Re: Re: Seeing file on son fr: dr

December 30, 2003

I totally understand where you are coming from. We had that same problem,

felt neglected, they were too busy, etc. We changed clinics. The new clinic is

further away but so far well worth the change.

I don't blame our old cf doctor. The one we liked to see (they had 2) was

awesome. I swear the man could cure cf if he just had the time to sit down and

think about it. You know what I am saying. He was so busy it was next to

impossible to get in touch with him, let alone an appointment.

But do you know that I have found that most clinics are like that. There

must be a shortage of CF doctors. Or else there is an overage of CF patients.

Hey, you know what, maybe the fact that cfers are living longer has a lot to do

with this.

Anyway, Im not going to drag on and on like I usually do.

Mainly I just wanted you to know that I understand where you are coming from.

And, I requested a copy of my childs medical records to be sent from the old

clinic and hospital to the new one, a year ago in January. Guess what, they

still don't have them. Unless they got them in the last 2 weeks. I can't

imagine what would happen if I asked to see a copy. Probably would get to see

them in say 3 years, maybe.

Anyway, you are not alone in this. Wishing you well in this as I totally

understand how you feel. I have been there before.

Good luck!!!!!

Sue Pettit of Tupelo, Mississippi

mom to (17 wocf) driving and being the most responsible 17 yo I have

ever seen, (13 wocf) playing baseball, football, band, and whatever

else he can get into, and (12 wcf) into all sports, enjoying lots of

friends, running full speed and doing all she can---diagnosed at 8 days of age

at

LeBonheur Childrens Medical Center in Memphis, Tennessee, now seeing Doctors

Lyrene and Makris (and lots of other wonderful folks, of course) at UAB

Children's Hospital in Birmingham, Alabama

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