Advice

[Guest guest]

Hi Everyone:

I seem to be at a point in my cp where I take pain medication every single day,

suffer with nausea and tiredness most days, not to mention depression that comes

and goes. The last ERCP that I had done in June 2003, has been the last

procedure that I've had done, in fact just about the last thing I have done at

all related to my cp, other than my monthly visits to the pain specialist.

My husband and I feel like there is something that we should be doing, but we

don't know what it should be. I am supposed to have an appointment with a

rhematologist this Thursday, but really don't know what that might have to do

with cp. Does anyone have any thoughts on that? My husband thinks I should go,

on the theory that you never know, I don't feel like going through the whole

story with someone who won't be able to help me. Unless those of you with cp,

have had success going this route.

Of course, then we run into the problem of taking time off from work for

doctor's appointments. I got laid off from my job of nine years a month ago,

and started a new job two days later. My new job knows that I was very sick

last year, and that I have a chronic illess, but don't know of course all that

entails, so I am nervous to start taking alot of time off for appointments. I

already have to go once a month to the pain doctor.

So, is anyone else in the same boat? Seem to just be in a holding pattern, not

getting worse, but definitely not getting better. Where am I supposed to go

from here?

Any and all thoughts would be greatly appreciated.

Robin