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Re: Soy products No Good?

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I didn't see who, but someone wrote that soy products are no good for cf kids.

I have been told by our dietitians that they are great and also from a friend

who is a pharmacist/nutritionist.

I know allthe pro's, so whoever wrote this, could you tell us the cons?

I have been using Soy Lecithin granules and meal, as a substitute for all the

excess cream the poor kid has, he doesnt puke as much anymore. And is still

putting on good weight.

Lee

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It is the soy protien isolate which is the dangerous part of soy for any

person.

Re: Soy products No Good?

> I didn't see who, but someone wrote that soy products are no good for cf

kids. I have been told by our dietitians that they are great and also from

a friend who is a pharmacist/nutritionist.

> I know allthe pro's, so whoever wrote this, could you tell us the cons?

> I have been using Soy Lecithin granules and meal, as a substitute for all

the excess cream the poor kid has, he doesnt puke as much anymore. And is

still putting on good weight.

> Lee

>

>

>

> ---------------------------------

> Yahoo! Personals

> - New people, new possibilities. FREE for a limited time!

>

>

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I have never been told that. Jaelyn eats only soy no dairy!!! She has had no

problems with it at all.

mom of Jaelyn 21 months w/cf and Makenzie 6 no cf.

Re: Soy products No Good?

When was first starting to eat (like 7 years ago!) our CF

specialist specifically said that CFers do not digest soy well.

I am interested in hearing if we were the only ones who were told that.

Lenora in Colorado

>I didn't see who, but someone wrote that soy products are no good

>for cf kids. I have been told by our dietitians that they are great

>and also from a friend who is a pharmacist/nutritionist.

>I know allthe pro's, so whoever wrote this, could you tell us the cons?

>I have been using Soy Lecithin granules and meal, as a substitute

>for all the excess cream the poor kid has, he doesnt puke as much

>anymore. And is still putting on good weight.

>Lee

>

>

>

>---------------------------------

>Yahoo! Personals

>- New people, new possibilities. FREE for a limited time!

>

>

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Share on other sites

When was first starting to eat (like 7 years ago!) our CF

specialist specifically said that CFers do not digest soy well.

I am interested in hearing if we were the only ones who were told that.

Lenora in Colorado

>I didn't see who, but someone wrote that soy products are no good

>for cf kids. I have been told by our dietitians that they are great

>and also from a friend who is a pharmacist/nutritionist.

>I know allthe pro's, so whoever wrote this, could you tell us the cons?

>I have been using Soy Lecithin granules and meal, as a substitute

>for all the excess cream the poor kid has, he doesnt puke as much

>anymore. And is still putting on good weight.

>Lee

>

>

>

>---------------------------------

>Yahoo! Personals

>- New people, new possibilities. FREE for a limited time!

>

>

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Same for my granddaughter . She really loves it too . She is 19+ .

Always been well -Thank God

LOVE & HUGS, GRDNDMOMBEV

Re: Soy products No Good?

When was first starting to eat (like 7 years ago!) our CF

specialist specifically said that CFers do not digest soy well. I am

interested in hearing if we were the only ones who were told that.

Lenora in Colorado

>I didn't see who, but someone wrote that soy products are no good

>for cf kids. I have been told by our dietitians that they are great

>and also from a friend who is a pharmacist/nutritionist.

>I know allthe pro's, so whoever wrote this, could you tell us the cons?

>I have been using Soy Lecithin granules and meal, as a substitute

>for all the excess cream the poor kid has, he doesnt puke as much

>anymore. And is still putting on good weight.

>Lee

>

>

>

>---------------------------------

>Yahoo! Personals

>- New people, new possibilities. FREE for a limited time!

>

>

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Prior to Zach's cf diagnosis we tried soy formula. He had 20 bowel

movements a day. Maybe that was just Zach, but I have avoided soy

since.

Sara

> When was first starting to eat (like 7 years ago!) our CF

> specialist specifically said that CFers do not digest soy well.

> I am interested in hearing if we were the only ones who were told

that.

> Lenora in Colorado

>

> >I didn't see who, but someone wrote that soy products are no good

> >for cf kids. I have been told by our dietitians that they are

great

> >and also from a friend who is a pharmacist/nutritionist.

> >I know allthe pro's, so whoever wrote this, could you tell us the

cons?

> >I have been using Soy Lecithin granules and meal, as a substitute

> >for all the excess cream the poor kid has, he doesnt puke as much

> >anymore. And is still putting on good weight.

> >Lee

> >

> >

> >

> >---------------------------------

> >Yahoo! Personals

> >- New people, new possibilities. FREE for a limited time!

> >

> >

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We were told the same thing, however, was worse on milk based formulas

and ended up on Isomil anyway. She actually had less reflux with it than with

other formulas. Weird, huh?

Re: Soy products No Good?

When was first starting to eat (like 7 years ago!) our CF

specialist specifically said that CFers do not digest soy well.

I am interested in hearing if we were the only ones who were told that.

Lenora in Colorado

>I didn't see who, but someone wrote that soy products are no good

>for cf kids. I have been told by our dietitians that they are great

>and also from a friend who is a pharmacist/nutritionist.

>I know allthe pro's, so whoever wrote this, could you tell us the cons?

>I have been using Soy Lecithin granules and meal, as a substitute

>for all the excess cream the poor kid has, he doesnt puke as much

>anymore. And is still putting on good weight.

>Lee

>

>

>

>---------------------------------

>Yahoo! Personals

>- New people, new possibilities. FREE for a limited time!

>

>

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Share on other sites

Hi Lee,

you asked for the cons of soy products. Well, I think it's mainly

the abstract below that has caused some worries within the CF

society.

Soy products are not that popular here in Germany, so I haven't

investigated it more.

Peace

Torsten

http://www.cfcenter.net/living/may01/living-may01.htm

Soy, PIT, and CF: not a good partnership!

If you have been to see Dr. Pichurko in the last year and had the

chance to meet with me, everyone's favorite dietitian, than you

probably heard me mention the use of soy products. Soy and soybean-

derived foods are becoming more and more popular in the United

States . However, some research is telling us that CF patients may

want to take caution with overuse of soy products. Soybeans have

been grown over the last 50 years to increase the naturally

occurring fungicide called phenyl isothiocyanate or PIT. Modern

soybeans contain 2000-2500 parts per million of PIT where some old

varieties only contained 1-2 parts per million of the same compound.

Why is this important for the CF patient? One of the systems that

are affected by CF is the glutathione system, a natural antioxidant

system within the body. Selenium, a mineral, plays an important role

in this system by forming the glutathione peroxidase, a critical

enzyme in the pathway. Without enough selenium, there is not enough

of the critical enzyme and therefore it cannot function as well as

an antioxidant.

PIT found in soybeans actually displaces selenium and in effect

removes it from the body. PIT also interferes with the digestive

enzymes as well. Because patients with CF commonly have problems

with both of these systems, it is recommended that patients use

caution when using modern soybean products in excess.

]

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I suspect that it may depend on the alleles or mutation; I was told and my

" kid " (now 38 was told and is still told

not to eat soy products; soy milk has a lot of fat, as does

soy cheese, but I think it depends on the person. One of

my cf carrier kids is lactose intolerant and allergic to milk!

I think we have to go by what works for us and for our

" kids, " young and adult--no hard and fast rules!

n Rojas

Re: Soy products No Good?

> When was first starting to eat (like 7 years ago!) our CF

> specialist specifically said that CFers do not digest soy well.

> I am interested in hearing if we were the only ones who were told that.

> Lenora in Colorado

>

> >I didn't see who, but someone wrote that soy products are no good

> >for cf kids. I have been told by our dietitians that they are great

> >and also from a friend who is a pharmacist/nutritionist.

> >I know allthe pro's, so whoever wrote this, could you tell us the cons?

> >I have been using Soy Lecithin granules and meal, as a substitute

> >for all the excess cream the poor kid has, he doesnt puke as much

> >anymore. And is still putting on good weight.

> >Lee

> >

> >

> >

> >---------------------------------

> >Yahoo! Personals

> >- New people, new possibilities. FREE for a limited time!

> >

> >

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Share on other sites

Torsten's s citation regarding soy bean products is es

pecially relevent in the usa, where they are almost all

genetically engineered--organic or no!

n Rojas

Re: Soy products No Good?

> Hi Lee,

>

> you asked for the cons of soy products. Well, I think it's mainly

> the abstract below that has caused some worries within the CF

> society.

>

> Soy products are not that popular here in Germany, so I haven't

> investigated it more.

>

> Peace

> Torsten

>

>

> http://www.cfcenter.net/living/may01/living-may01.htm

>

>

> Soy, PIT, and CF: not a good partnership!

> If you have been to see Dr. Pichurko in the last year and had the

> chance to meet with me, everyone's favorite dietitian, than you

> probably heard me mention the use of soy products. Soy and soybean-

> derived foods are becoming more and more popular in the United

> States . However, some research is telling us that CF patients may

> want to take caution with overuse of soy products. Soybeans have

> been grown over the last 50 years to increase the naturally

> occurring fungicide called phenyl isothiocyanate or PIT. Modern

> soybeans contain 2000-2500 parts per million of PIT where some old

> varieties only contained 1-2 parts per million of the same compound.

>

> Why is this important for the CF patient? One of the systems that

> are affected by CF is the glutathione system, a natural antioxidant

> system within the body. Selenium, a mineral, plays an important role

> in this system by forming the glutathione peroxidase, a critical

> enzyme in the pathway. Without enough selenium, there is not enough

> of the critical enzyme and therefore it cannot function as well as

> an antioxidant.

>

> PIT found in soybeans actually displaces selenium and in effect

> removes it from the body. PIT also interferes with the digestive

> enzymes as well. Because patients with CF commonly have problems

> with both of these systems, it is recommended that patients use

> caution when using modern soybean products in excess.

>

>

>

>

> ]

>

>

>

> -------------------------------------------

> The opinions and information exchanged on this list should IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> ------------------------------------

>

>

>

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> had more problems on regular formula also. The doctor

switched

> her to Prosobee and she did much better.

>

My son always knew when I tried to " sneak " some soy milk in his

regular fomula. He got a lot of gas from regular formula so I started

trying different things. Soy was one. I tried half and half (half

regular formula, half soy formula) and kept lowering the amount of

soy every time. Smart baby knew when I was trying to sneak some soy

in and refused the bottle. I gave up when I tried 7 oz of regular

formula and 1 oz of soy and he still knew. I have to say the soy

based formula did smell. I can't imagine how it tasted. I couldn't

bring myself to do a taste test.

jan

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