Guest guest Posted July 31, 2004 Report Share Posted July 31, 2004 My wife has surgery scheduled for 8/25 here in Phoenix. The surgeon states he will determine how bad the organ is and either do a Whipple or a TP once he looks at it. From what I have learned from many of you here, the Whipple is more unsuccessful than not. She told the surgeon that if there is any doubt, to remove the entire organ at that time rather than have to go back for additional surgeries. Am I correct in the assumption that many of you still have pain and problems requiring more surgery after the initial Whipple procedure is done ? Thanks in advance, Doc. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2004 Report Share Posted July 31, 2004 Hi Doc, I'm glad that you and your wife are finally getting some treatment options. I think you and her need to understand these procedures very well before just letting the doc remove what he may. The whipple and a total are 2 completely different procedures. Are you sure the doc in Pheonix did not say a partial to total resection of the pancreas? A whipple includes removing other organs part then just the head of the panc. Then rehooking these organ parts, putting things back together, the anastomosis, can often be more difficult to recover from. A total has less things to put back together,less is removed, over all, less anatomosis to heal from. I'm speaking typically in very general terms, each case is different. Also after a total she will be a diabetic in a big way. If a total is what she really needs look into going someplace to have it with the autologous islet cell transplant. Her own islet cells, the insulin producing cells, are removed from the panc and injected into the portal vein. I'm sorry if I'm telling you things you already know, I just think ya'll need to look into every aspect before surgery. I had the beger, a partial resection of the panc last april, and I'm now looking at a total in my very near future. Just think about all the options available so she doesn't have to face this again. I wish only the best for you both. Warmly, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2004 Report Share Posted August 1, 2004 Hi Doc, I've seen your posts on Whipples / TP. I have had a TP without ICT (i live in UK and they tend not to do ICT). That was 4 years ago. I have had occasional bouts of pain since the surgery, but on the whole i am doing well. Yes, i have diabetes, but it is easier to cope with than the CP. I do get fluctuations in my blood sugar, but it is manageable. I am a nurse, and i manage to work shifts, including nights. I'd like to wish you both luck with your decisions. Sue (UK) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2004 Report Share Posted August 1, 2004 In a message dated 8/1/2004 12:43:47 AM Eastern Daylight Time, jruggieri@... writes: Am I correct in the assumption that many of you still have pain > and problems requiring more surgery after the initial Whipple > procedure is done ? > Thanks in advance, Doc. Doc: I had the tp/ict Dec. 2000. I continue to be very happy that I made that choice. If one has a surgery like a Whipple or any other surgery on their pancreas before the TP/ICT there is a very good chance that they will develop pain due to scar tissue from having two surgeries on their pancreas. I didn't have any surgeries before I had my TP and now I don't have any pancreas pain. I do know many people who had previous surgeries to there pancreas before the TP and now they are in constant pain and have gastroparisis (sp)? So, my suggestion to you is not to make a mistake and have the Whipple, peustow or any other surgery since I know several people who had them and weren't relieved of pancreatitis. They then had the TP/ICT and were left with pain because they had a surgery to their pancreas before the TP. As I said I don't have any pancreas pain and I am so glad I had the TP/ICT. I hope this information helps with your decision. Shirley Quote Link to comment Share on other sites More sharing options...
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