Looking for referral for gastroenterologist supportive of diets

[Guest guest]

Hello Moderators, et al

as part of my application for funding for specialized diets

I am looking for a Californian pediatric

gastroenterologist supportive of specialized diets

OR

someone open minded enough

I can convince to look over Elaine Gottshall's medical veritas

paper and Dr.Krigsman's Carnegie Mellon lecture on autism-

Gastrointestinal link

Dr.Krigsman's Carnegie Mellon University Lecture:

(Go to web page below and Click on Wakefield Presentation Part 2)

http://www.chem.cmu.edu/wakefield/

I am aware of the dark ages we live in

and that it is NOT easy to find a mainstream MD who

believes in autism-gastrointestinal link

let alone dietary intervention

but find one I must or find one that is

likely to listen,

if you know one who is open minded or

can you please e-mail me contact info of

well travelled speakers/researchers so they can help me locate one

who's who

who can help me locate californian Gastroenterologist willing

to be enlightened about autism dietary intervention

eg can you (if you know) give me the phone numbers of

Judy Gorman

Dr.Sid Baker

Dr. McCandless

other advocates of SCD diet

etc (eg people who speak at Conferences are likely to meet other

specialists who know someone)

so I may contact them to see if they know of a good pediatric GI doc

in Southern California

thanks!

Jzin Teng

[Guest guest]

I would love to find one too, if you do find one in San Diego, please let me

know.

Anya 3yrs. 10 mo.

UC May 24 2006

SC May 28th 2006

Mercaptopurine 12.5 mg/a day

[Guest guest]

Dr Arthur Krigsman in Lawrence NY. He is excellent. It's a big work up but

worth it.

Jen Dunn

Kurtis 5 years old PDD

Re: Looking for referral for gastroenterologist

supportive of diets

I would love to find one too, if you do find one in San Diego, please let me

know.

Anya 3yrs. 10 mo.

UC May 24 2006

SC May 28th 2006

Mercaptopurine 12.5 mg/a day

[Guest guest]

Hi there,

I know he's not local for you, but Dr. Fusunyan at Mass General is a

pediatric gastroenterologist who strongly supports SCD. In fact, we had very

pleasant experiences w. most of the docs there re. the diet.

Our dd was dx'ed w. Crohn's and immediately admitted to MGH, so we got to ask

several doctors what they thought of the diet, since the inpatient attending

physician changed every few days. The least positive reaction was from the doc

who was (then) her GI. She said, " if you want to try it, it's okay by me "

(which really wasn't so bad considering....). Another one said, " I've seen

amazing results from that diet, but why would you want to do something so hard?

We have medications to try first. That's the last resort " . (!). Dr. Fusunyan

said something like, " I have many patients following that diet. It is well

researched and really helps people. My dietician loves this diet and will help

you get started. Start your daughter on it as soon as you leave the hospital. "

He also offered to hook us up w. some of his patients on the diet, even though

dd wasn't (at that time) " his " patient.

Good luck finding someone who works for and with you.

Ellen in Boston

9 y/o (Friday!) dd dx'ed w. Crohn's

SCD since 5/06

[Guest guest]

Dear Ellen

Thanks a lot for your reply!

I wished he is local to us in CA

if you look at my post on funding

I wonder if you can do similar stuff in your state

since you already have the backing of a local GI

My hope is that people start recognizing that

autism, like other diseases (cancer, diabetes, PKU, etc)

has a treatable component (gastrointestinal/diets)

and it is not purely genetic neurological/psychiatric

if more people get funding to do SCD

and more people respond/heal to SCD

they will know

1)diets help

2)why they heck are they so many children with problems! lets

do something about this epidemic

3)families get help to heal their kids with diet, not drugs

drugs drugs

best to you

Jzin Teng

Costa Mesa

Southern California

>

> Hi there,

>

> I know he's not local for you, but Dr. Fusunyan at Mass

General is a pediatric gastroenterologist who strongly supports

SCD. In fact, we had very pleasant experiences w. most of the docs

there re. the diet.

>

> Our dd was dx'ed w. Crohn's and immediately admitted to MGH, so we

got to ask several doctors what they thought of the diet, since the

inpatient attending physician changed every few days. The least

positive reaction was from the doc who was (then) her GI. She

said, " if you want to try it, it's okay by me " (which really wasn't

so bad considering....). Another one said, " I've seen amazing

results from that diet, but why would you want to do something so

hard? We have medications to try first. That's the last resort " .

(!). Dr. Fusunyan said something like, " I have many patients

following that diet. It is well researched and really helps

people. My dietician loves this diet and will help you get

started. Start your daughter on it as soon as you leave the

hospital. " He also offered to hook us up w. some of his patients on

the diet, even though dd wasn't (at that time) " his " patient.

>

> Good luck finding someone who works for and with you.

>

> Ellen in Boston

> 9 y/o (Friday!) dd dx'ed w. Crohn's

> SCD since 5/06

>

>

[Guest guest]

Yes Jen

Dr.Krigsman is the greatest!

We have a fan club here for him!

he is the GI doc for my 2 ASD boys

but for my current project

I need to find one in Southern California

(he is considered an out of state Dr)

keep your ears open for me

thanks!

Jzin Teng

>

> Dr Arthur Krigsman in Lawrence NY. He is excellent. It's a big

work up but

> worth it.

> Jen Dunn

> Kurtis 5 years old PDD

>

> Re: Looking for referral for

gastroenterologist

> supportive of diets

>

> I would love to find one too, if you do find one in San Diego,

please let me

> know.

>

> Anya 3yrs. 10 mo.

> UC May 24 2006

> SC May 28th 2006

> Mercaptopurine 12.5 mg/a day

>

>

>

[Guest guest]

>

> if more people get funding to do SCD

> and more people respond/heal to SCD

> they will know

> 1)diets help

> 2)why they heck are they so many children with problems! lets

> do something about this epidemic

> 3)families get help to heal their kids with diet, not drugs

> drugs drugs

>

I am wondering if we adults could try to get funding for this diet. Of

course, my GI is in the camp of " a few of my patients swear by this

diet " and tells me to " keep doing the diet " , and then seems surprised

when asked if I've ever taken a celiac test, that it would be

innaccurate since I haven't had gluten in years. So I'm not sure I

really have someone who could provide a " diet needed " note. But I

often think it would be nice to get some funding for this diet, since

almond prices have almost doubled, honey is expensive (not that I can

tolerate it at the moment), and meat is also very expensive. Is this

something only offered for children suffering from GI disorders?

Debora