Re: Re: Out of pocket yearly cost (after insurance)

[Guest guest]

,

Congratulations on the birth of your son! I think the costs vary from case

to case. One thing that has helped us is a flexible spending account. I am

guessing you know how they work. We have $1,000 account and I do not think

we are going to use all of it this year. Many of the CF medications are not

recommended/available in generic i.e enzymes and Pulmozyme. So, you should

plan on paying for some non-generic drugs. Also, for a while, you may be

going to the clinic every week. It is really going to depend on your son's

overall health.

Best wishes,

Colleen

Mom to Elyse 2 1/2 wcf

Re: Out of pocket yearly cost (after insurance)

#1) My email didn't get fully displayed in the prior message but it

is frankkatina at yahoo dot com . My instant messenger ID is also

frankkatina . Feel free to add me as a buddy.

#2) Ok, I will try contacting the social worker at the hospital to

find out the estimate of the costs.

#3) I think I would like to meet/chat other parents of CF children in

my area. So, if you are in NY, NJ area, let me know.

#4) My hobbies include fishing, religion, computer games,

investments, betta splendens, visiting parks.

#5) I am married with 3 children, 7, 2 and the new baby. The baby

boy was born with the meconium illeus, pellets in the intestine, high

level of something in the blood and one gene was already found.

#6) I work as a corp. credit analyst for an insurance co in NY. My

wife is housewife. We have very strong faith and hope that all will

be well, God willing.

Once again, feel free to email me. Remember, this message board

doesn't allow us to post the email link, so if you want to let others

know yours, do it like me frankkatina at yahoo dot com.

> Hi everyone,

>

> I am and my newly born baby boy most likely has CF. So, I am

> joining you guys.

>

> I do have health insurance but I would like to know if you could

> provide me with a rough estimate of how much I could end up

spending

> a year in health related matters. My insurance is with Aetna, which

> will cover " all expenses " but will also charge a co-pay of $35 per

> doctor specialist visit ($15 for non-specialist) and a co-pay of

$10

> for 90 day supply generic mail order.

>

> Basically, I want to get a rough estimate of how many doctor

visits

> I can expect to make, how many co-pays for mail order generics and

> other medical costs...

>

> Thank you for you kind attention,

>

>

>

> P.S. I am from Brooklyn, NY; am in the field of finance and run the

> most active " betta splendens " club in yahoo. For private talk, feel

> free to email me at frankkatina@y...

[Guest guest]

- I live in nassau County and have a nebulizer I could give you if you

need one. I bet your insurance has a rider for durable Medical Equipment.

Rosemary in NY with 3 children (13, 10.11 and 7)

with CF. I have a dog named TOBI and have

coined the phrase " BREATHE DAMMIT "