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Re: Antoinette~ Kiki~ OT

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I don't know if this will help you but.... When we first took our

son to the Institutes ( www.iahp.org ) we were required to take a 60

hour course for parents on Child Brain Development. One of the

doctors who was lecturing spent alot of time on seizures. They had

found that seizures are one of the body's defense mechanisms when

oxygen to the brain is reduced. Further, they found that when

someone who is having a seizure is given pure oxygen, the seizures

got worse. What they found was that when a person breathes pure

oxygen the arteries going to the brain constrict (vaso-constriction)

and the brain actually gets LESS oxygen. However, when a person

received increased levels of carbon dioxide mixed with oxygen, it

caused the blood vessels to dilate and the brain got more oxygen and

the seizures subsided. What they are doing there is a program

called " masking " in which the kids rebreath air that they have

exhaled which has plenty of oxygen and the carbon dioxide that we

naturally breath out anyway. It is actually much more simple than it

sounds. Anyway, many of the kids have been able to come off their

seizure medication using this program. My son is on the program too.

He doesn't have seizures but he does have a breathing problem that it

also helps with. You would have to get the particulars from them and

you have to have a doctor that will oversee the program.

Hope that helps.

le

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WOW!!! My K seems to not be able to get to sleep unless the blankets are

covering her head. Her body then makes her breathe quickly and then less

than 2 minutes later she's out. I wonder if she's trying to get some

carbon-dioxide. Is this good? Jenn & K

Re: Antoinette~ Kiki~ OT

> I don't know if this will help you but.... When we first took our

> son to the Institutes ( www.iahp.org ) we were required to take a 60

> hour course for parents on Child Brain Development. One of the

> doctors who was lecturing spent alot of time on seizures. They had

> found that seizures are one of the body's defense mechanisms when

> oxygen to the brain is reduced. Further, they found that when

> someone who is having a seizure is given pure oxygen, the seizures

> got worse. What they found was that when a person breathes pure

> oxygen the arteries going to the brain constrict (vaso-constriction)

> and the brain actually gets LESS oxygen. However, when a person

> received increased levels of carbon dioxide mixed with oxygen, it

> caused the blood vessels to dilate and the brain got more oxygen and

> the seizures subsided. What they are doing there is a program

> called " masking " in which the kids rebreath air that they have

> exhaled which has plenty of oxygen and the carbon dioxide that we

> naturally breath out anyway. It is actually much more simple than it

> sounds. Anyway, many of the kids have been able to come off their

> seizure medication using this program. My son is on the program too.

> He doesn't have seizures but he does have a breathing problem that it

> also helps with. You would have to get the particulars from them and

> you have to have a doctor that will oversee the program.

> Hope that helps.

> le

>

>

>

>

> For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

> http://www.breakingtheviciouscycle.info

> and

> http://www.pecanbread.com

>

>

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Patti, and all,

Thank you so much for all the replies and support.

You are an angel Patti! I feel so much better after reading your

post to me. Yes, we love her with all our hearts. If she has to

live with us forever, then so be it. If she somehow grows out of

some of this and can be independent, good too.

You are right today is all that matters. She seems to be doing

better today. She is not thrilled to be back to eating " baby

foods " ...but we have convinced her that she needs to. I have

threatened death to those might feed her more advanced foods. LOL!

She calls her pain " i ya " .....we told her that her " i ya " will get

worse and she seemed to understand us. Chicken soup is in the pot

again! I also made pop sickles made of cranberry-apple sauce mixed

with bannas and her vitamins! This should do the trick. It always

does.

Just frustrating that she is having a " flare " again. It is hard for

me not to blame myself. Lucy says that this is rediculous of me to

do. I will try not ot do this. No good for me.

She said that Elaine said that IBD takes years to heal. That I need

to " chill out " and relax..... " two steps forward and one step

backward " . Thank God that she hasn't ended up in the hospital. She

is sleeping most the day away. Healing I suspect. OR getting ready

to keep me up at night with her night terrors, or what ever she is

having! The doctors are uncertain. Her EEG will be a sleep deprived

one...not a sleep over night one. So they will probably find

nothing!

Thanks you are wonderful! Antoinette/cd, mom to Kiki CD/ibd/autism

(SCD 2/06)

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I'd like to know how you make your cranberry-applesauce.

Meleah

Re: Antoinette~ Kiki~ OT

> Patti, and all,

>

> Thank you so much for all the replies and support.

>

> You are an angel Patti! I feel so much better after reading your

> post to me. Yes, we love her with all our hearts. If she has to

> live with us forever, then so be it. If she somehow grows out of

> some of this and can be independent, good too.

>

> You are right today is all that matters. She seems to be doing

> better today. She is not thrilled to be back to eating " baby

> foods " ...but we have convinced her that she needs to. I have

> threatened death to those might feed her more advanced foods. LOL!

>

> She calls her pain " i ya " .....we told her that her " i ya " will get

> worse and she seemed to understand us. Chicken soup is in the pot

> again! I also made pop sickles made of cranberry-apple sauce mixed

> with bannas and her vitamins! This should do the trick. It always

> does.

>

> Just frustrating that she is having a " flare " again. It is hard for

> me not to blame myself. Lucy says that this is rediculous of me to

> do. I will try not ot do this. No good for me.

>

> She said that Elaine said that IBD takes years to heal. That I need

> to " chill out " and relax..... " two steps forward and one step

> backward " . Thank God that she hasn't ended up in the hospital. She

> is sleeping most the day away. Healing I suspect. OR getting ready

> to keep me up at night with her night terrors, or what ever she is

> having! The doctors are uncertain. Her EEG will be a sleep deprived

> one...not a sleep over night one. So they will probably find

> nothing!

>

> Thanks you are wonderful! Antoinette/cd, mom to Kiki CD/ibd/autism

> (SCD 2/06)

>

>

>

>

>

>

> For information on the Specific Carbohydrate Diet, please read the book

> _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

> websites:

> http://www.breakingtheviciouscycle.info

> and

> http://www.pecanbread.com

>

>

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