Re : Very Disappointed Now

[Guest guest]

Hello Jean,

Of course I don't know anything about your daughter's condition nor

do I know what her doc has said. There is a state called " burn-out "

which sometimes occurs when the pancreas has ceased to function at

all. In some cases, the pain itself diminishes greatly at that

stage, or even disappears completely. This may be what your daughter

is hoping for. Burn-out doesn't always happen; it's by no means

inevitable. Sometimes it takes years and years to reach and in other

cases it's quite rapid.

Heidi has reached burn-out although her case is complicated by the

pseudocysts. She has posted more than once about this so I know she

won't mind my mentioning it. She will probably tell you more herself

now.

I am not diabetic yet so my pancreas is still producing insulin.

However, my docs think I'll be diabetic very soon. My pancreas has

little, if any, digestive function left and my CP is " end-stage " . I

have had some pain-free time over the last few months. I am hoping

this is " burn-out " starting but it may just be the effect of the

Creon or, of course, simple chance.

I hope for the very best for your daughter. I have been aware for a

long time how worried you are about her.

With good wishes,

Fliss