Re: schwachman-diamond syndrome????

[Guest guest]

Hamilton, of ice-skating fame, had it as a child, and

was treated by Dr. Harry Schwachman who also developed the " Schwachman "

scale for assessing patients

with cf--not sure about that spelling--maybe another " n "

n Rojas

schwachman-diamond syndrome????

> I received an email from someone advising me about another

> possibility.

> It was the Schwmann-Diamond Syndrome...

> Has any one heard of this or had first hand experience with it?

>

> I have found some info on it and it is a strong possibility for my

> little girl. Right down to the bone part, she has Internal Tibial

> Torsion evry badly and we saw a Ped Ortho who said she may or may not

> grow out of it not much they can do.

>

> So just curious....

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> Thanks!!

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