Diagnosis and coeliac/SOD link/GF diet

[Guest guest]

Thank you for this link Margaret.

I have never been told I have SOD. My CT scan just indicated

extensive calcifications throughout the pancreas together with

atrophy.

At the time (1988) of the coeliac diagnosis, I have to say that my

improvement on the GF diet was magical and immediate, even more so

when I eliminated lactose. However, it was never complete. The

symptoms of bad pain, especially, together with malabsorption again,

returned about 1999, never having gone away completely. Only with

the CP diagnosis, the introduction of Creon and the elimination of

alcohol totally as well as acceptance of low-fat meals, has there

been more relief.

I may have both diseases or it may be that the GF/no lactose diet

automatically cut down on fats and so helped the undiagnosed CP back

in 1988.

Undiagnosed? Yes, a common occurrence. Even though my fierce

abdominal pain went back to childhood, and my mother had

pancreatitis, my condition went undetected unless last year. I'm 58

now! In 1988 the CT scan and ERCP showed nothing. I'm afraid this

often happens.

Good luck to all with this bizarre, little-understood and mysterious

disease! I can empathise with everyone, having been ill with it

since the age of 5.

Fliss