Guest guest Posted November 20, 2003 Report Share Posted November 20, 2003 Zach is fighting his Tobi treatments so hard he is now banging his head against my shoulder throughout the treatment. My shoulder is so sore I dread CPT time tonight. I have called the clinic. This can't be normal. Do any of you have to physically restrain your children during treatments? If so, do you stop treatments and do something else? Do you just give a partial treatment? I want to do what is best for Zach, but this is breaking my heart. I am at a loss for what to do. Zach is ok with everything but breathing the TOBI. He will play with the nebulizer and compressor. He will even hold the mask to his face, but when the TOBI starts to come out he is inconsolable. Any advice would be appreciated. Sara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2003 Report Share Posted November 20, 2003 How old is he? If he is old enough maybe you could bribe him with a piece of candy to eat or suck on while he is going tobi or even a piece of gum. Tina W. What to do Zach is fighting his Tobi treatments so hard he is now banging his head against my shoulder throughout the treatment. My shoulder is so sore I dread CPT time tonight. I have called the clinic. This can't be normal. Do any of you have to physically restrain your children during treatments? If so, do you stop treatments and do something else? Do you just give a partial treatment? I want to do what is best for Zach, but this is breaking my heart. I am at a loss for what to do. Zach is ok with everything but breathing the TOBI. He will play with the nebulizer and compressor. He will even hold the mask to his face, but when the TOBI starts to come out he is inconsolable. Any advice would be appreciated. Sara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2003 Report Share Posted November 20, 2003 I don't have a solution, but I can tell you that occasionally we have issues with treatments like you are describing. As amazing as it sounds our 22 month old can out maneuver 2 adults when he doesn't want to do a treatment. He'll get so worked up and heated up, I end up soaked from him sweating so much. Things that have worked for us in the past. 1. Have someone else do the treatment: Aunt, Grandparent, Therapist, Make sure you and leave the room, at least this works when we are in Club Med. As soon as we are out of sight, and it is clear we are not coming back to rescues him, he calms right down. I often just sit on the other side of the curtain. 2. Find something that captivates him. For us it is Bob the Builder videos or Dora. Nothing takes our sons attention away from either of these shows, you'll have to see if there is something like that for Zach. I know others recommend Cedarmont Kids Sign-Along tapes, or baby mozart etc. Any other parents have some good suggestions? What to do Zach is fighting his Tobi treatments so hard he is now banging his head against my shoulder throughout the treatment. My shoulder is so sore I dread CPT time tonight. I have called the clinic. This can't be normal. Do any of you have to physically restrain your children during treatments? If so, do you stop treatments and do something else? Do you just give a partial treatment? I want to do what is best for Zach, but this is breaking my heart. I am at a loss for what to do. Zach is ok with everything but breathing the TOBI. He will play with the nebulizer and compressor. He will even hold the mask to his face, but when the TOBI starts to come out he is inconsolable. Any advice would be appreciated. Sara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2003 Report Share Posted November 20, 2003 These are good suggestions, . What has always worked with Ricky is television. Not that this totally helped when he was a toddler... He was very determined then that he didn't want to do his treatments! Anyway, nowadays he *only* watches TV when he is doing a treatment so it is a huge incentive. If he thrashes around and makes a fuss about doing his treatment (yes, even though he is almost 8, he still does this) then we take away the TV for that treatment. Works for us! Becky Re: What to do I don't have a solution, but I can tell you that occasionally we have issues with treatments like you are describing. As amazing as it sounds our 22 month old can out maneuver 2 adults when he doesn't want to do a treatment. He'll get so worked up and heated up, I end up soaked from him sweating so much. Things that have worked for us in the past. 1. Have someone else do the treatment: Aunt, Grandparent, Therapist, Make sure you and leave the room, at least this works when we are in Club Med. As soon as we are out of sight, and it is clear we are not coming back to rescues him, he calms right down. I often just sit on the other side of the curtain. 2. Find something that captivates him. For us it is Bob the Builder videos or Dora. Nothing takes our sons attention away from either of these shows, you'll have to see if there is something like that for Zach. I know others recommend Cedarmont Kids Sign-Along tapes, or baby mozart etc. Any other parents have some good suggestions? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2003 Report Share Posted November 20, 2003 Forgive me for spacing out completely, but how old is he? When was really little she would do her nebs in a rocking chair that had a strap that I could strap her in with. When she got too big for that we put her in the stroller. I know it sounds like putting them in restraints, but it beats having your shoulder whacked with a head every time you do a treatment. actually calmed right down in the stroller or rocking chair. (though she really hasn't had this much of an issue with Tobi in particular) Hope it helps > Zach is fighting his Tobi treatments so hard he is now banging his > head against my shoulder throughout the treatment. My shoulder is > so sore I dread CPT time tonight. I have called the clinic. This > can't be normal. Do any of you have to physically restrain your > children during treatments? If so, do you stop treatments and do > something else? Do you just give a partial treatment? I want to do > what is best for Zach, but this is breaking my heart. > I am at a loss for what to do. Zach is ok with everything but > breathing the TOBI. He will play with the nebulizer and > compressor. He will even hold the mask to his face, but when the > TOBI starts to come out he is inconsolable. > Any advice would be appreciated. > Sara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2003 Report Share Posted November 20, 2003 That is how Abby acts with her treatments. We do it while she is sleeping. You said that Zach wakes up. That makes it hard. Have you tried breathing the Tobi? What is it like? Abby doesn't use Tobi. Gale > Zach is fighting his Tobi treatments so hard he is now banging his > head against my shoulder throughout the treatment. My shoulder is > so sore I dread CPT time tonight. I have called the clinic. This > can't be normal. Do any of you have to physically restrain your > children during treatments? If so, do you stop treatments and do > something else? Do you just give a partial treatment? I want to do > what is best for Zach, but this is breaking my heart. > I am at a loss for what to do. Zach is ok with everything but > breathing the TOBI. He will play with the nebulizer and > compressor. He will even hold the mask to his face, but when the > TOBI starts to come out he is inconsolable. > Any advice would be appreciated. > Sara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2003 Report Share Posted November 20, 2003 Tobi is yucky. It takes my breath away and gives me a headache. I have never had to breathe a full treatment though so others could probably answer this better. Sara > > Zach is fighting his Tobi treatments so hard he is now banging his > > head against my shoulder throughout the treatment. My shoulder is > > so sore I dread CPT time tonight. I have called the clinic. This > > can't be normal. Do any of you have to physically restrain your > > children during treatments? If so, do you stop treatments and do > > something else? Do you just give a partial treatment? I want to do > > what is best for Zach, but this is breaking my heart. > > I am at a loss for what to do. Zach is ok with everything but > > breathing the TOBI. He will play with the nebulizer and > > compressor. He will even hold the mask to his face, but when the > > TOBI starts to come out he is inconsolable. > > Any advice would be appreciated. > > Sara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2003 Report Share Posted November 20, 2003 I wonder if it gives your baby a headache or burns his eyes??? Gale > > > Zach is fighting his Tobi treatments so hard he is now banging > his > > > head against my shoulder throughout the treatment. My shoulder > is > > > so sore I dread CPT time tonight. I have called the clinic. > This > > > can't be normal. Do any of you have to physically restrain your > > > children during treatments? If so, do you stop treatments and > do > > > something else? Do you just give a partial treatment? I want to > do > > > what is best for Zach, but this is breaking my heart. > > > I am at a loss for what to do. Zach is ok with everything but > > > breathing the TOBI. He will play with the nebulizer and > > > compressor. He will even hold the mask to his face, but when > the > > > TOBI starts to come out he is inconsolable. > > > Any advice would be appreciated. > > > Sara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2003 Report Share Posted November 20, 2003 Thanks for all of the great advice. Sometimes I just need a little help thinking outside the box. As luck would have it, Zach had meetings with his developmental and physical therapists today. He did not score well, but that is another story. I unloaded on them. His developmental therapist is always blunt with me, which I like. She said basically that Zach is trying to control the situation period. He wants to play with his new toys (neb, compressor, bubbles) but not use them. It is up to me to set the limits. So tonight I changed my strategy. He loves to watch Dumbo, but watching Dumbo wasn't helping him calm down for treatments. Someone mentioned Baby Mozart. He hasn't watched that tape in six months, but I got it out to give it a try. Zach was delighted. He started to struggle at first, but the music is so calming I am able to talk over it and he seems content as long as I am talking to him. He did a great treatment tonight. I am so relieved. I like the stroller idea too. That might be a fun change for him. He likes his stroller, but we just always keep it folded in the car. I like the idea of only watching tv during treatments. But I would never stick to it. I love all of those kid shows and we have them on throughout the day. Thanks again everyone. This is such a great group! Sara - mommy of Zach 21 months with only 2 weeks left of TOBI (i hope) > Zach is fighting his Tobi treatments so hard he is now banging his > head against my shoulder throughout the treatment. My shoulder is > so sore I dread CPT time tonight. I have called the clinic. This > can't be normal. Do any of you have to physically restrain your > children during treatments? If so, do you stop treatments and do > something else? Do you just give a partial treatment? I want to do > what is best for Zach, but this is breaking my heart. > I am at a loss for what to do. Zach is ok with everything but > breathing the TOBI. He will play with the nebulizer and > compressor. He will even hold the mask to his face, but when the > TOBI starts to come out he is inconsolable. > Any advice would be appreciated. > Sara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2003 Report Share Posted November 20, 2003 Just plain cannot taked the stuff--imagine me with no voice! Love, n Re: What to do > I wonder if it gives your baby a headache or burns his eyes??? > > Gale > > > > > Zach is fighting his Tobi treatments so hard he is now banging > > his > > > > head against my shoulder throughout the treatment. My shoulder > > is > > > > so sore I dread CPT time tonight. I have called the clinic. > > This > > > > can't be normal. Do any of you have to physically restrain > your > > > > children during treatments? If so, do you stop treatments and > > do > > > > something else? Do you just give a partial treatment? I want > to > > do > > > > what is best for Zach, but this is breaking my heart. > > > > I am at a loss for what to do. Zach is ok with everything but > > > > breathing the TOBI. He will play with the nebulizer and > > > > compressor. He will even hold the mask to his face, but when > > the > > > > TOBI starts to come out he is inconsolable. > > > > Any advice would be appreciated. > > > > Sara > > > > ------------------------------------------- > The opinions and information exchanged on this list should IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > ------------------------------------ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2003 Report Share Posted November 20, 2003 We'd be lost without your written voice! Gale > > > > > Zach is fighting his Tobi treatments so hard he is now banging > > > his > > > > > head against my shoulder throughout the treatment. My shoulder > > > is > > > > > so sore I dread CPT time tonight. I have called the clinic. > > > This > > > > > can't be normal. Do any of you have to physically restrain > > your > > > > > children during treatments? If so, do you stop treatments and > > > do > > > > > something else? Do you just give a partial treatment? I want > > to > > > do > > > > > what is best for Zach, but this is breaking my heart. > > > > > I am at a loss for what to do. Zach is ok with everything but > > > > > breathing the TOBI. He will play with the nebulizer and > > > > > compressor. He will even hold the mask to his face, but when > > > the > > > > > TOBI starts to come out he is inconsolable. > > > > > Any advice would be appreciated. > > > > > Sara > > > > > > > > ------------------------------------------- > > The opinions and information exchanged on this list should IN NO WAY > > be construed as medical advice. > > > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR > TREATMENTS. > > > > ------------------------------------ > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2003 Report Share Posted November 20, 2003 Gale, aaaaaaaaaw! Enough to bring tears to the eyes of one my age--sure messes up those tri-focals, though! Thank you so very much! Love to all at conncoll, n Re: What to do > We'd be lost without your written voice! > > Gale > > > > > > > > Zach is fighting his Tobi treatments so hard he is now > banging > > > > his > > > > > > head against my shoulder throughout the treatment. My > shoulder > > > > is > > > > > > so sore I dread CPT time tonight. I have called the clinic. > > > > This > > > > > > can't be normal. Do any of you have to physically restrain > > > your > > > > > > children during treatments? If so, do you stop treatments > and > > > > do > > > > > > something else? Do you just give a partial treatment? I > want > > > to > > > > do > > > > > > what is best for Zach, but this is breaking my heart. > > > > > > I am at a loss for what to do. Zach is ok with everything > but > > > > > > breathing the TOBI. He will play with the nebulizer and > > > > > > compressor. He will even hold the mask to his face, but > when > > > > the > > > > > > TOBI starts to come out he is inconsolable. > > > > > > Any advice would be appreciated. > > > > > > Sara > > > > > > > > > > > > ------------------------------------------- > > > The opinions and information exchanged on this list should IN NO > WAY > > > be construed as medical advice. > > > > > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR > > TREATMENTS. > > > > > > ------------------------------------ > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2003 Report Share Posted November 21, 2003 Dear SARA, You sound like a great mommy that is now very much in control . The stroller idea is also a great one , BUT, must be used inside for that only ........Of course outside, etc , used for it original purpose is o.k. BUT inside ---treatments only. Great gal . I am so happy he went calmer after the Mozart tape. Most wee ones like that. YOU will have to give up some of the shows in order to get HIM on the show-treatment routine. It will work for many years actually..........best to you all Y happy holidays ahead .......whatever ---wherever your are. LOVE & HUGS< GrandmomBEV Re: What to do Thanks for all of the great advice. Sometimes I just need a little help thinking outside the box. As luck would have it, Zach had meetings with his developmental and physical therapists today. He did not score well, but that is another story. I unloaded on them. His developmental therapist is always blunt with me, which I like. She said basically that Zach is trying to control the situation period. He wants to play with his new toys (neb, compressor, bubbles) but not use them. It is up to me to set the limits. So tonight I changed my strategy. He loves to watch Dumbo, but watching Dumbo wasn't helping him calm down for treatments. Someone mentioned Baby Mozart. He hasn't watched that tape in six months, but I got it out to give it a try. Zach was delighted. He started to struggle at first, but the music is so calming I am able to talk over it and he seems content as long as I am talking to him. He did a great treatment tonight. I am so relieved. I like the stroller idea too. That might be a fun change for him. He likes his stroller, but we just always keep it folded in the car. I like the idea of only watching tv during treatments. But I would never stick to it. I love all of those kid shows and we have them on throughout the day. Thanks again everyone. This is such a great group! Sara - mommy of Zach 21 months with only 2 weeks left of TOBI (i hope) > Zach is fighting his Tobi treatments so hard he is now banging his > head against my shoulder throughout the treatment. My shoulder is > so sore I dread CPT time tonight. I have called the clinic. This > can't be normal. Do any of you have to physically restrain your > children during treatments? If so, do you stop treatments and do > something else? Do you just give a partial treatment? I want to do > what is best for Zach, but this is breaking my heart. > I am at a loss for what to do. Zach is ok with everything but > breathing the TOBI. He will play with the nebulizer and > compressor. He will even hold the mask to his face, but when the > TOBI starts to come out he is inconsolable. > Any advice would be appreciated. > Sara ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2003 Report Share Posted November 21, 2003 Actually we used our stroller for naps too. really liked being in there. It is probably a bad habit to get into though. > > Zach is fighting his Tobi treatments so hard he is now banging his > > head against my shoulder throughout the treatment. My shoulder is > > so sore I dread CPT time tonight. I have called the clinic. This > > can't be normal. Do any of you have to physically restrain your > > children during treatments? If so, do you stop treatments and do > > something else? Do you just give a partial treatment? I want to > do > > what is best for Zach, but this is breaking my heart. > > I am at a loss for what to do. Zach is ok with everything but > > breathing the TOBI. He will play with the nebulizer and > > compressor. He will even hold the mask to his face, but when the > > TOBI starts to come out he is inconsolable. > > Any advice would be appreciated. > > Sara > > > > ------------------------------------------- > The opinions and information exchanged on this list should IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > ------------------------------------ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2003 Report Share Posted November 21, 2003 YEAH. They are really godsends aren't then. I even have used them in place of high chairs on occasions as well. I bet many have really helpful others uses too LOVE & HUGS, grandmomBEV Re: What to do Actually we used our stroller for naps too. really liked being in there. It is probably a bad habit to get into though. > > Zach is fighting his Tobi treatments so hard he is now banging his > > head against my shoulder throughout the treatment. My shoulder is > > so sore I dread CPT time tonight. I have called the clinic. This > > can't be normal. Do any of you have to physically restrain your > > children during treatments? If so, do you stop treatments and do > > something else? Do you just give a partial treatment? I want to > do > > what is best for Zach, but this is breaking my heart. > > I am at a loss for what to do. Zach is ok with everything but > > breathing the TOBI. He will play with the nebulizer and compressor. > > He will even hold the mask to his face, but when the TOBI starts to > > come out he is inconsolable. Any advice would be appreciated. > > Sara > > > > ------------------------------------------- > The opinions and information exchanged on this list should IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > ------------------------------------ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2003 Report Share Posted November 21, 2003 In a message dated 11/20/2003 10:52:26 AM Central Standard Time, sara@... writes: Sara Has Zach ever tried collistin? It is another kind of inhaled antibotic. My girls seem to like it better they say it smells better plus it takes less time to do it. You have to do it 3 times a day but at least it only takes 10 to 15 minutes to get it done. You might talk to your doctor about it their can be other option out there too. You just need to ask you doctor. Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2003 Report Share Posted November 21, 2003 spelled " Colistin, " pretty sure--n, who never spells anything right! Re: What to do > In a message dated 11/20/2003 10:52:26 AM Central Standard Time, > sara@... writes: > Sara > Has Zach ever tried collistin? It is another kind of inhaled antibotic. My > girls seem to like it better they say it smells better plus it takes less time > to do it. You have to do it 3 times a day but at least it only takes 10 to 15 > minutes to get it done. You might talk to your doctor about it their can be > other option out there too. You just need to ask you doctor. Deb A > > > Quote Link to comment Share on other sites More sharing options...
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