Re: Robyn

[Guest guest]

Hi Robyn,

So nice to hear from you after such a long time. So

you're official now, huh? RP for sure. Sorry, but

glad that you have such a great team of doctors

anyway. You take care and post when you feel like it.

Love, squeek

--- A Birdie wrote:

> Heidi:

> So sorry to hear about Don's problem

> I fequently have this same problem. I broke the

> head off the humorous at my

> left shoulder, and after failed attempts to " pin' it

> , they finally said

> they " crazy-glued " it back with a compound that they

> could also " mould " me a

> new head (on the humorous) to fit into my shoulder

> socket.

> My rheumy has told me that there is presently some

> studies going on RE:

> these types of " foriegn " compunds being used in our

> bodies which MIGHT be

> factors leading to us developing this rare

> autoimmune disease (RP)!!

> I also have flareups with the lymph node in my L

> groin area, and under my

> arm pits, but the worse " blowups " are always my

> shoulders, & neck.

> If I've learned nothing else, I have learned to get

> to my Dr's ASAP.

> It's just a yr. ago that they started all these

> tests & i found this group,

> but only three weeks ago that I got my " official " RP

> diagnosis.

> I need to tell you that I " monitor " the RP site, but

> have not been active

> because I guess I'm a bit overwhelmed, frightened,

> and (cn u believe it

> ....ME ....) at a loss for words.

>

> The emergency runs to hospital over the past years,

> the 3 or 4 specialists

> who have all had their " crack " at me are now on my

> official team, and I am

> blessed with a super family DR. But it's because of

> monitoring this site,

> and hearing from folks like you, that I have learned

> to " become involved "

> and let my Dr's REALLY know my needs.

>

> THANK YOU, THANK YOU, THANK YOU, to everyone in the

> group, who answers my

> querries, and especially to you Heidi, for adding me

> to your " personal "

> e-mail list. I've been staying away from the RP

> site, these past few weeks.

> Guess I'm still in a bit of denial eh?, so seeing

> your e-mails in my mail

> box, have been of more value than you'll ever know.

>

> I hope you soon will let us know that you're at

> least a little bit happier,

> and don't forget to get Mr. Ornery to take his

> medication at the right

> times, and all his vitamins, so it will soon be

> " back in it's sleep mode " !

> Fondly,

> Robyn

> Sent on the wings of a Robyn!

>

>

>

>

> Reply-To: Rpolychondritis

> To: " RP GROUP " <Rpolychondritis >

> Subject: I not happy !!!!!

> Date: Thu, 22 Aug 2002 12:09:43 -0500

>

> Hi There !!!

> I am not a happy camper today !!! Mr.

> Ornery is having a Problem once again.

> His Neck and Shoulders are swollen once more.He

> looks like he has 2 Ostrich

> eggs

> around his Neck and shoulders.

> He done that once before and ER

> Dr. did not know what it was. The Only thing the ER

> Dr. said back then was

> mmm it is still swelling and I don't know why. So

> today we went to our

> regular Dr. and he is ordering a

> MRI. He thinks it is a fluid Collection.It has

> something to do with all your

> Lymph notes.

> Gee that Man is giving me some more gray hairs. LOL

> I hope and pray this

> time the get to the Bottom of this problem.So for

> now all we can do is hurry

> up and wait.Has anyone else ever had this Problem

> ???? Till later be good

> and Pain free OK.

> Love

> Heidi

>

>

>

>

>

>

>

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