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Re: note to some

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Glenda, thanks for letting me know about the eyes., count your blessings. I go to the drs. in the morning and will aslk about an eye dr. a specialist. I hope my dr. will give me a patch for the pain I get from rubbing inside arm against my clothes. this is left over from shingles, it is almost as bad as pain from RP. I sure want to thank everyone for all the different sugguestions and I'll take them to the dr. and match them with a good dr. It is so hard when dr.s don't listen to you and think they know more then us when we are the ones that know RP almost better then them. It is horrible when those working in the office are more then rude, it makes things worst for everyone and widh they were on the receiving end of it. Noone should be allowed in public working force without people skills. some days I wish I coould teach them a thing or two!!! My prayers go out to everyone and hope Thurs. will be a better day for all. Have a good night. your friend Sally

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Hi Sally,

Lucy here, did you say that you live in Fayetteville? I do live in Goldsboro and only about 45 minutes to an hour away. I would love to be able to meet you sometime and spend the afternoon talking and comparing notes. I have not seen anyone else with the "mess" since I was diagnosed in Jan. 2000. Did you get my poor e-mail with the words going up and down? I had to go out and buy a new keyboard cause the kids or somebody spilled something in my other one.

Please do not hesitate to call me sometime. I will look forward to hearing from you soon.

Love and Prayers, Lucy

-- Re: note to some

Glenda, thanks for letting me know about the eyes., count your blessings. I go to the drs. in the morning and will aslk about an eye dr. a specialist. I hope my dr. will give me a patch for the pain I get from rubbing inside arm against my clothes. this is left over from shingles, it is almost as bad as pain from RP. I sure want to thank everyone for all the different sugguestions and I'll take them to the dr. and match them with a good dr. It is so hard when dr.s don't listen to you and think they know more then us when we are the ones that know RP almost better then them. It is horrible when those working in the office are more then rude, it makes things worst for everyone and widh they were on the receiving end of it. Noone should be allowed in public working force without people skills. some days I wish I coould teach them a thing or two!!! My prayers go out to everyone and! hope Thurs. will be a better day for all. Have a good night. your friend Sally DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

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