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Re: who has had a feeding tube?

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I had mine for a couple of months. The big thing with the tube is

they tend to sometimes get infected, and in my case, sepsis, which

almost killed me, forget about what the wipple did to me......

good luck

R

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> Hi all,

>

> Went back to Indiana University to see Dr. Fogel yesterday

and he wants to do another EUS with possible stenting. He also

wants to see if he can find any scar tissue or anything else that

might suggest why I have been in the hospital so much lately. He

also mentioned highly that I have a feeding tube put in because I

cannot each hardly at all. Who knows about this. Who has had one.

What is it like. Can you eat anything by mouth? He wants to put it

so that it will bypass the pancreas so the pancreas doesn't have to

work at all and this should help to keep me out of the hospital when

I do get a big attack.

>

> I would appreciate anything anyone has to say about this. I

don't know anything about it.

>

> Please advise.

>

> Thanks.

>

> T. (ohio)

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Guest guest

I had a failed Whipple procedure in Feb. of this year. I woke up

post op with a J-tube which basically goes into the upper intestine.

It worked fine while I was hospitalized. When I went home I started

the gradual return to real food routine and that went well. We

decided to leave the tube in for a month with daily flushing and

general wound care at the site. We wern't sure how well I was gonna

make it at home and wanted to have it in place in case I was re-

admitted. Before the month was up I was admitted to my local

hospital. They chose to put me on TPN instead of using the J tube.

To make a long story short, it had to be pulled out due to both site

infection and intestinal infection and blockage. I wouldn't have

another one for any reason. Most of my good arm veins are pretty

well shot from all the use over the past 4+ years so, I'd opt for a

central line (with all it's inherent risks) or TPN in whatever vein

they can find that works.

More questions?...just ask !!

Best of Luck,

Knox

Northern Ca.

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  • 2 weeks later...
Guest guest

Leanne, after dropping 90 pounds this past year, we're getting

mobelized for a semi permenent, at least long term look at

maintaining nutrition... I have had the NJ tubes many times as well

as picks with TPN, but this is the first time I heard the buzzword

Jtube... Could you tell me more about it.. Is this the same as the

abdominal peg?

Thanx,

ricki

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