Re: suggestions for CPT/Neb?

November 13, 2003

Have you tried just giving your albuterol with puffs and a spacer?

It takes all of about 30seconds. It works the same for most kids and

that is what we've been doing with my son (almost 2) who gets it only

whenever he has a cold so far. Talk to your doc. It saves a lot of

time- especially if you start to add TOBI into the time as we have.

Tina mom to almost 2 with CF and Zoe 3 no CF.

November 13, 2003

Karon,

My daughter is 16 months and we went through this with her as well. They told

us in clinic after Piper was dx that as long as she got her nebs & cpt like she

was supposed to that she would just get used to it and would eventually fall

asleep during it........HA quite the opposite. It is better now, but when we

were having these troubles I got on here and asked for any suggestions, and I'll

tell you what I was told. #1 DON'T GIVE IN!!! #2 If they scream (and they

probably do) fine, let them it is good exercise for their lungs. We still have

to hold Piper down to get her to do her nebs, but after a few mintues she quits

fighting and usually will watch tv. With her cpt, I usually put the satellite

on the light classical music channel and " bop " away, she now goes to sleep

within about 10 min of starting her treatments!!! I hope that things get better

with the treatments!!!

Katy

mom to Austin 4 no CF & Piper 16 months w/cf

kirby_mi wrote:

Hello all.

This is one of the first times I've posted here (aside from saying

hello). I am looking for suggestions... Our son just turned 1yo and

is now getting impatient during neb and cpt. We usually play a Baby

Einstein video during the neb(albuterol only) and then switch to

another video for the cpt. Since it takes 45-60 min for the whole

routine (depending on his level of cooperation), we need some ideas

of what else might keep him entertained.

He's had treatments since birth and cpt as well, but just now seems

to be testing or just wants to play... I don't know.

Thanks for your help!

Karon

Mom of , III - 12 mos w/cf

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

November 13, 2003

We have the same trouble with Abby (2 yrs. old). We have resorted to

doing her treatments while she sleeps.

Gale

> Hello all.

> This is one of the first times I've posted here (aside from

saying

> hello). I am looking for suggestions... Our son just turned 1yo and

> is now getting impatient during neb and cpt. We usually play a Baby

> Einstein video during the neb(albuterol only) and then switch to

> another video for the cpt. Since it takes 45-60 min for the whole

> routine (depending on his level of cooperation), we need some ideas

> of what else might keep him entertained.

> He's had treatments since birth and cpt as well, but just now

seems

> to be testing or just wants to play... I don't know.

>

> Thanks for your help!

> Karon

> Mom of , III - 12 mos w/cf

November 13, 2003

In a message dated 11/13/2003 11:44:59 AM Central Standard Time,

karonrbetz@... writes:

Karon

My youngest was diagnosed at age 1 and what we did and you will probably

think this is crazy but we would look out the window and watch the birds and I

would tell her how look that bird it looking at you and he is coming closer to

get a closer look at you because he thinks that thing on you face looks so

funny. And if the bird would fly away I would say oh he is going to go tell all

of

his friends to come and see the little girl in the window with the funny thing

on her face. She would love to do this because it was always interesting to

her to see how many birds would come to the window. I always said you need to

think fast to get there mind off of what they were complaining about. But after

they turn 3 it all over because they have figured out what you are doing and

they know all of there trick but by then at least they have the attention span

to sit and watch more movies longer. Hope this helps and you don't think I am

to kooky!! LOL!!! Deb A

November 13, 2003

Hi Karon,

My daughter will be one tomorrow and we've been doing CPT since birth

too. She likes the Baby Einstein videos but lately we've been watching

videos called Signing Time. We are doing baby signing with my daughter

which is why we bought them. They are really cute and definitely hold

her attention. Maybe just trying a new video will help. If you want to

take a look at them check out www.signingtime.com . You can also find

them at Amazon.com. I also try to do the treatments right before nap

time so she is tired although, she never sleeps through it! The other

thing you might want to try is reading a book or listening to music for

the neb treatments then doing the video for the CPT.

Good luck!

Mom to Ellie, almost one yr old, wCF and Jack 3yrs noCF

suggestions for CPT/Neb?

Hello all.

This is one of the first times I've posted here (aside from saying

hello). I am looking for suggestions... Our son just turned 1yo and

is now getting impatient during neb and cpt. We usually play a Baby

Einstein video during the neb(albuterol only) and then switch to

another video for the cpt. Since it takes 45-60 min for the whole

routine (depending on his level of cooperation), we need some ideas

of what else might keep him entertained.

He's had treatments since birth and cpt as well, but just now seems

to be testing or just wants to play... I don't know.

Thanks for your help!

Karon

Mom of , III - 12 mos w/cf

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

------------------------------------

November 13, 2003

At that age we bought Patti some little toys that went into a basket and were

only brought out when we did cpt, and only if she was getting restless with

watching a video. We had little stuffed animals, a couple of doll house people,

a book, and I think a puppet. Every once in a while the basket wouldn't work

and I would make a point to pick up a little something new for it the next time

I was shopping.

Then there were the times when she really didn't want to do cpt or nebs, and

would be furious. You know what, I can relate to that... There are times I

don't want to have to do them (with her) either! We would encourage her to be

mad, tell her it was okay and give her soft things to throw. Sometimes she

would throw them all and then be okay. Sometimes she would throw them all and

still scream. But I think that even at 1 she could tell that we understood and

sympathized with her, but that treatments were to be done. Personally I believe

that this is why I feel like she continued and continues treatment compliance as

we moved through our terrible twos and into our sassy threes.

Dawn mom of 4, 7 and under, the youngest wcf

November 13, 2003

When Savannah was smaller we would let her give her " baby " a treatment first

and when she was getting her treatment she would give her " baby " CPT. She

always liked using the mask since it keeps her hands free. Now at 10 yrs. she

does

a lot of them at the computer. Best of luck. I know it can be frustrating and

since we are doing them every 4 hrs. around the clock it becomes tiresome too.

Mom to 2 w/o CF and Savannah w/ CF

November 13, 2003

Our 1 yr. old as well as our 2 yr. old LOVE " The Wiggles " . If you

don't have it - GET IT. It's a must for Abby's CPT. They also like

most anything that have kids singing. " Kid Songs " is another hit.

If there's very much dialogue (which there isn't on these) Abby

(15mos.) loses interest but as soon as the singing starts back up

she's enthralled.

The Wiggles aren't kids (some goofy grown men) but they do have kids

on there as well as costumed characters. I haven't seen kids go for

something like this since Barney. The tapes we have are " Wiggly

Playtime " and " Dance Party " . They're some of the original ones.

Good Luck,

Joe Father of Kelsi, 7; Chloe, 2; and Abby 15 mos. w/cf

November 14, 2003

We do the same thing. My kids do treatments in front of computer. I now

need another computer! When they were little it was a favorite TV show/tape,

then video tapes specially bought or rented for the " touch times " when they

didn't want to sit.

You have to outsmart them. Figure out what THEY like that week and use it

wisely. I also use the incentive plan. " Why don't we do out treatments earlier

(7) then you can go out and play after.......... " well, that was useful in

the summer and as kids get older.

Never overlook bribes/rewards........for 28 days of Tobi they can pick out a

pack of baseball cards. A reward is something we give after completion of a

task.. A bribe is given BEFORE...........there is a difference.

Rosemary in NY with 3 children (13, 11 and 7)

with CF. I have a dog named TOBI and have

coined the phrase " BREATHE DAMMIT "

November 14, 2003

In a message dated 11/14/2003 6:11:33 AM Central Standard Time,

drea@... writes:

I think animals are all very curious of the vest and the nebulizer. Our dogs

like to sit by my girls to when they are doing there treatments. Deb A

November 14, 2003

What an awesome Idea, Deb! I think it's very creative!

Our cats always come and sit with us when is getting nebs and vest (they

used to come visit during PT too.) likes to ask the cat questions and

then we pretend that I can read her mind and I come up with silly answers. I