Re: a good word on passive helmets

[Guest guest]

thanks for posting that; I really don't have other options other than the passive helmet unless we want to make an overnight trip for each and every helmet event. I'm glad to know that many people have had positive experiences with passive helmets.

I'm sure ANY helmet's success is very dependent on the experience of the techs, doctors, etc.

I will definitely track my son's progress---

Betsy

From: kennacute95 <kennacute95>Subject: did the helmet help your little one...really? ?PlagiocephalyDate: Wednesday, May 20, 2009, 12:16 PM

hi guys,well i guess to make a long story short, my son was born 10 pounds so they said he was restricted in the womb and always faced one way. i noticed around 6-7 weeks the flat spot! everyone said it was no big deal, im so glad i got every one elses opinions...if it wasnt for the internet then i dont know- i guess i woulda thought it would go away all by itself!anyways, they said he was making significant improvement by himself but it would never be totally 'normal' without the helmet....so we went ahead and got him casted but now of course im sitting here wondering if we did the right thing. is he gonna hate this thing? AND DOES IT REALLY WORK??? i knew i could turn to all you guys on here after all we are all kinda in some ways going through the same things.i really am concerned with how much it will really work and did your child hate the darn thing??? im so nervous about

it!!!

[Guest guest]

I'll get final numbers and pictures when we're done, but Elaine started in a passive helmet (Danmar) at 4 1/2 months old and her plaigo assym was ~20mm.  We're currently at less than 2mm.  That's with a month break in the middle due to surgery so we didn't catch all the growth we could have.  She's in her second helmet and we're hoping to graduate next month.  Head shape wise she probably could have graduated last month, but tort is still an issue.  Considering she still has growing room in her second helmet and she's not at 0, her doctor suggested that we use it to it's fullest and get the most correction we can.  We agreed.  We'll know for sure when graduation is when we see her surgeon next month and whether or not her tort will need a second surgery.

 

Elaine (twin A) plagio & tort, 11mos, 2nd helmet since 1/5/09

On Wed, May 20, 2009 at 4:07 PM, Betsy <bsm7305@...> wrote:

thanks for posting that; I really don't have other options other than the passive helmet unless we want to make an overnight trip for each and every helmet event.  I'm glad to know that many people have had positive experiences with passive helmets.

 

I'm sure ANY helmet's success is very dependent on the experience of the techs, doctors, etc. 

 

I will definitely track my son's progress---

 

Betsy

From: kennacute95 <kennacute95>Subject: did the helmet help your little one...really? ?

PlagiocephalyDate: Wednesday, May 20, 2009, 12:16 PM

hi guys,well i guess to make a long story short, my son was born 10 pounds so they said he was restricted in the womb and always faced one way. i noticed around 6-7 weeks the flat spot! everyone said it was no big deal, im so glad i got every one elses opinions...if it wasnt for the internet then i dont know- i guess i woulda thought it would go away all by itself!

anyways, they said he was making significant improvement by himself but it would never be totally 'normal' without the helmet....so we went ahead and got him casted but now of course im sitting here wondering if we did the right thing. is he gonna hate this thing? AND DOES IT REALLY WORK??? i knew i could turn to all you guys on here after all we are all kinda in some ways going through the same things.

i really am concerned with how much it will really work and did your child hate the darn thing??? im so nervous about it!!!

[Guest guest]

I have specified it many times before and will again. The passive helmet we got was from Eastern Cranial Affiliates. Whereas it may have worked for others it didn't for us and I am left with HUGE regrets and a baby who spent 11 MONTHS in treatment instead of 3 or 4.

I'll never stop talking about our experience with that helmet but I'll try and specify where we got it from each time I mention it just to clarify things.

Leila,

Maysa, 16 months, 6 days till graduation

www.mymaysa.wordpress.com

From: kennacute95 <kennacute95>Subject: did the helmet help your little one...really? ?PlagiocephalyDate: Wednesday, May 20, 2009, 12:16 PM

hi guys,well i guess to make a long story short, my son was born 10 pounds so they said he was restricted in the womb and always faced one way. i noticed around 6-7 weeks the flat spot! everyone said it was no big deal, im so glad i got every one elses opinions...if it wasnt for the internet then i dont know- i guess i woulda thought it would go away all by itself!anyways, they said he was making significant improvement by himself but it would never be totally 'normal' without the helmet....so we went ahead and got him casted but now of course im sitting here wondering if we did the right thing. is he gonna hate this thing? AND DOES IT REALLY WORK??? i knew i could turn to all you guys on here after all we are all kinda in some ways going through the same things.i really am concerned with how much it will really work and did your child hate the darn thing??? im so nervous about

it!!!