Torticollis with helmet

[Guest guest]

Hi everyone,

My son has been going to PT once a week for his tort for 3 1/2 months.

He's progressing, but it's going slowly. (He's 9 months) About a month

ago, he was fitted for a TOT collar. We have been loving it. Works

quite well. Well, he got his STAR band 2 days ago, and we learned that

he can't wear the TOT collar with it. We will still continue PT and

the stretches at home, but I can't help but think what do we do to

replace the success of the TOT collar? Cranial Sacral therapy?

Cranial oateopathy? Has anyone had this problem? I know most kids tort

is " cured " B4 the helmet, but not my LO. Help!

Kim

Mom of Jimmy

tort and plagio

STAR band - 2 days

[Guest guest]

Hi Kim, we have the same problem. My 1 year old son has been wearing a

helmet for 5 weeks now and we cannot put both the helmet and the TOT

collar on at the same time. Sometimes we put the TOT collar on while

his helmet is off (while we're waiting for his hair to dry or his

helmet to be cleaned), but there's no good way around it. Hopefully he

won't need the helmet for too long and we'll start using the TOT

collar when the helmet comes off!

>

> Hi everyone,

> My son has been going to PT once a week for his tort for 3 1/2 months.

> He's progressing, but it's going slowly. (He's 9 months) About a month

> ago, he was fitted for a TOT collar. We have been loving it. Works

> quite well. Well, he got his STAR band 2 days ago, and we learned that

> he can't wear the TOT collar with it. We will still continue PT and

> the stretches at home, but I can't help but think what do we do to

> replace the success of the TOT collar? Cranial Sacral therapy?

> Cranial oateopathy? Has anyone had this problem? I know most kids tort

> is " cured " B4 the helmet, but not my LO. Help!

>

> Kim

> Mom of Jimmy

> tort and plagio

> STAR band - 2 days

>