Re: CF and Bits of Akward humor

[Guest guest]

Thank you for your humor Becki, I read this to my daughter 20 years, and

she cried she laughed so hard. It is the only way to look at this CF, it grabs

you in so many parts of the body. She loved the part apart wooden desks, and

the boys think she is great and wish they could do what she does. Hope you and

Brad get a little better for Christmas and that he didn't lose important stuff

in the hosp. sometimes I don't know where staff people are trained.

Merry Christmas,

judy 's mom

[Guest guest]

Becki,

You are hilarious!!!!At this point i dont think ANYTHING is weird,

(whats normal anyways?!?!)Keep up your great sense of humor, it adds

years to your life!

Patty, mom tto Ty 8wcf and 2wocf

> LOL

> I wrote this out for another list but after Meranda's letter and my

hubby's

> wacked out night and my many pain pills...LOL...I thought I'd share

my pill

> induced humor (yes these are prescribed)

> I've had a nurse tell me to STOP coughing b/c I was grossing out

and scaring

> the patients in radiology..Well sorry for being in respirtaory

failure...LOL

> One of these days my frined and I have desided that we (both of us

have CF)

> are gonna start coughing and then joyously exclaim our delight

about the fact

> that we are almost done with our active TB infections but the docs

say that we

> shouldn't be contagious much longer...LOL....We don't have TB.

> Ive taken way to much pain meds and phenergan tonight. Almost

anything seems

> funny....I wont go into detail about what my friend and I talked

about before

> she had to go...something about male dogs having U shaped genital

bones that

> allow bladder stones to get stuck...LOL...

> I still think the worst is when your in a room full of people

sitting at your

> desk taking a test then start an explosive coughing fit and not

only does the

> air explode out of your mouth and make you go purple but your back

side

> explodes and the wooden seat your sitting in literally vibrates.

Nothing echo's

> like wood ! ! !

> Im famous for doing this in the hospital when some muscular Therapy

guy has

> my butt up in the air beating my lower lobes in TrendIenberg

(tilted

> downward).Nothing like saying hello by expelling gas in someones

face....

> They try so hard to get me to cough during vibration at times but

Im sitting

> there squeazing my cheeks together with my super glut muscles. I

mean if Im

> not wanting to cough there is a reason ! ! ! IV's are killer on the

GI tract ! !

> !

> In 5th grade the boys thought I was the coolest thing out

there....but the

> smell made my poor desk mate throw up.

> AWWWWWWWWWWwwwwwwwwwwwwww the joys of CF.

> No, Im not really this weird or then again...I guess I am...LOL...

> I prefer to laugh then cry....even at my own expense...my doc is

quite

> impressed at my impression of Darth Vador on Thursday...=)

> She'd give me an award now...LOL

>

> Becki

> YOUR FAVORITE LilGooberGirl

> YOUNGLUNG EMAIL SUPPORT LIST

> www.topica.com/lists/younglung

> Pediatric Interstitial Lung Disease Society

> http://groups.yahoo.com/group/InterstitialLung_Kids/

>

>

>

[Guest guest]

Becky,

I hope that you are writing a book! I want to buy a copy!

Love,

Gale

> LOL

> I wrote this out for another list but after Meranda's letter and my

hubby's

> wacked out night and my many pain pills...LOL...I thought I'd share

my pill

> induced humor (yes these are prescribed)

> I've had a nurse tell me to STOP coughing b/c I was grossing out

and scaring

> the patients in radiology..Well sorry for being in respirtaory

failure...LOL

> One of these days my frined and I have desided that we (both of us

have CF)

> are gonna start coughing and then joyously exclaim our delight

about the fact

> that we are almost done with our active TB infections but the docs

say that we

> shouldn't be contagious much longer...LOL....We don't have TB.

> Ive taken way to much pain meds and phenergan tonight. Almost

anything seems

> funny....I wont go into detail about what my friend and I talked

about before

> she had to go...something about male dogs having U shaped genital

bones that

> allow bladder stones to get stuck...LOL...

> I still think the worst is when your in a room full of people

sitting at your

> desk taking a test then start an explosive coughing fit and not

only does the

> air explode out of your mouth and make you go purple but your back

side

> explodes and the wooden seat your sitting in literally vibrates.

Nothing echo's

> like wood ! ! !

> Im famous for doing this in the hospital when some muscular Therapy

guy has

> my butt up in the air beating my lower lobes in TrendIenberg

(tilted

> downward).Nothing like saying hello by expelling gas in someones

face....

> They try so hard to get me to cough during vibration at times but

Im sitting

> there squeazing my cheeks together with my super glut muscles. I

mean if Im

> not wanting to cough there is a reason ! ! ! IV's are killer on the

GI tract ! !

> !

> In 5th grade the boys thought I was the coolest thing out

there....but the

> smell made my poor desk mate throw up.

> AWWWWWWWWWWwwwwwwwwwwwwww the joys of CF.

> No, Im not really this weird or then again...I guess I am...LOL...

> I prefer to laugh then cry....even at my own expense...my doc is

quite

> impressed at my impression of Darth Vador on Thursday...=)

> She'd give me an award now...LOL

>

> Becki

> YOUR FAVORITE LilGooberGirl

> YOUNGLUNG EMAIL SUPPORT LIST

> www.topica.com/lists/younglung

> Pediatric Interstitial Lung Disease Society

> http://groups.yahoo.com/group/InterstitialLung_Kids/

>

>

>

[Guest guest]

I am having a very bad day yall Madison is coughing so much I think she is

going to hurt herself, she wont eat I mean not even her fav-Pizza and I am

having a hard time even getting her to drink her pediasure and boy does she

throw a

fit about enzymes..Ive managed to cram it down het throat she keeps yelling

at me Mommys mean I not love her!!! that is the worst thing i have ever heard

and I just read your funny jokes and for some reason it made me really sad for

you and for my daughter. I hope that doesnt upset you but I know I could not

handle having CF yall are drfiniely fighters and I hope my girl has your

outlook and strength...I find myself getting really hurt when the church nursery

tells me i have to take he away from the other children or when people ask me

god

why dont you take the child to the doctor....people can be so mean and I even

get upset when family members call her stinky when she comes out of the

restroom or when they changed her diaper...I guess its just one of those

days...does anyone use scandipharm are theyre shakes good?

Candace

3 Kids 2 w/cf, 1, and 3 months without..

[Guest guest]

Candace,

I hate that you had such a bad day yesterday. Nothing hurts more

than seeing your child hurt (emotionally or physically). I hope that

you are feeling a little better today. People can be so mean. Most

of the time, they don't even realise that they are being hurtful.

Love,

Gale

> I am having a very bad day yall Madison is coughing so much I think

she is

> going to hurt herself, she wont eat I mean not even her fav-Pizza

and I am

> having a hard time even getting her to drink her pediasure and boy

does she throw a

> fit about enzymes..Ive managed to cram it down het throat she keeps

yelling

> at me Mommys mean I not love her!!! that is the worst thing i have

ever heard

> and I just read your funny jokes and for some reason it made me

really sad for

> you and for my daughter. I hope that doesnt upset you but I know I

could not

> handle having CF yall are drfiniely fighters and I hope my girl has

your

> outlook and strength...I find myself getting really hurt when the

church nursery

> tells me i have to take he away from the other children or when

people ask me god

> why dont you take the child to the doctor....people can be so mean

and I even

> get upset when family members call her stinky when she comes out of

the

> restroom or when they changed her diaper...I guess its just one of

those

> days...does anyone use scandipharm are theyre shakes good?

>

>

> Candace

> 3 Kids 2 w/cf, 1, and 3 months without..

>

>

>

[Guest guest]

Why would the church nursery ask you to take your child away from the other

children? You have a special needs child and they should accomodate that. It

sounds to me like you need to have a one on one conference with the children's

director/nursery coordinator and set up a meeting with the nursery staff to

explain about your child and her needs.

Dawn mom of 4, 7 and under, the youngest wcf