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Re: Torin's CF clinic

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Val,

Does the clinic do a throat culture on Torin at his 3 month visits?

Abby's clinic does this everytime that we go in. I am not sure that

all do though.

Torin's weight sounds great. You must be doing a really good job. I

wish that I lived closer. I'd come visit and take you and Torin to

lunch. You said that he ate something that you cooked. What was

it? Abby is a really good eater also.

Gale

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To Val, Torin's mom,

sounds like you guys had a good visit. That is about all they do when a child

is too young for PFT's. Check his breathing, height, weight, ears, nose &

throat, they usually check their pulse ox and look at their fingernails.

You said you had no friends in the USA. Well we can't come to visit but you've

got over 700 friends (I think that was the last number quoted) right here on cf

parents! Feel free to lean on us.

I wish we could be real life friends but this is better than no friends!!

love to you and all cf parents,

M

Mom to Nick age 21 nocf and age 19 wcf

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I speak English and sometimes have problems communicating in that language!

Happy Shopping. The stores here in NY all opened between 5 and 6

AM............at 7:15 woke me to take him to the store to buy a CD - reward

for 28

days of Tobi.

YEAH!!!!!!!!! We are done w/ the Tobi today - not my dog....the inhalation

treatment.......

Rosemary in NY with 3 children (13, 11 and 7)

with CF. I have a dog named TOBI and have

coined the phrase " BREATHE DAMMIT "

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  • 2 months later...

YEAH!!!--------

Well the good news is that your best friend is coming & you will have a

wonderful time. & she will also help you too. Now that will take away a

lot of your stress. It wont hurt to stop nursing now. He has had a

really good start . It is the first child & easy for you & the colstrum

at first is what helps them & their immune system .

I nursed all five of mine & stopped each one when I was pregnant with

the next one. I actually had 7 in the first 9 years I was married. I

lost 2-- but I nursed all of them & they have done well. BUT-what the

doctor is saying , now you need to be MOM & Val & take care of you &

Torin & your hubby.

You will see .Torin will eat fine & still grow great. AND you will also

get back in shape & not be sad & depressed. Now is a good time as your

friend is coming & you all . You-she-Torin can do fun things during the

day too. She can help you , etc. Sooooooooooooo

Have a wonderful evening & super weekend ahead. Start planning for your

friends visit

sorry its so long:):)

LOVE & HUGS, grandmomBEV

torin's CF Clinic

we went to the clinic yesterday. Torin was such a good boy...really

serious but didn't fuss at all.

They said that his weezing and cough could be becouse of the reflux

or astma (sp?). They increase his pulmicort from .25 to .50 and he

will take zantac twice a day 1.6ml. He should be ok. they didn't do

any test...but I think next visit they will do it coz it will be 1

year since we went to the clinic for the first time.

He just gain 1/2 pound this month but he is over the 50% to

height...I believe 70%...and the " fat measure " increased too. Yesterday

for the first time after he was a newborn he vomit a

lot...like all his food ( 8oz of baby food)...I was so

frustrated...he has been ok since then...but I am scared of feeding

him...my mommy said it is normal...sometimes kids do it... Ah...my best

friend is coming to visit me from Brasil...she will

stay w/ us for 3 weeks...I will have someone to talk and help

me...It will be so cool to have a best freind again...

My dog, Freak, has a ear infection and I can't take him to the vet

until friday...it makes me feel so guilt...I am spoilng him a lot

but he is in pain and I blame myself coz I don't know how to drive

and I need my husband to do it for my doggie. Friday we are going to

see a house in my in laws city. We are trying to buy a house but it

needs to be a house that do not need any big work to get the fHA

loan. And it seems that all houses needs some work...

My doctor wants me to stop breastfeeding coz they think I need

antidepression (sp?) medicine...but I am not sure if it worths... I

am having big mood swings and I thought it was hormonal balance

problems...but when I told the doctor my son has CF she decided that

I was depressed...

Sorry for the long e-mail...but I just want to share a little bit w/

my friends on-line.

hope everybody is ok...and those who I know that are not I keep them

in my thoughts.

love

val

mum to torin 1 yowcf , 31'' and 22lb 8oz

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

------------------------------------

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dont give up breast feeding, try Magnesium every day and vitex a herb to

balance out your hormones, as long as you are not on the pill you can take

it. Go and see a herbalist or something of the same and get your health

back for the sake of you and your son. I went through the same thing as you

depressed after my son and I am still breast feeding and now no depressed, I

had to look after my self more.

Take care

Medical herbalist

New Zealand

torin's CF Clinic

> we went to the clinic yesterday. Torin was such a good boy...really

> serious but didn't fuss at all.

> They said that his weezing and cough could be becouse of the reflux

> or astma (sp?). They increase his pulmicort from .25 to .50 and he

> will take zantac twice a day 1.6ml. He should be ok. they didn't do

> any test...but I think next visit they will do it coz it will be 1

> year since we went to the clinic for the first time.

> He just gain 1/2 pound this month but he is over the 50% to

> height...I believe 70%...and the " fat measure " increased too.

> Yesterday for the first time after he was a newborn he vomit a

> lot...like all his food ( 8oz of baby food)...I was so

> frustrated...he has been ok since then...but I am scared of feeding

> him...my mommy said it is normal...sometimes kids do it...

> Ah...my best friend is coming to visit me from Brasil...she will

> stay w/ us for 3 weeks...I will have someone to talk and help

> me...It will be so cool to have a best freind again...

> My dog, Freak, has a ear infection and I can't take him to the vet

> until friday...it makes me feel so guilt...I am spoilng him a lot

> but he is in pain and I blame myself coz I don't know how to drive

> and I need my husband to do it for my doggie. Friday we are going to

> see a house in my in laws city. We are trying to buy a house but it

> needs to be a house that do not need any big work to get the fHA

> loan. And it seems that all houses needs some work...

> My doctor wants me to stop breastfeeding coz they think I need

> antidepression (sp?) medicine...but I am not sure if it worths... I

> am having big mood swings and I thought it was hormonal balance

> problems...but when I told the doctor my son has CF she decided that

> I was depressed...

> Sorry for the long e-mail...but I just want to share a little bit w/

> my friends on-line.

> hope everybody is ok...and those who I know that are not I keep them

> in my thoughts.

> love

> val

> mum to torin 1 yowcf , 31'' and 22lb 8oz

>

>

>

>

>

>

> -------------------------------------------

> The opinions and information exchanged on this list should IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> ------------------------------------

>

>

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Val,

I am glad to hear that your friend is going to visit!!!! I think it might help

all those mood swings, just having your best friend with you! That doc may be

wrong just making the assumption that you are depressed because of Torin's CF.

Of course you may be a bit depressed and maybe, now that he is a year old it is

time to go ahead and stop the breast feeding. It is hard to know if you really

need an antidepressant or not. I am all for them if the are necessary but if

they are not really needed, why medicate yourself? I guess you are the only one

who knows if you are really depressed or not.

I hope all goes well with the house!

torin's CF Clinic

we went to the clinic yesterday. Torin was such a good boy...really

serious but didn't fuss at all.

They said that his weezing and cough could be becouse of the reflux

or astma (sp?). They increase his pulmicort from .25 to .50 and he

will take zantac twice a day 1.6ml. He should be ok. they didn't do

any test...but I think next visit they will do it coz it will be 1

year since we went to the clinic for the first time.

He just gain 1/2 pound this month but he is over the 50% to

height...I believe 70%...and the " fat measure " increased too.

Yesterday for the first time after he was a newborn he vomit a

lot...like all his food ( 8oz of baby food)...I was so

frustrated...he has been ok since then...but I am scared of feeding

him...my mommy said it is normal...sometimes kids do it...

Ah...my best friend is coming to visit me from Brasil...she will

stay w/ us for 3 weeks...I will have someone to talk and help

me...It will be so cool to have a best freind again...

My dog, Freak, has a ear infection and I can't take him to the vet

until friday...it makes me feel so guilt...I am spoilng him a lot

but he is in pain and I blame myself coz I don't know how to drive

and I need my husband to do it for my doggie. Friday we are going to

see a house in my in laws city. We are trying to buy a house but it

needs to be a house that do not need any big work to get the fHA

loan. And it seems that all houses needs some work...

My doctor wants me to stop breastfeeding coz they think I need

antidepression (sp?) medicine...but I am not sure if it worths... I

am having big mood swings and I thought it was hormonal balance

problems...but when I told the doctor my son has CF she decided that

I was depressed...

Sorry for the long e-mail...but I just want to share a little bit w/

my friends on-line.

hope everybody is ok...and those who I know that are not I keep them

in my thoughts.

love

val

mum to torin 1 yowcf , 31'' and 22lb 8oz

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

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Val,

I think your biggest problem is being alone here. Is there anybody

else from Brazil around? Is there an University nearby? Usually teh

university may have a language program and a couple of teachers that

speak portuguese, that's usually a good contact point. You need to

try to learn how to drive, it will make all the differences in the

world. In the winter you can bondle up Torin and take him to a mall,

just to walk and see people, in the summer you can go to the zoo or a

park. I live in Memphis, TN. home of Fedex and we get a lot of newly

weds from Venezuela(pilots fly to Venezuela and marry there and bring

their wives here) we have now a group of women from Venezuela and we

meet once a month for coffee, etc. It helps a lot those girls that

are here for the first time. One of them had a baby not too long ago

and she was feeling very much like you until she found us.

I wish you were closer, you know we could speak spanish and you would

understand us.

Love to you and keep the faith,

> dont give up breast feeding, try Magnesium every day and vitex a

herb to

> balance out your hormones, as long as you are not on the pill you

can take

> it. Go and see a herbalist or something of the same and get your

health

> back for the sake of you and your son. I went through the same

thing as you

> depressed after my son and I am still breast feeding and now no

depressed, I

> had to look after my self more.

> Take care

>

> Medical herbalist

> New Zealand

> torin's CF Clinic

>

>

> > we went to the clinic yesterday. Torin was such a good

boy...really

> > serious but didn't fuss at all.

> > They said that his weezing and cough could be becouse of the

reflux

> > or astma (sp?). They increase his pulmicort from .25 to .50 and he

> > will take zantac twice a day 1.6ml. He should be ok. they didn't

do

> > any test...but I think next visit they will do it coz it will be 1

> > year since we went to the clinic for the first time.

> > He just gain 1/2 pound this month but he is over the 50% to

> > height...I believe 70%...and the " fat measure " increased too.

> > Yesterday for the first time after he was a newborn he vomit a

> > lot...like all his food ( 8oz of baby food)...I was so

> > frustrated...he has been ok since then...but I am scared of

feeding

> > him...my mommy said it is normal...sometimes kids do it...

> > Ah...my best friend is coming to visit me from Brasil...she will

> > stay w/ us for 3 weeks...I will have someone to talk and help

> > me...It will be so cool to have a best freind again...

> > My dog, Freak, has a ear infection and I can't take him to the vet

> > until friday...it makes me feel so guilt...I am spoilng him a lot

> > but he is in pain and I blame myself coz I don't know how to drive

> > and I need my husband to do it for my doggie. Friday we are going

to

> > see a house in my in laws city. We are trying to buy a house but

it

> > needs to be a house that do not need any big work to get the fHA

> > loan. And it seems that all houses needs some work...

> > My doctor wants me to stop breastfeeding coz they think I need

> > antidepression (sp?) medicine...but I am not sure if it worths...

I

> > am having big mood swings and I thought it was hormonal balance

> > problems...but when I told the doctor my son has CF she decided

that

> > I was depressed...

> > Sorry for the long e-mail...but I just want to share a little bit

w/

> > my friends on-line.

> > hope everybody is ok...and those who I know that are not I keep

them

> > in my thoughts.

> > love

> > val

> > mum to torin 1 yowcf , 31'' and 22lb 8oz

> >

> >

> >

> >

> >

> >

> > -------------------------------------------

> > The opinions and information exchanged on this list should IN NO

WAY

> > be construed as medical advice.

> >

> > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

> TREATMENTS.

> >

> > ------------------------------------

> >

> >

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