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Zach is fighting his Tobi treatments so hard he is now banging his

head against my shoulder throughout the treatment. My shoulder is

so sore I dread CPT time tonight. I have called the clinic. This

can't be normal. Do any of you have to physically restrain your

children during treatments? If so, do you stop treatments and do

something else? Do you just give a partial treatment? I want to do

what is best for Zach, but this is breaking my heart.

I am at a loss for what to do. Zach is ok with everything but

breathing the TOBI. He will play with the nebulizer and

compressor. He will even hold the mask to his face, but when the

TOBI starts to come out he is inconsolable.

Any advice would be appreciated.

Sara

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How old is he? If he is old enough maybe you could bribe him with a piece

of candy to eat or suck on while he is going tobi or even a piece of gum.

Tina W.

What to do

Zach is fighting his Tobi treatments so hard he is now banging his

head against my shoulder throughout the treatment. My shoulder is

so sore I dread CPT time tonight. I have called the clinic. This

can't be normal. Do any of you have to physically restrain your

children during treatments? If so, do you stop treatments and do

something else? Do you just give a partial treatment? I want to do

what is best for Zach, but this is breaking my heart.

I am at a loss for what to do. Zach is ok with everything but

breathing the TOBI. He will play with the nebulizer and

compressor. He will even hold the mask to his face, but when the

TOBI starts to come out he is inconsolable.

Any advice would be appreciated.

Sara

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I don't have a solution, but I can tell you that occasionally we have issues

with treatments like you are describing. As amazing as it sounds our 22 month

old can out maneuver 2 adults when he doesn't want to do a treatment. He'll get

so worked up and heated up, I end up soaked from him sweating so much.

Things that have worked for us in the past.

1. Have someone else do the treatment: Aunt, Grandparent, Therapist, Make sure

you and leave the room, at least this works when we are in Club Med. As

soon as we are out of sight, and it is clear we are not coming back to rescues

him, he calms right down. I often just sit on the other side of the curtain.

2. Find something that captivates him. For us it is Bob the Builder videos or

Dora. Nothing takes our sons attention away from either of these shows, you'll

have to see if there is something like that for Zach. I know others recommend

Cedarmont Kids Sign-Along tapes, or baby mozart etc.

Any other parents have some good suggestions?

What to do

Zach is fighting his Tobi treatments so hard he is now banging his

head against my shoulder throughout the treatment. My shoulder is

so sore I dread CPT time tonight. I have called the clinic. This

can't be normal. Do any of you have to physically restrain your

children during treatments? If so, do you stop treatments and do

something else? Do you just give a partial treatment? I want to do

what is best for Zach, but this is breaking my heart.

I am at a loss for what to do. Zach is ok with everything but

breathing the TOBI. He will play with the nebulizer and

compressor. He will even hold the mask to his face, but when the

TOBI starts to come out he is inconsolable.

Any advice would be appreciated.

Sara

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These are good suggestions, . What has always worked with Ricky is

television. Not that this totally helped when he was a toddler... He was

very determined then that he didn't want to do his treatments! Anyway,

nowadays he *only* watches TV when he is doing a treatment so it is a huge

incentive. If he thrashes around and makes a fuss about doing his treatment

(yes, even though he is almost 8, he still does this) then we take away the

TV for that treatment.

Works for us!

Becky

Re: What to do

I don't have a solution, but I can tell you that occasionally we have issues

with treatments like you are describing. As amazing as it sounds our 22

month old can out maneuver 2 adults when he doesn't want to do a treatment.

He'll get so worked up and heated up, I end up soaked from him sweating so

much.

Things that have worked for us in the past.

1. Have someone else do the treatment: Aunt, Grandparent, Therapist, Make

sure you and leave the room, at least this works when we are in Club

Med. As soon as we are out of sight, and it is clear we are not coming back

to rescues him, he calms right down. I often just sit on the other side of

the curtain.

2. Find something that captivates him. For us it is Bob the Builder videos

or Dora. Nothing takes our sons attention away from either of these shows,

you'll have to see if there is something like that for Zach. I know others

recommend Cedarmont Kids Sign-Along tapes, or baby mozart etc.

Any other parents have some good suggestions?

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Forgive me for spacing out completely, but how old is he?

When was really little she would do her nebs in a rocking

chair that had a strap that I could strap her in with. When she got

too big for that we put her in the stroller. I know it sounds like

putting them in restraints, but it beats having your shoulder whacked

with a head every time you do a treatment. actually calmed

right down in the stroller or rocking chair. (though she really

hasn't had this much of an issue with Tobi in particular) Hope it

helps

> Zach is fighting his Tobi treatments so hard he is now banging his

> head against my shoulder throughout the treatment. My shoulder is

> so sore I dread CPT time tonight. I have called the clinic. This

> can't be normal. Do any of you have to physically restrain your

> children during treatments? If so, do you stop treatments and do

> something else? Do you just give a partial treatment? I want to do

> what is best for Zach, but this is breaking my heart.

> I am at a loss for what to do. Zach is ok with everything but

> breathing the TOBI. He will play with the nebulizer and

> compressor. He will even hold the mask to his face, but when the

> TOBI starts to come out he is inconsolable.

> Any advice would be appreciated.

> Sara

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That is how Abby acts with her treatments. We do it while she is

sleeping. You said that Zach wakes up. That makes it hard. Have

you tried breathing the Tobi? What is it like? Abby doesn't use

Tobi.

Gale

> Zach is fighting his Tobi treatments so hard he is now banging his

> head against my shoulder throughout the treatment. My shoulder is

> so sore I dread CPT time tonight. I have called the clinic. This

> can't be normal. Do any of you have to physically restrain your

> children during treatments? If so, do you stop treatments and do

> something else? Do you just give a partial treatment? I want to do

> what is best for Zach, but this is breaking my heart.

> I am at a loss for what to do. Zach is ok with everything but

> breathing the TOBI. He will play with the nebulizer and

> compressor. He will even hold the mask to his face, but when the

> TOBI starts to come out he is inconsolable.

> Any advice would be appreciated.

> Sara

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Tobi is yucky. It takes my breath away and gives me a headache.

I have never had to breathe a full treatment though so others could

probably answer this better.

Sara

> > Zach is fighting his Tobi treatments so hard he is now banging

his

> > head against my shoulder throughout the treatment. My shoulder

is

> > so sore I dread CPT time tonight. I have called the clinic.

This

> > can't be normal. Do any of you have to physically restrain your

> > children during treatments? If so, do you stop treatments and

do

> > something else? Do you just give a partial treatment? I want to

do

> > what is best for Zach, but this is breaking my heart.

> > I am at a loss for what to do. Zach is ok with everything but

> > breathing the TOBI. He will play with the nebulizer and

> > compressor. He will even hold the mask to his face, but when

the

> > TOBI starts to come out he is inconsolable.

> > Any advice would be appreciated.

> > Sara

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I wonder if it gives your baby a headache or burns his eyes???

Gale

> > > Zach is fighting his Tobi treatments so hard he is now banging

> his

> > > head against my shoulder throughout the treatment. My shoulder

> is

> > > so sore I dread CPT time tonight. I have called the clinic.

> This

> > > can't be normal. Do any of you have to physically restrain

your

> > > children during treatments? If so, do you stop treatments and

> do

> > > something else? Do you just give a partial treatment? I want

to

> do

> > > what is best for Zach, but this is breaking my heart.

> > > I am at a loss for what to do. Zach is ok with everything but

> > > breathing the TOBI. He will play with the nebulizer and

> > > compressor. He will even hold the mask to his face, but when

> the

> > > TOBI starts to come out he is inconsolable.

> > > Any advice would be appreciated.

> > > Sara

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Thanks for all of the great advice. Sometimes I just need a little

help thinking outside the box.

As luck would have it, Zach had meetings with his developmental and

physical therapists today. He did not score well, but that is

another story. I unloaded on them. His developmental therapist is

always blunt with me, which I like. She said basically that Zach is

trying to control the situation period. He wants to play with his

new toys (neb, compressor, bubbles) but not use them. It is up to

me to set the limits.

So tonight I changed my strategy. He loves to watch Dumbo, but

watching Dumbo wasn't helping him calm down for treatments. Someone

mentioned Baby Mozart. He hasn't watched that tape in six months,

but I got it out to give it a try. Zach was delighted. He started

to struggle at first, but the music is so calming I am able to talk

over it and he seems content as long as I am talking to him.

He did a great treatment tonight. I am so relieved.

I like the stroller idea too. That might be a fun change for him.

He likes his stroller, but we just always keep it folded in the car.

I like the idea of only watching tv during treatments. But I would

never stick to it. I love all of those kid shows and we have them

on throughout the day.

Thanks again everyone. This is such a great group!

Sara - mommy of Zach 21 months with only 2 weeks left of TOBI (i

hope)

> Zach is fighting his Tobi treatments so hard he is now banging his

> head against my shoulder throughout the treatment. My shoulder is

> so sore I dread CPT time tonight. I have called the clinic. This

> can't be normal. Do any of you have to physically restrain your

> children during treatments? If so, do you stop treatments and do

> something else? Do you just give a partial treatment? I want to

do

> what is best for Zach, but this is breaking my heart.

> I am at a loss for what to do. Zach is ok with everything but

> breathing the TOBI. He will play with the nebulizer and

> compressor. He will even hold the mask to his face, but when the

> TOBI starts to come out he is inconsolable.

> Any advice would be appreciated.

> Sara

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Just plain cannot taked the stuff--imagine me with no voice! Love, n

Re: What to do

> I wonder if it gives your baby a headache or burns his eyes???

>

> Gale

>

> > > > Zach is fighting his Tobi treatments so hard he is now banging

> > his

> > > > head against my shoulder throughout the treatment. My shoulder

> > is

> > > > so sore I dread CPT time tonight. I have called the clinic.

> > This

> > > > can't be normal. Do any of you have to physically restrain

> your

> > > > children during treatments? If so, do you stop treatments and

> > do

> > > > something else? Do you just give a partial treatment? I want

> to

> > do

> > > > what is best for Zach, but this is breaking my heart.

> > > > I am at a loss for what to do. Zach is ok with everything but

> > > > breathing the TOBI. He will play with the nebulizer and

> > > > compressor. He will even hold the mask to his face, but when

> > the

> > > > TOBI starts to come out he is inconsolable.

> > > > Any advice would be appreciated.

> > > > Sara

>

>

>

> -------------------------------------------

> The opinions and information exchanged on this list should IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> ------------------------------------

>

>

>

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We'd be lost without your written voice!

Gale

> > > > > Zach is fighting his Tobi treatments so hard he is now

banging

> > > his

> > > > > head against my shoulder throughout the treatment. My

shoulder

> > > is

> > > > > so sore I dread CPT time tonight. I have called the clinic.

> > > This

> > > > > can't be normal. Do any of you have to physically restrain

> > your

> > > > > children during treatments? If so, do you stop treatments

and

> > > do

> > > > > something else? Do you just give a partial treatment? I

want

> > to

> > > do

> > > > > what is best for Zach, but this is breaking my heart.

> > > > > I am at a loss for what to do. Zach is ok with everything

but

> > > > > breathing the TOBI. He will play with the nebulizer and

> > > > > compressor. He will even hold the mask to his face, but

when

> > > the

> > > > > TOBI starts to come out he is inconsolable.

> > > > > Any advice would be appreciated.

> > > > > Sara

> >

> >

> >

> > -------------------------------------------

> > The opinions and information exchanged on this list should IN NO

WAY

> > be construed as medical advice.

> >

> > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

> TREATMENTS.

> >

> > ------------------------------------

> >

> >

> >

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Gale, aaaaaaaaaw! Enough to bring tears to the eyes of one my age--sure

messes

up those tri-focals, though! Thank you so very much! Love to all at

conncoll,

n

Re: What to do

> We'd be lost without your written voice!

>

> Gale

>

>

> > > > > > Zach is fighting his Tobi treatments so hard he is now

> banging

> > > > his

> > > > > > head against my shoulder throughout the treatment. My

> shoulder

> > > > is

> > > > > > so sore I dread CPT time tonight. I have called the clinic.

> > > > This

> > > > > > can't be normal. Do any of you have to physically restrain

> > > your

> > > > > > children during treatments? If so, do you stop treatments

> and

> > > > do

> > > > > > something else? Do you just give a partial treatment? I

> want

> > > to

> > > > do

> > > > > > what is best for Zach, but this is breaking my heart.

> > > > > > I am at a loss for what to do. Zach is ok with everything

> but

> > > > > > breathing the TOBI. He will play with the nebulizer and

> > > > > > compressor. He will even hold the mask to his face, but

> when

> > > > the

> > > > > > TOBI starts to come out he is inconsolable.

> > > > > > Any advice would be appreciated.

> > > > > > Sara

> > >

> > >

> > >

> > > -------------------------------------------

> > > The opinions and information exchanged on this list should IN NO

> WAY

> > > be construed as medical advice.

> > >

> > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

> > TREATMENTS.

> > >

> > > ------------------------------------

> > >

> > >

> > >

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Dear SARA,

You sound like a great mommy that is now very much in control . The

stroller idea is also a great one , BUT, must be used inside for that only

........Of course outside, etc , used for it original purpose is o.k. BUT

inside ---treatments only. Great gal . I am so happy he went calmer after

the Mozart tape. Most wee ones like that. YOU will have to give up some of

the shows in order to get HIM on the show-treatment routine. It will work

for many years actually..........best to you all Y happy holidays ahead

.......whatever ---wherever your are.

LOVE & HUGS< GrandmomBEV

Re: What to do

Thanks for all of the great advice. Sometimes I just need a little

help thinking outside the box.

As luck would have it, Zach had meetings with his developmental and

physical therapists today. He did not score well, but that is

another story. I unloaded on them. His developmental therapist is

always blunt with me, which I like. She said basically that Zach is

trying to control the situation period. He wants to play with his

new toys (neb, compressor, bubbles) but not use them. It is up to

me to set the limits.

So tonight I changed my strategy. He loves to watch Dumbo, but

watching Dumbo wasn't helping him calm down for treatments. Someone

mentioned Baby Mozart. He hasn't watched that tape in six months,

but I got it out to give it a try. Zach was delighted. He started

to struggle at first, but the music is so calming I am able to talk

over it and he seems content as long as I am talking to him.

He did a great treatment tonight. I am so relieved.

I like the stroller idea too. That might be a fun change for him.

He likes his stroller, but we just always keep it folded in the car.

I like the idea of only watching tv during treatments. But I would

never stick to it. I love all of those kid shows and we have them

on throughout the day.

Thanks again everyone. This is such a great group!

Sara - mommy of Zach 21 months with only 2 weeks left of TOBI (i

hope)

> Zach is fighting his Tobi treatments so hard he is now banging his

> head against my shoulder throughout the treatment. My shoulder is

> so sore I dread CPT time tonight. I have called the clinic. This

> can't be normal. Do any of you have to physically restrain your

> children during treatments? If so, do you stop treatments and do

> something else? Do you just give a partial treatment? I want to

do

> what is best for Zach, but this is breaking my heart.

> I am at a loss for what to do. Zach is ok with everything but

> breathing the TOBI. He will play with the nebulizer and

> compressor. He will even hold the mask to his face, but when the

> TOBI starts to come out he is inconsolable.

> Any advice would be appreciated.

> Sara

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

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Actually we used our stroller for naps too. really liked

being in there. It is probably a bad habit to get into though.

> > Zach is fighting his Tobi treatments so hard he is now banging his

> > head against my shoulder throughout the treatment. My shoulder is

> > so sore I dread CPT time tonight. I have called the clinic. This

> > can't be normal. Do any of you have to physically restrain your

> > children during treatments? If so, do you stop treatments and do

> > something else? Do you just give a partial treatment? I want to

> do

> > what is best for Zach, but this is breaking my heart.

> > I am at a loss for what to do. Zach is ok with everything but

> > breathing the TOBI. He will play with the nebulizer and

> > compressor. He will even hold the mask to his face, but when the

> > TOBI starts to come out he is inconsolable.

> > Any advice would be appreciated.

> > Sara

>

>

>

> -------------------------------------------

> The opinions and information exchanged on this list should IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> ------------------------------------

>

>

>

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YEAH. They are really godsends aren't then. I even have used them in

place of high

chairs on occasions as well. I bet many have really helpful others uses

too

LOVE & HUGS, grandmomBEV

Re: What to do

Actually we used our stroller for naps too. really liked

being in there. It is probably a bad habit to get into though.

> > Zach is fighting his Tobi treatments so hard he is now banging his

> > head against my shoulder throughout the treatment. My shoulder is

> > so sore I dread CPT time tonight. I have called the clinic. This

> > can't be normal. Do any of you have to physically restrain your

> > children during treatments? If so, do you stop treatments and do

> > something else? Do you just give a partial treatment? I want to

> do

> > what is best for Zach, but this is breaking my heart.

> > I am at a loss for what to do. Zach is ok with everything but

> > breathing the TOBI. He will play with the nebulizer and compressor.

> > He will even hold the mask to his face, but when the TOBI starts to

> > come out he is inconsolable. Any advice would be appreciated.

> > Sara

>

>

>

> -------------------------------------------

> The opinions and information exchanged on this list should IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> ------------------------------------

>

>

>

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In a message dated 11/20/2003 10:52:26 AM Central Standard Time,

sara@... writes:

Sara

Has Zach ever tried collistin? It is another kind of inhaled antibotic. My

girls seem to like it better they say it smells better plus it takes less time

to do it. You have to do it 3 times a day but at least it only takes 10 to 15

minutes to get it done. You might talk to your doctor about it their can be

other option out there too. You just need to ask you doctor. Deb A

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spelled " Colistin, " pretty sure--n, who never spells anything right!

Re: What to do

> In a message dated 11/20/2003 10:52:26 AM Central Standard Time,

> sara@... writes:

> Sara

> Has Zach ever tried collistin? It is another kind of inhaled antibotic. My

> girls seem to like it better they say it smells better plus it takes less

time

> to do it. You have to do it 3 times a day but at least it only takes 10 to

15

> minutes to get it done. You might talk to your doctor about it their can

be

> other option out there too. You just need to ask you doctor. Deb A

>

>

>

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