1 years since I knew something was wrong...

[Guest guest]

Hi everybody....it has been one year since CF came and change our

life, but then we had no idea it was CF...I went to the ob/gyn

appointment and my belly was 10 in larger than normal...the doctor

sent me to a specialist at the same time...there I had one of the

saddest hours of my life...the doctor was looking at the ultrasound

and ask if I have hands derformation history thru my family. I said

no! he said...your baby has just 3 finger on his hand...and deformed

legs ...and a obstruction in his intestines ( cold like that)...I

cry out loud...the only thing I said was " I want my mum " over and

over...they took 2 liters of liquid of my belly and did a

amniosintesis ( ok..had no idea how to sp...)....the result came

normal...no abnormality...I have no idea how it happened...I guess

they didn't test to cf...it was kind obvious that CF was a

possibility...well...one month latter they induced torin ...dind't

work...I had a c-section then...he has all the fingers..perfect

legs...but the amnio was wrong....there was a abnormality...he has

CF...I wondered once...maybe it would be better the 3 fingers and

the problems with his legs than CF...but My mum always says...Life

gives us exact what we are able to handle...Life gave me a baby w/

CF...And we will deal w/ it just fine.

I just wanted to share...

love u all

val

mum of torin w/ cf and 10 fingers, perfect legs , trying to walk