Re: meconium ileus information please

[Guest guest]

The one thing that would be different now then with your first child is that

you know about CF and the doctors are also aware and will monitor the

situation I am sure. It really comes down to how badly you want another

child. There is still a possibility that you could have a child that does

not have CF. It is just the luck of the draw and powers beyond our control.

You either decide to take the chance and deal with what you are given or

eliminate the possibility. Ultimately it is your choice and the happenings

of others are not necessarily what will happen with you. No two CF kids are

the same are they? No two kids are the same?!

Tina W., mother of Steph, 18yo wcf & , 26yo nocf

meconium ileus information please

Hello all. Thanks for the diaper creme information. Ashton's butt

is looking better.

I have a question for anyone with an answer. My 2 1/2 yr old was

born 11 weeks premature due to a complicated meconim ileus blockage

that required major surgery. We are thinking of conceiving naturally

but the thought of CF and meconium ileus scares the heck out of us.

We tried twice using IVF and genetic testing on the embryos but I

didn't get pregnant. So now we are considering just going for it.

I read somewhere that if you have one child with meconium ileus,

there is a 39% chance another child wcf witll have the same problem.

Does anyone have any experience with this? Did any of you have a

child with meconium ileus and if so, how was it detected and

treated? Does anyone know of a way to prevent it? We are just

desperate for hope at this point but we also have to be very

realistic. Our son nearly died from this so we have to be very

cautious.

Thank you!

mom to Ashton 2 1/2 wcf

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

_____

[Guest guest]

Hey,

I am a reader I do not post unless It hits home with me and this hits hard.

I have a 7yo girl with CF and born 8 weeks early due to M/I. She also required

major surgery and a three months stay in NICU. Five years later I became

pregnant and totally freak out with fear about what could happen again. On my

first visit to the OB I expressed my feelings to him and he totally reassured me

that they would watch me very closely and do many ultrasounds to detect if any

blockages. At sixteen weeks I had a amnio and it did diagnose the baby with CF.

So after that I had a ultrasound each month. They watched me like a hawk.

I delivered a healthy 6 lbs 12oz baby girl and she had no blockage. I do not

think there is a way to prevent a blockage BUT they can watch the baby close and

if a blockage happens things can be done to lessen the outcome. Good Luck, If I

can help answer any questions please let me know.

Tracey Oldham

7yo with CF 2yo with CF

meconium ileus information please

Hello all. Thanks for the diaper creme information. Ashton's butt

is looking better.

I have a question for anyone with an answer. My 2 1/2 yr old was

born 11 weeks premature due to a complicated meconim ileus blockage

that required major surgery. We are thinking of conceiving naturally

but the thought of CF and meconium ileus scares the heck out of us.

We tried twice using IVF and genetic testing on the embryos but I

didn't get pregnant. So now we are considering just going for it.

I read somewhere that if you have one child with meconium ileus,

there is a 39% chance another child wcf witll have the same problem.

Does anyone have any experience with this? Did any of you have a

child with meconium ileus and if so, how was it detected and

treated? Does anyone know of a way to prevent it? We are just

desperate for hope at this point but we also have to be very

realistic. Our son nearly died from this so we have to be very

cautious.

Thank you!

mom to Ashton 2 1/2 wcf

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

------------------------------------------------------------------------------

[Guest guest]

NO

No two CF kids are the same.

My 7 year old is just barely on the growth chart only weighing 37 pounds. My 2

year old is off the chart at 35 pounds, They wear the same size cloths. Totally

different

Tracey Oldham

meconium ileus information please

Hello all. Thanks for the diaper creme information. Ashton's butt

is looking better.

I have a question for anyone with an answer. My 2 1/2 yr old was

born 11 weeks premature due to a complicated meconim ileus blockage

that required major surgery. We are thinking of conceiving naturally

but the thought of CF and meconium ileus scares the heck out of us.

We tried twice using IVF and genetic testing on the embryos but I

didn't get pregnant. So now we are considering just going for it.

I read somewhere that if you have one child with meconium ileus,

there is a 39% chance another child wcf witll have the same problem.

Does anyone have any experience with this? Did any of you have a

child with meconium ileus and if so, how was it detected and

treated? Does anyone know of a way to prevent it? We are just

desperate for hope at this point but we also have to be very

realistic. Our son nearly died from this so we have to be very

cautious.

Thank you!

mom to Ashton 2 1/2 wcf

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

_____

[Guest guest]

jennifer,

nathan was born 6 weeks premature, with bowel obstruction flown to nicu at major

spokane hospital and had a colostomy at 11hrs old. no warning on cf ,bowel

obstruction or meconium ilius, I had a amnio and 8 ultrasounds throughout

pregnancy. I don't know what to tell you. except good luck and best wishes in

the new year!

amy mom to nathan 2.5 w cf and lots of snow!

meconium ileus information please

Hello all. Thanks for the diaper creme information. Ashton's butt

is looking better.

I have a question for anyone with an answer. My 2 1/2 yr old was

born 11 weeks premature due to a complicated meconim ileus blockage

that required major surgery. We are thinking of conceiving naturally

but the thought of CF and meconium ileus scares the heck out of us.

We tried twice using IVF and genetic testing on the embryos but I

didn't get pregnant. So now we are considering just going for it.

I read somewhere that if you have one child with meconium ileus,

there is a 39% chance another child wcf witll have the same problem.

Does anyone have any experience with this? Did any of you have a

child with meconium ileus and if so, how was it detected and

treated? Does anyone know of a way to prevent it? We are just

desperate for hope at this point but we also have to be very

realistic. Our son nearly died from this so we have to be very

cautious.

Thank you!

mom to Ashton 2 1/2 wcf

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

[Guest guest]

Hi Jen, I'm glad to hear you thinking about trying again. Leila was also born

with meconium ileus, but our story is much different. I had a regular office

ultrasound at 18 weeks and the technician thought she saw echogenesis in the

bowel (indicating meconium ileus). A week later we had a level II scan, and the

doctor totally poo-pooed what the tech saw. He said he wasn't impressed (his

actual words!). When I asked him what it meant he said it could indicate Down's

or CF. He proceeded to show me on U/S all the reasons she didn't have Down's

then asked me if we had any family history of CF. I said no, of course, and he

said " Well, you don't have to worry about that, then! " . Stupid doc. Anyway, I

was a day overdue with Leila and they decided to induce me because I was so

large. Actually, Leila was only 6lbs. 14oz., but I had an incredible amount of

amniotic fluid due to the blockage. We could immediately see something was

wrong with her abdomen because it was abnormally swollen/shaped funny. She

spent 15 days in the NICU but did very well. After 2 gastrografen enemas she

passed the plug on her own. She required a central line, but had no other

complications. My clinic said the chances of having another child with meconium

ileus is 75%. This sounds high to me, so who knows if that is accurate. It

sounds like Ashton had an extremely rough time. I wanted to tell our story

because it was so much easier. There must be a range of severity even within

meconium ileus's. I wish you the best of luck and hope you never see that

complication again.

Keeley

mom to Hadley, 3.5 yrs. nocf, Leila, 17m. wcf, and baby boy due June, nocf

meconium ileus information please

Hello all. Thanks for the diaper creme information. Ashton's butt

is looking better.

I have a question for anyone with an answer. My 2 1/2 yr old was

born 11 weeks premature due to a complicated meconim ileus blockage

that required major surgery. We are thinking of conceiving naturally

but the thought of CF and meconium ileus scares the heck out of us.

We tried twice using IVF and genetic testing on the embryos but I

didn't get pregnant. So now we are considering just going for it.

I read somewhere that if you have one child with meconium ileus,

there is a 39% chance another child wcf witll have the same problem.

Does anyone have any experience with this? Did any of you have a

child with meconium ileus and if so, how was it detected and

treated? Does anyone know of a way to prevent it? We are just

desperate for hope at this point but we also have to be very

realistic. Our son nearly died from this so we have to be very

cautious.

Thank you!

mom to Ashton 2 1/2 wcf

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

------------------------------------------------------------------------------

[Guest guest]

Hello,

Sorry you had to go through so much as well as us. Our daughter was born with

it as well but her bowel ruptured and emergency surgery done but thanks to my

gynecologist of all things he pushed to have her transfered and this surgery was

done on 1 day old baby girl. Eight years later she is full of energy, keeping

up with her brother and attending school. I thank my doctor and the doctors at

packard children's every day for her life. She was in nicu for 6 weeks and then

2 more in mid level and came home with stoma for 6 months and then reconnected

and no problems since.

Best to you