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RE: Keeping Helmet Off???

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My daughter is also getting glasses this week. She has had her helmet for 7 weeks. I asked the specialist at cranial technologies about only wearing the helmet at night until I have the appointment to have the helmet adjusted for the glasses and she said it was a bad idea. That if I wanted to do that I might as well leave the helmet off of her. What I have decided to do is have the glasses wrap around the helmet like goggles. I don't know what kind of frames you have but I ordered the miraflex frames that are like a rubber material and have a band around the back.

Good luck,

Jenn

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Plagiocephaly From: kara_baltuch@...Date: Wed, 24 Jun 2009 13:03:23 +0000Subject: Keeping Helmet Off???

Hi, has been in her helmet for about 3 1/2 weeks now and is doing great. we can not get over the change in her head. Yesterday she got her glasses. She is very far sighted and needs them ASAP. Do you think it is ok to leave her helmet off while she adjusts to the glasses? We are going on Friday to get her helmet adjusted for the glasses. I figured I would leave her helmet on for naps and sleep which would be about 16 hours a day. This would only be for 2 days. Any guidance would be great!!Thanks,Kara

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Hi Kara

 

As you may remember Mark has glasses too, also very farsighted and we had to leave the band off till they adjusted it to the glasses.  They will need to make grooves in the sideburns so the frames aren't digging into her face.  Make sure they make the groove wide enough so you can adjust them as needed. Also the may need to shave some away off the top above her eyebrows for the frames.  I think it would be fine till Friday when you can have them adjust it, I think that is how long we waited as well. Like you mentioned wearing the band for sleeping wouldn't involve the glasses.  I don't know if I mentioned this before but it is a pain when feeding with the glasses and the band on.  Mark still nurses when I am home and takes a bottle when I am at work and he usually falls asleep when he eats so we take the band off and remove his glasses and but the band back on before feedings.  This way if he falls asleep he won't with his glasses on. I can send you a picture of Mark so you can see the grooves and how his band fits with his glasses.

 

Good Luck!!! Trust me its all worth it when she puts her glasses on for the first time and you can tell she is actually seeing and not just compensating, I was in total denial he needed glasses until I saw his reaction!!

 

Mark 5 1/2 months DOC band

On Wed, Jun 24, 2009 at 8:03 AM, kara_baltuch <kara_baltuch@...> wrote:

Hi, has been in her helmet for about 3 1/2 weeks now and is doing great. we can not get over the change in her head. Yesterday she got her glasses. She is very far sighted and needs them ASAP. Do you think it is ok to leave her helmet off while she adjusts to the glasses? We are going on Friday to get her helmet adjusted for the glasses. I figured I would leave her helmet on for naps and sleep which would be about 16 hours a day. This would only be for 2 days. Any guidance would be great!!

Thanks,Kara

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If it's only for a day or two it's not going to make a huge difference, especially since she's still going to be wearing it more than half the day. Elaine (twin A), 13mos, graduated after 9 months and 2 helmets

On Wed, Jun 24, 2009 at 10:09 AM, JENNIFER HUBBARD <bearaspen@...> wrote:

My daughter is also getting glasses this week. She has had her helmet for 7 weeks. I asked the specialist at cranial technologies about only wearing the helmet at night until I have the appointment to have the helmet adjusted for the glasses and she said it was a bad idea. That if I wanted to do that I might as well leave the helmet off of her. What I have decided to do is have the glasses wrap around the helmet like goggles. I don't know what kind of frames you have but I ordered the miraflex frames that are like a rubber material and have a band around the back.

 

Good luck,

Jenn 

EMAILING FOR THE GREATER GOOD

Join me

 

Plagiocephaly From: kara_baltuch@...Date: Wed, 24 Jun 2009 13:03:23 +0000

Subject: Keeping Helmet Off???

Hi, has been in her helmet for about 3 1/2 weeks now and is doing great. we can not get over the change in her head. Yesterday she got her glasses. She is very far sighted and needs them ASAP. Do you think it is ok to leave her helmet off while she adjusts to the glasses? We are going on Friday to get her helmet adjusted for the glasses. I figured I would leave her helmet on for naps and sleep which would be about 16 hours a day. This would only be for 2 days. Any guidance would be great!!

Thanks,Kara

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