New to the list

November 18, 2003

Cindy, you definately did not bore me to tears. I think it is wonderful. It

is sort of like a testimony that we all have to tell about how our children

were diagnosed. My daughter was diagnosed on Christmas Eve, 1991, only 8 days

after being born. I, like you, had other " healthy " children. I did not even

know what the disease was. I had heard of it and there was a boy I went to

elementary school with who had it but I knew nothing about it.

Thank you for sharing your story with me. Good luck with your son. There

are so many exciting things going on right now with cf. , who at present

is home from school with " a touch of pneumonia " is supposed to start gene

therapy in December. Hopefully, there will be a cure soon. They told me when

was born that if one of my three had to have cf it was better that

did since just prior to her birth they had discovered the gene that

causes

cf and there is now hope. You will be amazed at some of the people on this

site. You know the current life expectancy for cfers, but you won't think they

included some of the people on this site. People can live long healthy lives

with cf. It is really amazing. Welcome!!!!!!!

Sue Pettit

mom to (17 wocf) driving and being the most responsible 17 yo I have

ever seen, (13 wocf) playing football, band, and whatever else he can

get into, and (11 wcf) into all sports, running full speed doing all

she can and still doing great---diagnosed at 8 days of age at LeBonheur

Childrens Medical Center in Memphis, Tennessee, now seeing Doctor Lyrene (and

other

wonderful folks of course) at UAB Children's Hospital

November 20, 2003

The diabetes may pass with the pregnancy; just enjoy the anticipation of a

prescious

new arrival; cf is not the only thing a child can be born with that is

life-threatening!

Besides, Fiona, you sound to be a really good mum and this way your first

child will

not be an only child!

Love to all of you,

n Rojas, wcf, mom of 3 unbearably adult adults, youngest wcf and doing

fine;

some doubt as to whether the mother is EVER going to grow up, though!

new to the list

> Hi I've been reading your comments for a while now and I thought I should

introduce myself. My name is Fiona. We live in Brisbane Australia. Our son

Jack was diagnosed at 1 mth with CF. He is 10 1/2 months now. He struggled

to gain weight early on but is doing really well now. His chest has been

clear so far.

>

> I am pregnant only a few weeks ahead of . I went for my first scan

and we couldn't see anything. The doctor thought that it was a failed

pregnancy. But we did find a tiny dot on the screen and I've seen the heart

beat now. I was very upset. We tried for 4 1/2 years for Jack and it was

such a surprise to be pregnant again and then you have all the worries about

whether the baby has CF and that was the last thing I expected to hear or

see. I'm being careful not to be too excited just to protect myself even

though I have now seen the baby. And on top of all that I have diabetes

already and I started on insulin today and my blood pressure is up as well.

I am just a picture of health especially with the morning sickness.

>

> Yesterday I went down to the childcare centre to talk them about Jack and

to put the next baby's name on the list. The waiting lists are really long

here. I haven't been back to work because of Jack but after talking with

them I don't think I'll be able to put him in until he is 3. It seems like

such a long time to have off work - I was a bit down about it - well I

suppose I will be busy with the next baby anyway. I mean I love being with

Jack but I hadn't planned to take so much time away from work. I suppose

that it just part of it all.

>

> I can't believe I've told you all that!

>

November 21, 2003

Fiona,

First, let me say, Welcome. This is a great place for support, the

people here are really caring.

Next let me say, thanks for telling us all that! it helps us to get

to know you if we know what is going on. Is is gestational

diabetes? I am worried about it, since my sister had it and I am

overweight to begin with....... by the end of my pregnancy with

, I had to have my blood pressure checked everyday.

Also I want to thank you for giving me a bit of hope. Maybe I will

be as lucky as you and they will see something developing in the next

few weeks.

Again, Welcome.

, mom of 5 with CF

> Hi I've been reading your comments for a while now and I thought I

should introduce myself. My name is Fiona. We live in Brisbane

Australia. Our son Jack was diagnosed at 1 mth with CF. He is 10 1/2

months now. He struggled to gain weight early on but is doing really

well now. His chest has been clear so far.

>

> I am pregnant only a few weeks ahead of . I went for my

first scan and we couldn't see anything. The doctor thought that it

was a failed pregnancy. But we did find a tiny dot on the screen and

I've seen the heart beat now. I was very upset. We tried for 4 1/2

years for Jack and it was such a surprise to be pregnant again and

then you have all the worries about whether the baby has CF and that

was the last thing I expected to hear or see. I'm being careful not

to be too excited just to protect myself even though I have now seen

the baby. And on top of all that I have diabetes already and I

started on insulin today and my blood pressure is up as well. I am

just a picture of health especially with the morning sickness.

>

> Yesterday I went down to the childcare centre to talk them about

Jack and to put the next baby's name on the list. The waiting lists

are really long here. I haven't been back to work because of Jack but

after talking with them I don't think I'll be able to put him in

until he is 3. It seems like such a long time to have off work - I

was a bit down about it - well I suppose I will be busy with the next

baby anyway. I mean I love being with Jack but I hadn't planned to

take so much time away from work. I suppose that it just part of it

all.

>

> I can't believe I've told you all that!

>

November 21, 2003

WELCOME & the best of wishes & super strong thoughts on this with you.

YES, it is wonderful you told us " all that " this is exactly what these lists

are for. To help us lift our own personal thoughts to others who WILL

understand & also be able to be helped & give help . UNDERSTANDING each

other is " HELP " also.

Your in the good hands people here...in the USA , we have an insurance

company that uses that statement , as their slogan in their advertising.

stateside folks will enjoy that humor, as for many with CF in the states ,

we have a very hard time with our medical insurance (those that can get it )

Your staying off work for 3 years might really help you get back on track

health -wise also . It will give you time to be with your children in those

stages YOU want to mold, so don't be disheartened by that. It is for a

reason, you will understand in time. Bless you & take care, being sure to

let us know as you grow:):)hehe

LOVE & HUGS,

GrandmoMBEV

new to the list

Hi I've been reading your comments for a while now and I thought I should

introduce myself. My name is Fiona. We live in Brisbane Australia. Our son

Jack was diagnosed at 1 mth with CF. He is 10 1/2 months now. He struggled

to gain weight early on but is doing really well now. His chest has been

clear so far.

I am pregnant only a few weeks ahead of . I went for my first scan