Need Advise and Help Please

[Guest guest]

Hello Everyone I need eveyones Help Please

I have had CP for about 6 or 7 years now and have had every test on

the board done to me. I am pain all the time and I am so tirred and

sick and Tirred of it I am depressed and its ruining my life at home

and work. I went to the GI doctor today. This is a new guy but an old

GI docot he did a pancreatic stent some years back and I had

complications with the ERCP and the stent. I had a very very bad

episode of accute pancreatitis I was so much pain and sick I was

admitted for about 6 weeks I was on Antibiotics and all meds and

everything. I was in so much pain and uncomfort it wasn't funny. It

was so bad that my oxygen level was low that they kept me on O2 while

i was there. Then about 5 years ago I got another ERCP done and the

same thing happend A ver very very bad flare up the MD told me in the

ER if i didn't come in that nite i could have died that nite. He also

told me that if i didn't slow my breathing he would intubate me

there.I couldn't help it I was in so much pain i couldnt breathe.

Needless to say that I was in that hospital for 2 months and on every

med known to man about GI MEDS.I couldnt move the nurses had to wash

me and move me in the bed it was not fun. Then I got out went home

and 2 days later i was back in the hospital i had thrown up all over

the pharmicist at the Pharmacy. I was back in the hospital for

another 2 weeks. I know that they say the chance of you getting

Pancreatitis from an ERCP is like 50 50 but with me its more like 90%

10% and im scared very very scared. The doctor that I saw today is

the best doctor in the field specially on odd cases like mine. I mean

if I get it done I could get really sick and end up in the hospital

for a long time and probally lose my job and the stress on my wife

and I, we are having a baby in August and it will be very hard to

deal with that and me in the hospital and then there is the final

thing and if it is that bad then its death. I mean it could happen if

its bad. But there are possitive parts to. I mean i could be better

for 8 months or so and then he could tell me and recomend if I should

get the surgery now or what ever with that. I really dont know what

to do. I am confused and lost here and I need help from you guys. I

know that you have the same rotten horrible disease that I have and

you will understand me more than other people will. My wife and I

talk about it but she doesn't understand the pain and everything that

will come with it. I dont know and im getting so stressed out

thinking about it. I mean I need your help tell me what you think I

should do what is your opinion. I do respect all of your opinions and

trust them because you know what it is and what I am going through

because you have gone through it or know about it. SO please help me

out and tell me what you think. See I know that if i get the test

there is a 95% chance that ill be sick from it because of the times

before. So I am reaching out to you guys for your help and advise on

this matter. Please i am willing to take anything that you have to

offer. I am begging you for help on this I cann't make this decision

on my own I need help. Oh he also tested me for Cystic Fibrosis and

wants the last CT scan and he wants me to get a Gastric Emptying

test. I am fine with all of that. I told him my CT is normal and my

labs are always normal but that is because of long long abuse on the

pancrease without anyone teding to me. PLease again anyone give me

your opinion and in put on what you think that I should do PLease. I

know that this not is long and I do appologize for it but it is

needed. I need the help and im reaching out to you my pancrease

family. Thank you for anything that you may contribute by thought or

by here or Email. Please again Help me if you can. Its just and

opinion maybe one of you have been in my or are in my case now and

can help me out. Oh also he wants to do a Permanant Nerve block but I

dont want that tell me about that as well. thank you again everyone.

Thank you

Gio