain a reason Carol F. (and many others) find

digestion easier with addition of fat - particularly meals with

protiens. Look at the CCK (cholesystokinin) link particularly.

http://home.comcast.net/~john.kimball1/BiologyPages/G/GITract.html

Decent 'Reader's Digest'-type site, imo.

Also, this site may help explain how certain enzymes (those that

occur in the body naturally) and metabolic regulatory activites

cycle with type of food consumption. Bit more detail, this:

http://ajpgi.physiology.org/cgi/content/full/281/6/G1413

One of the reasons I use enz is to assist Glenn's body with these

processes. I believe when you trialed enz (A; not Carol) you found

that you had a poor reaction. Did you just mean your daughter or you

too? (I ALWAYS trial things on myself before I give them to Glenn) -

wasn't sure what you did with miss k. I know your concern with enz

and damaged gut - I talked to Devin before using enz too - same

reasoning ;-)

> Do any of you think it is feeding some of the layers of " bad gut

> bugs " still??? I have been told that Eliane thought the junk may

> grow in layers and die off in layers! If so, how do you kill them

> for good? Or can we ever kill em for good???? Or do we have them

> for life and just keep the little buggers numbers down by not

> feeding them excess sweets that we are not able to absorbe

> immediately?

>

" Layers " = " Biofilm " . As most folks don't live in a bubble, you

are likely NEVER going to eradicate bad critters completely. But you

can control them; to a degree by the methods you mention above.

Biofilm basics:

http://adr.iadrjournals.org/cgi/content/abstract/11/1/59

hth,

-christine

[Guest guest]

Dear Sheila and all who helped,

I thank you so very much for your help. I am going to start

introducing two smothies to her a day, instead of our typical one. I

truly believe that my entire family had yeast issues and biofilm

issues. Whe use to get out right thrush, before SCD. At leaset that

problem is gone.

But it seems like killing the stuff down under is more of a problem.

She never before recieved honey is this concentrated quantity before.

But she has been given crushed nuts in muffins and seemed to do ok.

Regardless she will not be getting any more candy or crushed nuts. We

are going back to basics. The poor thing truly suffers, and no doctor

will ever prescribe anything for her pain since she is so young.

To those who suggested enzymes. We already tried the enzymes, and the

protease in them caused a " dangerous " set back and FLARE in not just

me but my two year old too. So I do not think we will be trying this

again any day soon.

I hope that the layers of biofilms continue to slowly die off with

just 100% adherance to SCD and the BTVC book. WE have already gone

through die off four times since we have started. The first, being

the worse. It is obvious that this war of the " gut bugs " is not going

to be won over night. Our Six months is nothing in the grand scheme

of things.

Even one year after the last symptoms leave, I don't think that we

will ever go back to the SADiet. To big of a risk. Plus, I have

learned that many old timmers have never been able to. So, we are

just going to have to gain acceptance of our new life style and learn

how to cook better and with more pizaz! God Bless all you wonderful

helpers!

Sincerely, Anotinette and (both CD) and three kids (CD, Colitis,

ADHD, ASD and Hyperekplexia)

SCD since 2/06 No meds none of us, much success all five of us!