Re: ENT visit/

[Guest guest]

it's good that you are laughing and still can laugh and some how still find happiness through everything this is going on with your health. I laugh and joke a lot with my sister's and my husband. I tell my husband i do this so i don't cry. Believe me every morning i wake up to the same routine, i am constantly dealing with this trach, keeping the maintenance up with it, as far a keeping it clean and keeping my airway clear. It is an on going process each and everyday. All the vitamins and meds i take each day. 6 breathing treatments a day. I don't have asthma, the treatments are just so i keep my airway clear. I get tired and sometimes thoughts do try to pop in my head that i am ready to stop and give up. I do know now that i am not scared to die. I want to continue to fight to get better until the end, but if i do pass i won't have to worry about taking medicine and dealing with insurance companys, who just care about money their spending out on you and not your health. It gets depressing sometimes. I do understand you , i am just 28, but i do understand your pain and frustration. I am just concerned about the care that your getting.

What do you think about seeing my doctors at UTSouthwestern. I can give you the appt desk number, if the vioxx doesn't work. They're in Dallas off of Harry Hines Blvd. Just let me know if you'd like that information.

Take care

ENT visit (yea right)

Well I just returned from the ENT . He said the tubes going to my ears are inflamed but since he really doesnt know that much about RP he gave me some VIOXX for the inflamation and that should help with the throat and everything else. Oh well I am already on Bextra which is something like that but I will give this a try also. He is letting the other Dr. deal with the pred issue. Oh well another thing I just say Lord you know best. (Ihope haha)This was the first time I have driven since last Nov. (kind of embarrassing to say) due to the extreme weakness but didnt want to impose on my friends anymore. I said enough is enough and went for it.Well I couldnt find a parking spot and the wind was blowing. I am use to being dropped off right at the door. My wig blew off my head and was was trying to chase it. One lady looked at me like I was nuts, she probably thought I was chasing some kind of animal.HAHAHA By the time I had my hands on it , I wasnt about to wear the pile of mess. So in I went my first time in public with nothing on my head. At that point I didnt care. Boy have times changed. I use to not go out of my house without lipstick, makeup, and hair combed but look out now. I am here and thats all that matters,hahhaThanks and Verionica for making me realize I need to get this under control. But I still think I will probably end back in ICU before anyone takes this serious enough.I need to go take my morning meds my sugar was 254 and blood pressure was 168 over 108 and pulse 127 I made the nurse take it because I was out of breath, they dont usually do blood pressures. Luv and hugs DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

[Guest guest]

, Thanks for the info about the Dr. I will probably be

getting with you on that. I doubt if the med will work but I will

give it a try. My heart goes out to you. And I thought I had problems.

When I was in the ICU and saw how worried and sick my family was over

this, I decided right then not to make too much over this and just

take it one day at a time. But sometimes I catch myself not taking it

serious enough. My husband always tells me when we go to the Dr. to

at least act sick. But since no one can tell exactly how you feel or

really see the disease I figure it doesnt matter. Hey I know how you

feel about going on. I have said that the only thing I can really

control is my own life sometimes and I am ashamed to say I have had

the pill bottles in my hand wondering that I have had enough.But when

I stopped and heard my family in the background I realized that I

would only be hurting them.

The quote on my calendar today said, " In order to realize the worth

of the anchor, we need to feel the stress of the storm. " I guess we

are all going through our own kind of storms right now and God only

knows why. If its not for us then maybe someone else in our lives

may benefit through our suffering. I hope I am making sense. I always

told my daughter Kim that God only gave the strong the hard lives

because they could handle them better. She told me to tell God that

we werent strong anymore. But I think he thinks RPers do such a good

job at it that he is trusting us to make him proud. HAHA

I will remember you personally in my prayers and if you ever need to

talk please feel free to call me collect. I am always here for you

and maybe one day we can get together for lunch. It is sad but I

have never been to Dallas and am anxious to go. My number is

409_-9620962. Hang in there you are young and so much more of life to

experience. Maybe all the bad is over and a healthy old age is

awaiting you. Love, prayers and big hugs,NANCY