Guest guest Posted November 17, 2003 Report Share Posted November 17, 2003 In a message dated 11/17/2003 1:23:39 PM Eastern Standard Time, abbialli@... writes: > I check with the CF clinic and they said that vinegar is fine. What are > you doing? > I throw them (literally in the dishwasher)... The CF CENTER IS WRONG.........what a shock...you must have spoke to my Dr. Rosemary in NY with 3 children (13, 11 and 7) with CF. I have a dog named TOBI and have coined the phrase " BREATHE DAMMIT " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2003 Report Share Posted November 17, 2003 Hi Jill; I believe the American CFF now has a statement on its web site stating NOT to use the vinegar and water. We were told 17 years ago, by our clinic in Toronto, that vinegar is NOT a disinfectant and is inadequate to kill the bacterial germs that we are concerned about for CF, and to ignore manufacturers recommendations for vinegar use. They used to have us use disposable equipment, wash it in hot, soapy water and THOROUGHLY dry it (by shaking, followed by air drying) after each use, then throw everything out after 2 weeks. We dried the hose after each use by running the compressor for a few minutes without the neb cup but did not try to wash the hose in the two week period as it had filtered (sometimes moist) air running through it but no meds or breathing into it as with the neb cup and mask or mouthpiece. Eventually, they did studies in our hospital that demonstrated that the plastic channel of the disposables enlarged within three uses and no longer provided the best size of nebulized molecules of meds. They tested various nebs and now recommend the PARI LC PLUS to us (the one with the *red* internal part). Control III disinfectant is not available in our country and the recommended method of cleaning from our clinic is to use hot, soapy water to remove human proteins, followed by boiling for 10 minutes, followed by drying via shaking and air drying. Unfortunately, no one seems to have studied how long to use the hoses before cleaning or disposal. We find that taking the hose on and off to clean, stretches the attachment and the hose starts popping off too easily. I bought a case of hoses (with smooth inside lumen - NOT RIDGED) so we can change hoses every couple of weeks. We still let the compressor run for a few minutes after each use to ensure the hose is dry. It is easy to see it is dry with the smooth inside; very difficult to see any residue moisture with the ridged hoses. M Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2003 Report Share Posted November 17, 2003 Again! Rosemary, you make me laugh outloud! :>) Gale > In a message dated 11/17/2003 1:23:39 PM Eastern Standard Time, > abbialli@y... writes: > > > I check with the CF clinic and they said that vinegar is fine. What are > > you doing? > > > > I throw them (literally in the dishwasher)... The CF CENTER IS > WRONG.........what a shock...you must have spoke to my Dr. > > > Rosemary in NY with 3 children (13, 11 and 7) > with CF. I have a dog named TOBI and have > coined the phrase " BREATHE DAMMIT " > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2003 Report Share Posted November 17, 2003 Hi Jill, We have always used Control III which is a hospital grade disinfective. You can get it from Grandmom Bev's pharmacy(and probably many other home health type places), I forget the price but its around $15.00 a bottle. A bottle lasts a long time as you only use a little mixed with water and you can use the same batch for about 2 weeks.You can keep it in a Tupperware bowl or some such. You are supposed to wash the nebs with soapy water, then rinse and soak in Control III around 10 minutes, then rinse and allow to air dry. This is what we have done forever and I think it does a good job. We never used vinegar. Now the problem I have is getting my daughter to do it! (she is lazy!) love, M Mom of Nick age 21 nocf and age 19 wcf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2003 Report Share Posted November 17, 2003 , She's not lazy, she's 19. :>) Gale > Hi Jill, > We have always used Control III which is a hospital grade disinfective. You can get it from Grandmom Bev's pharmacy(and probably many other home health type places), I forget the price but its around $15.00 a bottle. A bottle lasts a long time as you only use a little mixed with water and you can use the same batch for about 2 weeks.You can keep it in a Tupperware bowl or some such. You are supposed to wash the nebs with soapy water, then rinse and soak in Control III around 10 minutes, then rinse and allow to air dry. This is what we have done forever and I think it does a good job. We never used vinegar. Now the problem I have is getting my daughter to do it! (she is lazy!) > > love, > M > Mom of Nick age 21 nocf and age 19 wcf > > > > > > Quote Link to comment Share on other sites More sharing options...
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