Re: G-tube before holidays or not?? /Grandma Bev

[Guest guest]

Hi there,

I think the best place for you is at the sites I will list below. You

can print info out & have to refresh & comfort you. They are excellent

sites.

First off I will tell you , all you have to do actually is go to the

search box on Yahoo and write tube feeding in cysticfibrosis

It will pop of the following two for you to click to:

www.cfww.org/pub/newsletter/NI97b/n.htm

www.Personal.nbnet.nb.ca/normap/ngtube.htm

These are also available on the home page of CYSTIC-L.org web site under

www.cysticfibrosis.101

Norma Kennedy Plourde's home page.

It is wonderful , with photo's etc. PLEASE go there NOW. I can print &

mail to you but you will have it right away if you go there yourself.

Let me know

LOVE & HUGS, GrandmoMBEV

G-tube before holidays or not?? /Grandma Bev

Hello to All!!

You folks are awesome here I am a lurker when I have time, and post from

time to time as well. My amazing son s doc says our next step is

a g- tube. I know there have been several post on this before. His doc

had told

me we were so far away from him needing a tube do not worry about it.

Now...... after visiting our clinic this morn he needs one soon.

is in

preschool now for three months, he goes on and off due to teachers and

children being sick in his class. He is with his father evey other

weekend.

Preschool during the day for 5 hours daily so I can try to make $$. I

suppose

my question is, if it were you would you go ahead and get the tube

before the

holidays or wait??? I want to go ahead and get it if it will help

. His

docs says he can wait. But all of you that have had you children go

through

this, what is your experience of their comfort level, healing time etc.

etc.

Thank you so much for your thoughts and advice. Grandma Bev do you have

a video or any information on this? Thank you.

Crystal Wood

3228 Green Valley Drive

Sanford, NC 27330

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

------------------------------------

[Guest guest]

I understand your dillemna. If I could do the g-tube thing all over

again, I would have done it as soon as possible. Every day that

ticked by, he got thinner and at more risk for illness. My son was

18 months when he got his and it has been fantastic. We kept putting

it off and delaying it thinking he would suddenly have a growth spurt

but he never did. The g-tube has put Ashton from below the charts to

the 40th percentile with few illnesses and we don't have to worry

about how many calories he gets. If you want to see more about his

situation, you can visit our website at http://www.babyfergie.com

i hope this helps and good luck with your decision.

JEnnifer mom to Ashton 31 months wcf

> Hello to All!!

>

> You folks are awesome here I am a lurker when I have time, and post

from

> time to time as well. My amazing son s doc says our next

step is a g-

> tube. I know there have been several post on this before. His doc

had told

> me we were so far away from him needing a tube do not worry about

it.

> Now...... after visiting our clinic this morn he needs one soon.

is in

> preschool now for three months, he goes on and off due to teachers

and

> children being sick in his class. He is with his father evey

other weekend.

> Preschool during the day for 5 hours daily so I can try to make $$.

I suppose

> my question is, if it were you would you go ahead and get the tube

before the

> holidays or wait??? I want to go ahead and get it if it will help

. His

> docs says he can wait. But all of you that have had you children

go through

> this, what is your experience of their comfort level, healing time

etc. etc.

> Thank you so much for your thoughts and advice. Grandma Bev do you

have

> a video or any information on this? Thank you.

>

> Crystal Wood

> 3228 Green Valley Drive

> Sanford, NC 27330

[Guest guest]

Crystal,

It took

a while to get used to hers. If you were going to base it on our

experience you would wait. However, Most people have had better experiences

with G-tube placement/after care than we did. Does he need to get reflux

surgery as well? That was the hardest part of it for us.

G-tube before holidays or not?? /Grandma Bev

Hello to All!!

You folks are awesome here I am a lurker when I have time, and post from

time to time as well. My amazing son s doc says our next step is a g-

tube. I know there have been several post on this before. His doc had told

me we were so far away from him needing a tube do not worry about it.

Now...... after visiting our clinic this morn he needs one soon. is in

preschool now for three months, he goes on and off due to teachers and

children being sick in his class. He is with his father evey other weekend.

Preschool during the day for 5 hours daily so I can try to make $$. I suppose

my question is, if it were you would you go ahead and get the tube before the

holidays or wait??? I want to go ahead and get it if it will help .

His

docs says he can wait. But all of you that have had you children go through

this, what is your experience of their comfort level, healing time etc. etc.

Thank you so much for your thoughts and advice. Grandma Bev do you have

a video or any information on this? Thank you.

Crystal Wood

3228 Green Valley Drive

Sanford, NC 27330

[Guest guest]

I would wait. In case there is a problem, infection, etc. you don't want to

ruin his holiday. Its going to be hard enough - let him enjoy the

holidays.....I have been debating having Dylan's sinus surgery and am opting to

wait til

Feb. I want him to enjoy his Christmas.

If he NEEDS it ASAP medically - do it................ASAP

Rosemary in NY with 3 children (13, 11 and 7)

with CF. I have a dog named TOBI and have

coined the phrase " BREATHE DAMMIT "

[Guest guest]

Crystal,

My husband asked Zach's doc the same question in August and got the

same reply. He said we were no where close to needing a tube, but

with every month without weight gain, I wonder.

Sara

> Hello to All!!

>

> You folks are awesome here I am a lurker when I have time, and

post from

> time to time as well. My amazing son s doc says our next

step is a g-

> tube. I know there have been several post on this before. His

doc had told

> me we were so far away from him needing a tube do not worry about

it.

> Now...... after visiting our clinic this morn he needs one soon.

is in

> preschool now for three months, he goes on and off due to

teachers and

> children being sick in his class. He is with his father evey

other weekend.

> Preschool during the day for 5 hours daily so I can try to make

$$. I suppose

> my question is, if it were you would you go ahead and get the tube

before the

> holidays or wait??? I want to go ahead and get it if it will help

. His

> docs says he can wait. But all of you that have had you children

go through

> this, what is your experience of their comfort level, healing time

etc. etc.

> Thank you so much for your thoughts and advice. Grandma Bev do

you have

> a video or any information on this? Thank you.

>

> Crystal Wood

> 3228 Green Valley Drive

> Sanford, NC 27330

[Guest guest]

In a message dated 11/26/2003 1:13:49 AM Central Standard Time,

ROSEMARY3FOR3wCF@... writes:

I would wait. In case there is a problem, infection, etc. you don't want to

ruin his holiday. Its going to be hard enough - let him enjoy the

holidays.....I have been debating having Dylan's sinus surgery and am opting

to wait til

Feb. I want him to enjoy his Christmas.

If he NEEDS it ASAP medically - do it................ASAP

Rosemary in NY with 3 children (13, 11 and 7)

with CF. I have a dog named TOBI and have

coined the phrase " BREATHE DAMMI

We found out just last week that has two polyps on her right side.

She said she didn't see doing surgery just yet unless her CF doctor say

differently. God I hate CF!!!!!!!!! Deb A

[Guest guest]

In a message dated 11/26/2003 12:44:14 PM Eastern Standard Time,

gdattig5@... writes:

> God I hate CF!!!!!!!!! Deb A

>

I AGREE 110%%%%%%%