Guest guest Posted November 2, 2003 Report Share Posted November 2, 2003 I didn't see who, but someone wrote that soy products are no good for cf kids. I have been told by our dietitians that they are great and also from a friend who is a pharmacist/nutritionist. I know allthe pro's, so whoever wrote this, could you tell us the cons? I have been using Soy Lecithin granules and meal, as a substitute for all the excess cream the poor kid has, he doesnt puke as much anymore. And is still putting on good weight. Lee --------------------------------- Yahoo! Personals - New people, new possibilities. FREE for a limited time! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2003 Report Share Posted November 2, 2003 It is the soy protien isolate which is the dangerous part of soy for any person. Re: Soy products No Good? > I didn't see who, but someone wrote that soy products are no good for cf kids. I have been told by our dietitians that they are great and also from a friend who is a pharmacist/nutritionist. > I know allthe pro's, so whoever wrote this, could you tell us the cons? > I have been using Soy Lecithin granules and meal, as a substitute for all the excess cream the poor kid has, he doesnt puke as much anymore. And is still putting on good weight. > Lee > > > > --------------------------------- > Yahoo! Personals > - New people, new possibilities. FREE for a limited time! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2003 Report Share Posted November 3, 2003 I have never been told that. Jaelyn eats only soy no dairy!!! She has had no problems with it at all. mom of Jaelyn 21 months w/cf and Makenzie 6 no cf. Re: Soy products No Good? When was first starting to eat (like 7 years ago!) our CF specialist specifically said that CFers do not digest soy well. I am interested in hearing if we were the only ones who were told that. Lenora in Colorado >I didn't see who, but someone wrote that soy products are no good >for cf kids. I have been told by our dietitians that they are great >and also from a friend who is a pharmacist/nutritionist. >I know allthe pro's, so whoever wrote this, could you tell us the cons? >I have been using Soy Lecithin granules and meal, as a substitute >for all the excess cream the poor kid has, he doesnt puke as much >anymore. And is still putting on good weight. >Lee > > > >--------------------------------- >Yahoo! Personals >- New people, new possibilities. FREE for a limited time! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2003 Report Share Posted November 3, 2003 When was first starting to eat (like 7 years ago!) our CF specialist specifically said that CFers do not digest soy well. I am interested in hearing if we were the only ones who were told that. Lenora in Colorado >I didn't see who, but someone wrote that soy products are no good >for cf kids. I have been told by our dietitians that they are great >and also from a friend who is a pharmacist/nutritionist. >I know allthe pro's, so whoever wrote this, could you tell us the cons? >I have been using Soy Lecithin granules and meal, as a substitute >for all the excess cream the poor kid has, he doesnt puke as much >anymore. And is still putting on good weight. >Lee > > > >--------------------------------- >Yahoo! Personals >- New people, new possibilities. FREE for a limited time! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2003 Report Share Posted November 3, 2003 Same for my granddaughter . She really loves it too . She is 19+ . Always been well -Thank God LOVE & HUGS, GRDNDMOMBEV Re: Soy products No Good? When was first starting to eat (like 7 years ago!) our CF specialist specifically said that CFers do not digest soy well. I am interested in hearing if we were the only ones who were told that. Lenora in Colorado >I didn't see who, but someone wrote that soy products are no good >for cf kids. I have been told by our dietitians that they are great >and also from a friend who is a pharmacist/nutritionist. >I know allthe pro's, so whoever wrote this, could you tell us the cons? >I have been using Soy Lecithin granules and meal, as a substitute >for all the excess cream the poor kid has, he doesnt puke as much >anymore. And is still putting on good weight. >Lee > > > >--------------------------------- >Yahoo! Personals >- New people, new possibilities. FREE for a limited time! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2003 Report Share Posted November 3, 2003 Prior to Zach's cf diagnosis we tried soy formula. He had 20 bowel movements a day. Maybe that was just Zach, but I have avoided soy since. Sara > When was first starting to eat (like 7 years ago!) our CF > specialist specifically said that CFers do not digest soy well. > I am interested in hearing if we were the only ones who were told that. > Lenora in Colorado > > >I didn't see who, but someone wrote that soy products are no good > >for cf kids. I have been told by our dietitians that they are great > >and also from a friend who is a pharmacist/nutritionist. > >I know allthe pro's, so whoever wrote this, could you tell us the cons? > >I have been using Soy Lecithin granules and meal, as a substitute > >for all the excess cream the poor kid has, he doesnt puke as much > >anymore. And is still putting on good weight. > >Lee > > > > > > > >--------------------------------- > >Yahoo! Personals > >- New people, new possibilities. FREE for a limited time! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2003 Report Share Posted November 3, 2003 We were told the same thing, however, was worse on milk based formulas and ended up on Isomil anyway. She actually had less reflux with it than with other formulas. Weird, huh? Re: Soy products No Good? When was first starting to eat (like 7 years ago!) our CF specialist specifically said that CFers do not digest soy well. I am interested in hearing if we were the only ones who were told that. Lenora in Colorado >I didn't see who, but someone wrote that soy products are no good >for cf kids. I have been told by our dietitians that they are great >and also from a friend who is a pharmacist/nutritionist. >I know allthe pro's, so whoever wrote this, could you tell us the cons? >I have been using Soy Lecithin granules and meal, as a substitute >for all the excess cream the poor kid has, he doesnt puke as much >anymore. And is still putting on good weight. >Lee > > > >--------------------------------- >Yahoo! Personals >- New people, new possibilities. FREE for a limited time! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2003 Report Share Posted November 3, 2003 Hi Lee, you asked for the cons of soy products. Well, I think it's mainly the abstract below that has caused some worries within the CF society. Soy products are not that popular here in Germany, so I haven't investigated it more. Peace Torsten http://www.cfcenter.net/living/may01/living-may01.htm Soy, PIT, and CF: not a good partnership! If you have been to see Dr. Pichurko in the last year and had the chance to meet with me, everyone's favorite dietitian, than you probably heard me mention the use of soy products. Soy and soybean- derived foods are becoming more and more popular in the United States . However, some research is telling us that CF patients may want to take caution with overuse of soy products. Soybeans have been grown over the last 50 years to increase the naturally occurring fungicide called phenyl isothiocyanate or PIT. Modern soybeans contain 2000-2500 parts per million of PIT where some old varieties only contained 1-2 parts per million of the same compound. Why is this important for the CF patient? One of the systems that are affected by CF is the glutathione system, a natural antioxidant system within the body. Selenium, a mineral, plays an important role in this system by forming the glutathione peroxidase, a critical enzyme in the pathway. Without enough selenium, there is not enough of the critical enzyme and therefore it cannot function as well as an antioxidant. PIT found in soybeans actually displaces selenium and in effect removes it from the body. PIT also interferes with the digestive enzymes as well. Because patients with CF commonly have problems with both of these systems, it is recommended that patients use caution when using modern soybean products in excess. ] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2003 Report Share Posted November 3, 2003 I suspect that it may depend on the alleles or mutation; I was told and my " kid " (now 38 was told and is still told not to eat soy products; soy milk has a lot of fat, as does soy cheese, but I think it depends on the person. One of my cf carrier kids is lactose intolerant and allergic to milk! I think we have to go by what works for us and for our " kids, " young and adult--no hard and fast rules! n Rojas Re: Soy products No Good? > When was first starting to eat (like 7 years ago!) our CF > specialist specifically said that CFers do not digest soy well. > I am interested in hearing if we were the only ones who were told that. > Lenora in Colorado > > >I didn't see who, but someone wrote that soy products are no good > >for cf kids. I have been told by our dietitians that they are great > >and also from a friend who is a pharmacist/nutritionist. > >I know allthe pro's, so whoever wrote this, could you tell us the cons? > >I have been using Soy Lecithin granules and meal, as a substitute > >for all the excess cream the poor kid has, he doesnt puke as much > >anymore. And is still putting on good weight. > >Lee > > > > > > > >--------------------------------- > >Yahoo! Personals > >- New people, new possibilities. FREE for a limited time! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2003 Report Share Posted November 3, 2003 Torsten's s citation regarding soy bean products is es pecially relevent in the usa, where they are almost all genetically engineered--organic or no! n Rojas Re: Soy products No Good? > Hi Lee, > > you asked for the cons of soy products. Well, I think it's mainly > the abstract below that has caused some worries within the CF > society. > > Soy products are not that popular here in Germany, so I haven't > investigated it more. > > Peace > Torsten > > > http://www.cfcenter.net/living/may01/living-may01.htm > > > Soy, PIT, and CF: not a good partnership! > If you have been to see Dr. Pichurko in the last year and had the > chance to meet with me, everyone's favorite dietitian, than you > probably heard me mention the use of soy products. Soy and soybean- > derived foods are becoming more and more popular in the United > States . However, some research is telling us that CF patients may > want to take caution with overuse of soy products. Soybeans have > been grown over the last 50 years to increase the naturally > occurring fungicide called phenyl isothiocyanate or PIT. Modern > soybeans contain 2000-2500 parts per million of PIT where some old > varieties only contained 1-2 parts per million of the same compound. > > Why is this important for the CF patient? One of the systems that > are affected by CF is the glutathione system, a natural antioxidant > system within the body. Selenium, a mineral, plays an important role > in this system by forming the glutathione peroxidase, a critical > enzyme in the pathway. Without enough selenium, there is not enough > of the critical enzyme and therefore it cannot function as well as > an antioxidant. > > PIT found in soybeans actually displaces selenium and in effect > removes it from the body. PIT also interferes with the digestive > enzymes as well. Because patients with CF commonly have problems > with both of these systems, it is recommended that patients use > caution when using modern soybean products in excess. > > > > > ] > > > > ------------------------------------------- > The opinions and information exchanged on this list should IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > ------------------------------------ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2003 Report Share Posted November 3, 2003 > had more problems on regular formula also. The doctor switched > her to Prosobee and she did much better. > My son always knew when I tried to " sneak " some soy milk in his regular fomula. He got a lot of gas from regular formula so I started trying different things. Soy was one. I tried half and half (half regular formula, half soy formula) and kept lowering the amount of soy every time. Smart baby knew when I was trying to sneak some soy in and refused the bottle. I gave up when I tried 7 oz of regular formula and 1 oz of soy and he still knew. I have to say the soy based formula did smell. I can't imagine how it tasted. I couldn't bring myself to do a taste test. jan Quote Link to comment Share on other sites More sharing options...
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