Re: Pain

[Guest guest]

--- Sharyn Noakes wrote:

> It was a very difficult road since most of my doctor

> visits were dead end

> roads to why I was hurting so badly. I was treated

> like a hypochondriac,

> treated like it was all in my mind. Therefore 6

> years ago when I had one of

> the major signs of RP I did not go to a doctor

> because I felt they would

> think I was nuts or it was all in my mind. That was

> 6 years ago...6 years

> of my life where who knows what damage to my body

> has been done. Yet during

> all of those years and the years in the past I

> taught myself to accept pain,

> to hide pain and to live with it.

>

> hugs

>

>

> Sharyn

Hi Sharyn,

I agree with what you said, and you too Glenda, in

that this is a great post.

I too struggled with what I now believe to be RP for

years before I could get a doctor to listen to me. I

also refused to go to my doc when my ears flared so

badly in 1999. I knew she would not believe a word I

said to her, and felt that even the ears would not

convince her that something was going on. I mean, she

had treated my eyes for three years and never even

offered to send me to a specialist!

My current rheumy always tells me what a " hard "

patient I am, and it is only because I too learned to

hide the pain and even deny it. He always has to

encourage me to be open and really tell him how I am

instead of my stock answer, " I'm o.k. " I am learning

and getting better about letting it all hang out.

Glad to hear that I am not the only one in this boat!

Love, squeek

=====

__________________________________________________

[Guest guest]

Lucy,

I am glad that the new medication methadone is working. Hopefully, your

body will eventually get used to the methadone and won't knock you out

quite so much, though I'm glad it also gave you a way to not think of

the fire. I hope the fire it out by now and that your place is okay. I

don't know what I'd do if we had a big fire out here. I have cats too

and one of them is an indoor/outdoor cat. He's outside during the day

and inside during the night. Hope you are having less pain days.

Kimber

--

Kimber

Vallejo, CA

hominid2@...

Note: All advice given is personal opinion, not equal to that of a licensed

physician or health care professional.

[Guest guest]

Hi ,

The methadone only knocked me out once so the next time I broke it in half and

then it didn't help. So I took it whole and it still was not working so the

pain doc put me on Oxycontin 20mg. I don't know if you know he tried to break

the cycle of the breakthrough pain with an injection in my spine. Well I got a

severe headache right away. I went back the second day and he gave me too much

of the numbing stuff and it numbed me from my waist to my toes. The third day he

took the catheter out and then I had serious headaches and the spine hurt so

badly.

Monday he had me come back and he did a blood patch where he put my blood from

my arm in to the spine because the thing leaked. That was also supposed to clear

up my headache, well a tiny bit. I got home and when I started to walk up to my

door I got this awful pain behind my knees and under my feet. It was so bad I

called him immediately and talked to his nurse I told her I think I should talk

to him. She said he said to lay flat, put ice on the spine, and take my pills.

So, I took the Oxycontin and it worked for about 1 hr when I woke up in bad, bad

pain again my legs. I had to page him and by time he answered my page I had

called the paramedics and they came. Then my husband got home from work and took

me to the hospital where my doc said he would admit me. He also told me

sometimes from the blood patch that it could mess with the nerves in my body

which is what was happening with my legs.

When I got to the hospital and called him like he told me to, he never answered

the page. But, I was so bad, the hospital had another doctor see me and she gave

me a little morphine to help with the pain. The doctor finally called and asks

to speak to me. I was so mad at him. I asked if he was admitting me and he said

yes. All this happened from his wanting to give me the spinal thing, and I end

up in the hospital for three days getting a Morphine pump 12mg every 20 min,

Percocet... and Oxycontin 60mg every 12 hrs. I found out in the hospital that

you only need to take that drug every 12 hrs. I don't know much about the drug

except it is very addicting. Do you know anything about it?

So I left the hospital and was going to just walk out, but I called the dr's

service and told them to tell him I was leaving or he could check me out. He

finally did. I haven't spoken to him since. He said to come in when I was up to

it. I don't think I will, I need a doctor that listens and I need to feel

comfortable that he has experience treating pancreatitis. I am looking for

another dr in Santa Clarita. (That is where he is) I asked my insurance to send

me a list of doctors in their plan, so I know I will be covered.

I am doing ok, but if I over do it, I can feel it. I didn’t get your message

till now cause I haven't been on the computer till now. The fire finally got

put out and I never left my house. We were all safe and are ok.

Thanks.

Lucy