Re: ADMISSION FIASCO

November 17, 2003

MOAN........ if that was me I would scream so loud YOU would hear me!

OMG that is so awful.

sounds wonderful!!!!!!!!! Is your daughter still into Rugrats?

Rosemary in NY with 3 children (13, 11 and 7)

with CF. I have a dog named TOBI and have

coined the phrase " BREATHE DAMMIT "

November 18, 2003

Dear ,

What a crappy day. I am soooooo sorry about that. I am glad you held your

ground on the bedding arrangements tho. It has to be upsetting to you as

well But it is a necessary point to get thru to them.

I don't like the idea of anyone else in the room though. Hopefully , they

will not have to do that in the end.

Brain is sweet to take you all out to eat. You sure don't need to do that

with all the stuff today.

Please know I am keeping you all in my special thoughts for this to

improve. & sweet Eilish feels better & all cleaned out soon.

LOVE & HUGS, grandmomBEV

ADMISSION FIASCO

We left home just after 6am for her admission at 7am. First thing to

worry over was the bed situation. Apparently there are no other cf kids

in the ward, except those ones in the side rooms. Eilish would then be

'okay' to go into a 4 bed bay with non infectious kids. Apparently if

any other cfers with PA etc. come in they will put her in a side room.

This is totally against what we have always done. and I fought

all morning with the registrar, cf co-coordinator etc. Then at 12.30

p.m. we were still waiting for her PICC line to be put in. About 12.45

the god awful registrar came in to tell me the radiography machine used

for it had broken down. They were sending her home and to come back

Thursday. That was the straw that broke the camels back. I stormed out

of there and cried all the way home. It was everything on top of each

other. Do they think we have nothing better to do than sit there for 5

hours for nothing. So is asking his work if he can have Thursday

off to take her as I just don't want to take her again. The cf

registrar phoned me a short time ago to tell me that they will not put

Eilish at risk and as soon as anyone with any PA etc. come in she will

be moved. The thing is she will love it as for the first time she will

have people to play with, but how on earth will we get any sleep let

alone privacy. Then when poor stays it will probably be with

other mothers in the room, so they will all feel uncomfortable.

I just hate this crap. So now I am waiting to enrol to up date my CPR

certificate before I can do home IV's. You have to have a current

certificate to be able to do that here. Mine has expired. I feel so

totally drained all I want to do is sleep. is taking us out to

dinner tonight.

Sorry to moan but it has been a very awful day.

(Australia)

November 18, 2003

,

That was a very awful day! I hope that it is a completely different

experience on Thursday. How did Eilish hold up? I'm glad that you

have . He's always so supportive.

Gale

> We left home just after 6am for her admission at 7am. First thing

to

> worry over was the bed situation. Apparently there are no other cf

kids

> in the ward, except those ones in the side rooms. Eilish would

then be

> 'okay' to go into a 4 bed bay with non infectious kids. Apparently

if

> any other cfers with PA etc. come in they will put her in a side

room.

> This is totally against what we have always done. and I

fought

> all morning with the registrar, cf co-coordinator etc. Then at

12.30

> p.m. we were still waiting for her PICC line to be put in. About

12.45

> the god awful registrar came in to tell me the radiography machine

used

> for it had broken down. They were sending her home and to come back

> Thursday. That was the straw that broke the camels back. I

stormed out

> of there and cried all the way home. It was everything on top of

each

> other. Do they think we have nothing better to do than sit there

for 5

> hours for nothing. So is asking his work if he can have

Thursday

> off to take her as I just don't want to take her again. The cf

> registrar phoned me a short time ago to tell me that they will not

put

> Eilish at risk and as soon as anyone with any PA etc. come in she

will

> be moved. The thing is she will love it as for the first time she

will

> have people to play with, but how on earth will we get any sleep let

> alone privacy. Then when poor stays it will probably be with

> other mothers in the room, so they will all feel uncomfortable.

>

> I just hate this crap. So now I am waiting to enrol to up date my

CPR

> certificate before I can do home IV's. You have to have a current

> certificate to be able to do that here. Mine has expired. I feel

so

> totally drained all I want to do is sleep. is taking us out

to

> dinner tonight.

>

> Sorry to moan but it has been a very awful day.

>

> (Australia)

>

November 18, 2003

,

I mailed Eilish a card and some stickers the middle of last week.

The post office told me that it would take about 6 days to get

there. I wanted her to get it the day after she got to the

hospital. I am going to mail another card today, in case she never

gets the first one. I am guessing that little girls like to get

mail. My kids always loved it when something came in the mail for

them. I hope that your spirits are higher today.

Gale

> We left home just after 6am for her admission at 7am. First thing

to

> worry over was the bed situation. Apparently there are no other cf

kids

> in the ward, except those ones in the side rooms. Eilish would

then be

> 'okay' to go into a 4 bed bay with non infectious kids. Apparently

if

> any other cfers with PA etc. come in they will put her in a side

room.

> This is totally against what we have always done. and I

fought

> all morning with the registrar, cf co-coordinator etc. Then at

12.30

> p.m. we were still waiting for her PICC line to be put in. About

12.45

> the god awful registrar came in to tell me the radiography machine

used

> for it had broken down. They were sending her home and to come back

> Thursday. That was the straw that broke the camels back. I

stormed out

> of there and cried all the way home. It was everything on top of

each

> other. Do they think we have nothing better to do than sit there

for 5

> hours for nothing. So is asking his work if he can have

Thursday

> off to take her as I just don't want to take her again. The cf

> registrar phoned me a short time ago to tell me that they will not

put

> Eilish at risk and as soon as anyone with any PA etc. come in she

will

> be moved. The thing is she will love it as for the first time she

will

> have people to play with, but how on earth will we get any sleep let

> alone privacy. Then when poor stays it will probably be with

> other mothers in the room, so they will all feel uncomfortable.

>

> I just hate this crap. So now I am waiting to enrol to up date my

CPR

> certificate before I can do home IV's. You have to have a current

> certificate to be able to do that here. Mine has expired. I feel

so

> totally drained all I want to do is sleep. is taking us out

to

> dinner tonight.

>

> Sorry to moan but it has been a very awful day.

>

> (Australia)

>

November 18, 2003

,

Please, moan all you want!!!! That was horrible. Every time

has had to be admitted (save the last time) we have been put in a

room big enough for 2 beds but it had 3 beds in it. They usually

only do that for the first couple of nights and then they put us in a

double or private room. by the end of every admission we have been

in a private room for about a week and a multiple occupancy room for

at least a few days. They never put her in with anyone who is

infectious and usually we are in with some nice people though we have

had our share of bad roomates (actually it's not so much the room

mates as their parents.....) Then to sit all that time waiting

around for the picc and not getting it.....UUUUGGGHHHH! I feel for

you!

> We left home just after 6am for her admission at 7am. First thing

to

> worry over was the bed situation. Apparently there are no other cf

kids

> in the ward, except those ones in the side rooms. Eilish would

then be

> 'okay' to go into a 4 bed bay with non infectious kids. Apparently

if

> any other cfers with PA etc. come in they will put her in a side

room.

> This is totally against what we have always done. and I

fought

> all morning with the registrar, cf co-coordinator etc. Then at

12.30

> p.m. we were still waiting for her PICC line to be put in. About

12.45

> the god awful registrar came in to tell me the radiography machine

used

> for it had broken down. They were sending her home and to come back

> Thursday. That was the straw that broke the camels back. I

stormed out

> of there and cried all the way home. It was everything on top of

each

> other. Do they think we have nothing better to do than sit there

for 5

> hours for nothing. So is asking his work if he can have

Thursday

> off to take her as I just don't want to take her again. The cf

> registrar phoned me a short time ago to tell me that they will not

put

> Eilish at risk and as soon as anyone with any PA etc. come in she

will

> be moved. The thing is she will love it as for the first time she

will

> have people to play with, but how on earth will we get any sleep let

> alone privacy. Then when poor stays it will probably be with

> other mothers in the room, so they will all feel uncomfortable.

>

> I just hate this crap. So now I am waiting to enrol to up date my

CPR

> certificate before I can do home IV's. You have to have a current

> certificate to be able to do that here. Mine has expired. I feel

so

> totally drained all I want to do is sleep. is taking us out

to

> dinner tonight.

>

> Sorry to moan but it has been a very awful day.

>

> (Australia)

>

November 18, 2003

, I'm so sorry they were such pigs in admitting. I hope you guys continue

to stand your ground and give them the old " what for. " Boy I hate it when I

have to be the bitchy mom, but there are times when it has to be done, after all

they don't have anything to lose since it isn't their kid.

Dawn mom of 4, 7 and under, the youngest wcf

November 18, 2003

,

Remember to take care of yourself too! You won't be any good to anyone if

you are sick and tired.

Tina W., mother of Steph, 18yo wcf