Re: Re: New to CF Group.

[Guest guest]

If you would like some info /tapes----let me have your mailing address & I

ill send to you if you are in the states-no charge. I wish you well in this

..It can be wonderful to see those little ones get all " schooled "

excited--Then it will also give you a wee break during day too. They usually

LOVE school .

being careful to follow all the " clean hands, don't share drinks, food,

etc. for cross infection protection. rules...Also that the teachers are

aware. That is one of the great booklets I can send......one to give the

school folks

LOVE & HUGS

GrandmomBEV

(ERIN, is 19+ & has CF-in college now) I have 9 others -no CF & 5 children

of my own too)I taught school

20 years before she was even born:):)

Re: New to CF Group.

Thank you for your insight. I would love to hear your thoughts on

all aspects of raising a child with CF. In particular I would like

to know about school. I have a 4 year that will start kindergarten

next year.

mom of Carson (4yrs with CF) and Will (18 months without CF)

> Hi

> I'm Natalia and I am 24 with CF. I was diagnosed when I was really

> little, A couple years old. I did well throughout high school and

okay

> throughout University, but those 5 years of school really worn me

down.

> High school is bearable compared to University, where there is

not

> enough time to do all the school stuff, let alone CF stuff. So I

> graduated this past May and came crashing down since then. one

flare

> up after the other. Never really bouncing back from each previous

one.

> Now I am on IV treatment for a month at home. I live alone and

it

> still works out really well. The nurse comes every morning to

change

> the bag, though I am learning how now, so in a few days I will do

it by

> myself. They will only come every 4-5 days to change the line. So

it

> gives me a sense of independence. I am having it out on Christmas

> day. I was on the same treatment in June, but only for 10 days and

> really it did very little for me. So who knows what this will do.

I

> also started to take steroids, first time for that, and already it

has

> helped with my appetite a lot. I have lost 16lbs during the

summer,

> and seem to be losing more daily. So I hope this helps.

> About non-CF stuff. I went to University for architecture, but

soon

> realized that I cannot practice within that field. I get too sick

too

> often. So I started my own business designing hand-bags and

jewelry,

> and it has been going well. Kinda exciting, considering I thought

that

> I would never be self-sufficient. Which is as painful of a

realization

> as CF taking over your body. I don't know which is worse.

> I would like to meet some of you, especially those young adults out

> there with CF. Dealing with the uncertainly of their future. Plus

I

> can give advise to those of you that have little ones. I want to

share

> experiences and help you any way, since I dealt with all of it.

Plus I

> was a fairly active kid and teenager, never allowing anything to

stop

> me. And I have some strong view points about exercise and CF, as

well

> as life choices with respect to Educations and career choices.

> I love to share, and hope to learn from you, as well as share my

own

> life struggle with CF. It's a hard thing, and all those on this

list

> who deal with it, by either being parents, siblings, friends, or

are

> carriers themselves, you are strong people.

>

> Natalia

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The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

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[Guest guest]

Hi everyone,

This is my eBay website:

http://www.stores.ebay.ca/janespeedinpink

I live in Toronto, Canada.

I am very happy to share with you guys too. Especially since I am a

little bit house bound with my IV and all and not feeling that well.

Thanks for the support!

Natalia

wCF 24