Thanks

[Guest guest]

Thanks

Boo hoo that was so beautiful and so true!

Lots of Love

Glenda

Highly Recommended by Colloran

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[Guest guest]

> PS. I have something I'm proud of too. It has been

> since Nov 23 since I

> have smoked. One day at a time is how I'm doing it.

>

>

YIPEE! I keep wondering, but didn't want to be nosey

and ask. This is such a great thing you are doing for

yourself. Love, squeek

=====

__________________________________________________

[Guest guest]

I want to thank everyone who supported me during a horrible time. I know I

will have more bad times and more good times. It's nice to not feel so alone.

This disease is lonely. I want to thank the person who gave me the idea of a

support list. I like that idea a lot. Right now I am struggling with diarrhea

that is not making me feel so good. The pain has lessen, and that's a relief.

For a while I felt like someone was pummeling my stomach. I even said aloud to

an empty room, " OK, whoever you are, you can stop pummeling my stomach. I have

the picture. " It seemed to ad some humor, but it didn't stop. I am so tired.

I truly feel that I am going down the tubes. My quality of life that was once

better after my whipple seems to be getting smaller. I spend more days resting

or trying to rest. I am in the having 3 children merry-go-round, soccer Mom,

preadolescence phase. Some people try to remind me that people that do not

have this horrible disease are tired too. I am just trying to fit into that life

while fighting a horrid disease.

I am so thankful for this group and the difference everyone has made

in my life. For the person who had the whipple last May and asked me about my

pain, well I have it all. Sometimes it sits in the front and aches until it

drives you nuts, then their is the pain that radiates to my back, then there's

the one that is sharp and in my right upper quadroon, and the last but not

least, the one after I eat that is combined with nausea. I am so tired of it

all. I

wish their was some way I could take a break from body, and then get back

into it when I feel so much stronger and better. Dreams are good?! I also saw

that some people are interested in auto immune Panc.. Yes, their is such a

diagnosis because I have it. The DR's that I deal with seem to know the course

that

the disease is going to take. I know that I have spoken to someone in this

group that has it too. That person saw Dr. Sutherland and he took the whole

organ

out. At the time I spoke to her she was doing great, and CP seemed to be far

away from her. I had just had the whipple and been handed the diagnosis and

was not in any mind to have anymore operations. I have know idea where she is

now, and if she is still CP free. Right now for me, I am not in any shape

mentally or physically to have anyone touch my body, my pain meds, or have any

operations. I am thankful to know that others know about the colan/small bowl

operation. When I am mentally ready, and physically strong I am going to do more

investigation into this.

thank you again Paget

[Guest guest]

Chrissy - I appreciate your words as well. Yes, your ex-boss will

get hers in the end - you know the old saying " what goes around,

comes around. " Nice of some of your co-workers to call you at home

to let you know they were just as shocked at the way she handled

that. Not only mean, but very unprofessional if you ask me.

You asked about why only until Sept, for the work at home thing...I

think they can only request it in 3 month increments. Missing the

deadline is not a good thing and I hope it won't reflect badly on

me...but yes, people do miss deadlines all the time. However, it

just concerns me because if there's any hope of getting this

extended at the end of Sept., I have to be actually producing some

work. But, I have gotten some of the important stuff done in the

last few weeks, so they know that I can do it when I feel well

enough. It involves alot of analysis-type work and I just haven't

been capable of it so far this week. Even today, I am already

getting pain and had to take 2 percocets at 9 am!! If you ask me,

these percocets aren't really getting to the pain lately either so

will have to discuss that soon. They're also written for every 6

hrs but I've been having to take them anywhere from 3.5-4 hrs.

No, no scoping tomorrow that I know of. This is the " initial

consult. " So I've got plenty of work to attempt to do today just to

make sure that he gets a good summary page derived from my journal

and that all my files and films are ready to go. I'll let you all

know how it goes when I get back tomorrow.

Anyway, this has been long but thanks for you kind words Chrissy and

I sure hope you feel better soon. You've already been through so

much. I guess that's what really gets me about your ex-boss....I

mean, they know what you've been through (they're nurses for God's

sakes!!) - she should have show some compassion there rather than

throwing out such a spiteful comment. Unbelievable!!

take care Chrissy

love

[Guest guest]

I just wanted to thank everyone for all the input I got and so quickly. I am

going to keep up the fruits/veggies etc and stay far as I can from

grains/sugars for my little guy but will wait to do the diet until I have

reread the book, cooked some of the food and am COMPLETELY prepared. I

thought that I could dive into it like I did the GFCF diet but did not

realize the multitude of restrictions and " can't haves " so instead of

stressing myself out... I am going to be prepared before I start this.

It's nice to hear all the great stories and will keep checking in....and

hopefully I will have Cole on this diet before December!

Thanks,

Tumpa Reinhardt

proud mom of Cole (ASD, 5 yrs old)

Chase (2.5 NT, already starting to read)

Caylee (13 months NT, already knows all body parts and loves Simon Says

games)

To the world you may be one person, to one person you are the

world~Anonymous