Two year old needing comfirmed or not????

[Guest guest]

To any one with 2 cents to share,

We where kind of anxious to get our two year old (who has confirmed autism and

we assume CD and colitis) checked out to be confirmed by colonoscopy and

diagnosed with her form of intestinal disease.

With her last lab tests, her makers came back positive for a form of IBD such as

Crohns or ulcerative Colitis. Her seizures have vanished but they still want to

do an EEG and MRI too. Great improvements with SCD but she still is struggling

in many ways.

I have been so worried about having her looked at by scope or this MRI. She is

also very sensitive to medications. They would have to nock her out with

something for both procedures. Plus she is so small. Only a mere 21 pounds,

after this last flare she had...lost some. She also has had strange reactions

to meds, that are not typical or explainable. Just like her mother.

We now know that she came to SCD sicker than we first suspected.

WE already assumed CD, since me and my husband are confirmed by bipsosy....CD,

and IBD run on both sides of the family too! But worried that her care might

change if she was confirmed. At this time without confirmation (colonoscopy)

they will do nothing for her pain...she often ends up in the hospital with

diarrhea and they call it a VIRUS. Which I know it is not.

Would it help to have validation? Dose anybody know????? What else could they

give her for IBD (Crohns or ulcerative Colitis)?????

So far SCD is the only intervention that has worked. WE will have to go back to

intro again, to get her back on track. Even if she begs for it...NO MORE RAW

FRUITS OR VEGETABLES. The poor thing.

I already suspected that she had ulcerations due to the little blood and mucous

we use to see (prior to SCD). In our first days of SCD and Pecan BREAD, the

protease in the enzymes that we wanted to try (that are frequently recommended

for ASD kids) sent her almost into the hospital proving this.

At the time I didn't know that people with ulcerations are warned not to use

enzymes with protease. Eight months out this bleeding and mucous is now gone.

Along with many of her autistic symptoms. So we are trying the enzymes again.

I think we will have to stop them during this crises. What do you think about

this?

Any input welcome. I also have been told horror stories from other mothers

whose little ones have been looked at by scope. For some this is very painful

after wards and can be dangerous to the organs...even if they do nock the child

out. We are now truly scared now to pursue this. What if she reacted to the

anesthesia??? Or they hurt her intestines??? I can't imagine how fragile she

is inside...heck her out side is so little.

I too have suffered from iatrogenic troubles (caused by the medical community)

and all their drugs and remedies. I have died almost six times now. I can not

imagine this happening to my little girl. Most doctors do not understand

chemical sensitivity and how deadly it can be. This fear is paralyzing me.

Help guys. Talk about having faith in Elaine. God, I wish I could speak to her

now. Can you guys speak for her????? OR give your best effort. I need hope

now.

Lucy at Lucy's Kitchen said that Elaine use to say " Two step forward...one step

back " ....my God this is going to be a long four years healing her, if this is

the case.

Thanks, Antoinette and (cd) parents to Kiki-2 (autism and intestinal

disease/not confirmed by orthodox medicine) (SCD 2/06)