Re: More on research programme to screen for panc cancer

July 27, 2004

Wow that is a lot to happen. Sounds like an excellent way to get to

the bottom of things. If you are a member of the research, will

your insurance co still be billed for any treatments etc,?. She

also does the islet cells too. That is interesting. Maybe when/if

you need the total they will have the auto transplant down pat and

you might not have to worry about being a brittle diabetic. That

would be more then wonderful.

Do you have to sign up for the whole portion or were you allowed to

try it for a few months first? I know you can pull out anytime you

wish as is the case with all human research participants. This

Brentall; is she a micro surgeon? That is the big deal with

my getting the tp/ict. Getting the microsurgeon to harvest the

cells; and of course the necessary equipment. It sounds like a very

good study to be in.

It should be interesting to say the very least what your mother's

medical history will show. I would also like to read the paper on

childhood pancreatitis. I beleive that all those years with back

spasms were actually my panc. The pain is the exact same and it did

not take long for me to recognize it at all! Actually your

practically a perfect candidate for this type of study. I'm proud

of you, it take a lot of courage to sign up for one of those.

Dont worry about the ercp, its not so bad, no so great. Just make

sure your totally sedated. An eus is a piece of cake. But I also

like to be well anesthestized for that too. When they call you

tomorrow with the info ask them about the anes and let them you then

that you are difficult to " sleep " and will need more anes then just

sedation. Trust me on this one sweety, I have been on both sides of

the bed for these things and anes is a definite must have. Please

let meknow when you have the eus scheduled.

A big Hello to Jim and take care Fliss

Love,

Chrissy

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