New member

[Guest guest]

I have been reading the e-mails from this board for a while but just

now I have time to introduce myself. I am the mum of a 10 months old

boy with CF, his name is torin. I am from Brazil and my husband from

USA and we met at the internet, ICQ, 3 years ago. Such odd situation

to find the love of my life...I would never thought about us being

the carrier of some genetic mutation. But I belive that fate put as

together and fate gave us our wonderful and spoiled baby. we live in

GA, and I have no family or friends here. I miss my family a lot and

I had no idea how to take care of a baby...and a baby w/cf is sorta

a chalanger to me. I needed to quit my job coz we decide to wait

till torin is 2 years old to put him at day care.

Torin had meconiun ileus ( I have no idea how to write it), and went

to surgery 6 hours after birth. after the surgery was the first time

in my life I heard about CF. But the next day they were not thinking

it was cf...well, it took them almost 2 months to confirm the Dx,

firt they did 1 sweat test ( 65) and them 3 genetic test , believe

or not they lost the firt 2. then they called a GI Doc, wonderful

person and the first one in that nicu to do something to really help

my son. we left the nicu when my baby was 43 days. and no one really

explain to us what cf was...I got in the internet to learn, get

scared...8 months later...I know a little bit about cf ...and about

how to take care of my baby...everything is so new..to nurse him, to

feed him, neb him, medication, etc.......we are luck he've had no

real problem since we left the hospital and is such a happy ,

spoiled child.

well..be ready to listen from me...I have so many doubts...

see u soon

val ( mom of Torin 10 m with cf and 1 tooth)

ps: I am sorry about my english...hope you all are able to

understand me