Just need to get this out

[Guest guest]

Kristy has had a very blah kind of christmas to date.

The nausea she has suffered for almost 6 months had been attributed

to post nasal drip from her sinus problems. Since her surgery just

over 2 weeks ago now, the nausea has become much worse, she never

actually vomits just feels horribly sick.

She spent a large portion of xmas day asleep and very down. Boxing

day was a little better, but she still hardly ate anything.

Yesterday was her best day and we managed to have lunch out and

catch up with relatives visiting from interstate, but by late

afternoon she was feeling very sick again. This morning she got up

at 10 a.m., did her pulmozyme, had a shower and came to me crying

because she felt so sick again. I rang the hospital and then my

husband and I took her in (it's 90 minutes from home) after a 2 &

1/2 hour wait we saw a doctor who was wonderful. Her blood tests

show her liver function was good and Kristy has had no GI signs of

CF since diagnosis last year. The doctor is concerned she may have

gallstones (she also began to feel discomfort in her tummy today) so

now we're off to see a gastro specialist who has visiting rights at

the hospital. He went to great lengths to re-assure her (and us)

that there was nothing " drastic " going on and would not give her

anti nausea meds as she wasn't actually vomiting.

One of my biggest concerns atm is the high level of anxiety she now

seems to be suffering, most nights she is afraid to go to sleep. As

someone who is on medication to manage anxiety/panic disorder it is

heartbreaking to watch your child show signs of this too at 13. The

CF clinic were going to organize a psycologist to visit while she

was in hospital two weeks ago, but it didn't happen and things were

so chaotic anyway it slipped my mind too.

My instinct tells me something is definitely not right (similar

feelings to the journey we had to finally get the CF diagnosis) and

I had intended to visit our GP tomorrow and get a referral to a

paediatric gastro, at least now I have a referral so all I need to

do is organize an appt.

Sorry for this long story but my friend here just doesn't understand

and makes me feel I'm just mollycoddling Kristy who is over

reacting. I am tired, frustrated and just needed to get it out.

Barbara

Mum to Kristy 13 wcf and Nicky 16 wocf